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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    Ursa Major

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    About Ursa Major

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      My grandson Eli, 12 months
    • Birthday 05/26/1953

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    • Gender Female
    • Interests Jesus Christ, medical research, reading, playing my recorders (musical woodwind instruments), my 21 grandchildren, knitting, card making, playing computer games.

      I love playing classical music on my recorders (I have a collection of expensive wooden ones, from sopranino to tenor), but also medieval dance music, Irish music and anything that is cheerful and is a challenge to play.

      I have a lot of hobbies, and I do them in cycles. I can't do too many things at once or I get very frazzled, thanks to Asperger Syndrome.
      I was diagnosed with chronic Lyme disease in June 2015.
    • Location Ontario, Canada

    Ursa Major's Activity

    1. Ursa Major added a post in a topic Gluten Free Chicken? No Such Thing   

      I have been thinking that I get glutened from my chicken meat for a while now. When googling, I came across this post. 
      I made chicken soup a couple of days ago, with all fresh ingredients, and a whole organic chicken from our butcher, as usual. And again, as usual, I am sick today, and have stomach and bowel cramps and diarrhea. 
      There is no way this is another coincidence, it has happened too many times. Thanks for your post, it explains a lot. I guess I'll have to stop eating chicken, which is pretty sad!
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    2. Ursa Major added a post in a topic Dr. Wakefield Trial (mmr/autism Possible Link)   

      You are right. I had never heard of him before looking at this thread. Yet when I started doing research on vaccinations (and KNOWING that my oldest daughter got damaged by the DPT vaccine) after my youngest daughter got her first shot 17 years ago, NONE of my five kids ever got another vaccine.

      And my youngest ended up being the healthiest of the bunch.
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    3. Ursa Major added a post in a topic Dr. Wakefield Trial (mmr/autism Possible Link)   

      I copied and saved the form, in case I ever need it. No doctor in his right mind would sign that, of course, but it would sure make them realize what they are doing (at least I hope so).
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    4. Ursa Major added a post in a topic Help How Common Is Abdominal/digestion Pain - Sometimes Severe?   

      I had absolutely horrible pain before I diagnosed myself. My stomach was so inflamed that wearing a bra or tight pants was impossible, it caused so much pain.

      So, not only did I have severe stomach and bowel cramps, but just slightly poking me in the stomach area (just below the rib cage, but also lower) would make me cry out if caught unawares.

      Its only been two weeks for you. It took me six months before that pain subsided. Also, I was unable to eat anything raw for those six months. I had to cook all vegetables and even fruits until well done, or they would cause the terrible stomach pain and explosive D within minutes of eating them. That includes salad.

      I also couldn't eat any gluten-free replacement foods (bread, cookies etc.) or dairy products for many months.

      So, seeing you had the same symptoms as me, you may have to eliminate raw foods as well. They are hard to digest.
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    5. Ursa Major added a post in a topic Probiotics And Parasites   

      Many here have done the parasite cleanse by Humaworm, including myself. My naturopath read through the information I showed him, and told me it was better than what he had been using with his patients, and he was switching.

      It is MUCH cheaper than any other parasite cleanse I have seen, and very effective. And yes, it is perfectly safe to do for somebody with celiac disease.

      You really need to do a cleanse if you have parasites, or you won't get better.
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    6. Ursa Major added a post in a topic Can I Take gluten-free Bread Into Canada?   

      When I came back from Germany last year, I brought lots of buckwheat bread and crisp bread back with me, as I am unable to buy anything like it here.

      When my nephew came to visit recently, he had a quarter of his suitcase filled with bread he brought for me.

      There is no need to declare that kind of thing. I have traveled quite a bit, and NEVER had a problem, other than having an apple taken away that should have been eaten on the airplane (they don't stop you from taking food in your carry on to eat during the flight, unless it contains fluid).
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    7. Ursa Major added a post in a topic Good Tasting gluten-free Bread For Sandwiches?   

      I don't know if you can get this where you are, as it is made in Canada (Cambridge, Ontario). I found that the 'gourmet bread' by El Peto is excellent and tastes just like light rye bread. Even my (extremely picky) teenager eats it! Before our store started carrying it, neither one of us ate bread, because all the other breads are gross.
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    8. Ursa Major added a post in a topic Changs Soy Sauce   

      I am afraid there isn't much you can do, other than return it (if you haven't opened it), because if it says gluten-free, and has wheat flour listed in the ingredients, that is misleading information.

      Also, you may want to let the manufacturer know that you are quite unhappy with this.
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    9. Ursa Major added a post in a topic Ugh So Frustrated!   

      If you have the celiac disease genes, it is entirely possible that your pregnancy and giving birth could have triggered active celiac disease. A lot of people here were fine before having babies.

      In which case eating low fat/low protein and high carb is about the WORST possible diet for you! In fact, that kind of diet isn't good for anybody.

      You felt better on a low carb diet. That is very telling. I suggest, now that you've had your blood test done, what stops you from starting on the gluten-free diet? Of course, if you want to have an endoscopy with biopsies done, you will have to keep eating gluten until after that is done.

      But you sure sound like you have celiac disease.
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    10. Ursa Major added a post in a topic Hand Sanitizer?   

      I am not sure why you have to use hand sanitizer at all. My daughter wears contact lenses, and she washes her hands with soap (gluten-free) and water before handling her contacts. Hand sanitizer only kills germs, it doesn't clean your hands.
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    11. Ursa Major added a post in a topic I Work In A Bakery   

      Lori, you will NEVER get completely well if you keep working in your bakery. If you truly are gluten intolerant, then it simply is not safe.
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    12. Ursa Major added a post in a topic Shampoos And Wheat   

      The most common troublesome ingredient in shampoo is wheat germ oil. They also like to use barley extract and oat bran, which can both be a problem.

      When I switched to Dove shampoo, conditioner and mousse from my previous (organic brand, which contained wheat germ oil), the terrible itching on my scalp that was driving me mad disappeared.
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    13. Ursa Major added a post in a topic Hellmans/best Foods Canola Mayo   

      I just found this the other day about canola oil. I had known for a long time that it isn't healthy, but this says it is highly toxic.

      You may want to make your own mayo, or find some that isn't made with canola oil.
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    14. Ursa Major added a post in a topic Does Anybody Have Celiac And Addison's Disease?   

      Well, the doctor in Germany diagnosed me with Addison's. But my adrenal antibody test came back negative (in the meantime I've heard that it can become negative after a while if you have had undiagnosed Addison's for a long time), so I don't know what is causing mine. Adrenal exhaustion is also called Addison's, but the cause is different. No antibodies, just complete burnout for whatever reason.

      I've tried weaning off the hydrocortisone, but I am unable to, as I stop functioning altogether if I lower the dose by even a little (I take 20 mg a day now).

      I am also taking fludrocortisone (0.5 mg a day) because my aldosterone was extremely low, causing my blood pressure to fall to unacceptably low levels. And I am on desiccated thyroid (called Armour in the States) for hypothyroidism. Fortunately I was at least able to convince my doctor to prescribe that.

      My skin didn't get darker, that is a possible symptom, but not everybody gets it.
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    15. Ursa Major added a post in a topic Anxiety?   

      Yes, anxiety is a very common symptom of celiac disease. As is withdrawal when you eliminate gluten. Not everybody experiences withdrawal, but the people who do can be feeling absolutely dreadful for up to two weeks.

      The reason for that is, that gliadin (a part of the gluten) will act on the brain like an opioid, and when you stop eating it, it is like coming off street drugs.

      So, even though it is no fun to go through it, withdrawal is confirmation that you are addicted to gluten, and that you are on the right track in eliminating it.
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