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zebrajeb

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About zebrajeb

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  1. I also like the Health Valley Rice and Corn Crumch-Ums! Get them at Wild Oats and even in health food section of some grocery stores.
  2. Among other things it could be sleep apnea. Only a sleep test will tell, but worth checking. I probably went 10 years that way before being tested. Now, I sleep well and awake rested.
  3. I love breakfast - eggs, toast (my wife makes me gluten free bread), sausage, hash browns (or grits). However, most days I just eat cereal. Wild Oats and a number of local grocery stores all carry gluten free rice or corn chex type cereal.
  4. It can last a while. Ask your doctor about dapsone. It relieves the itching within 24 hours. It must be taken carefully and your liver function monitered. (An easy periodic blood test.) Worked great for me! John
  5. Family doctors kept treating me for eczema but none of the treatments worked! So, I figured I'd try a dermatologist. Luckly, I got one who had actually written articles on DH. Two minutes of checking me out he says "I'm 95% sure of your problem but let's get a biopsi and confirm it." It was confirmed. A lot of doctors don't know much about DH or celiac disease. Even so, they tend to treat it as the "easiest" first before going further. I don't have eczema at all - only DH!
  6. Just found this forum - its great! As someone noted, nice to have others who understand! I was diagnosed with DH almost 3 years ago. Didn't think I had any GI problems related until after I went gluten free. Now, I've found out I do! Gluten pretty much gives me GI pain, d or constipated. Generally last about 24-48 hours. Also get some "blisters" on face, elbows or knees but the GI problems have become more noticeable. Severity depends on how much gluten. Traval a lot so have learned to be careful traveling! Interestingly enough, my oldest daughter (adult) has had problems for years but doctors could not figure it out. After I was diagnosed, she got test and has celiac disease. After bring gluten free for a year, she says feels best she every has. John
  7. As Claire noted - sounds like DH. Mine was very similar - especially on the knees and elbows. Also around jaw line and cankers in mouth. After trying all kinds of prescription creams from doctor, went to dermatologist. Got lucky, he was very familiar with DH. Took tissue samples and sent to lab which confirmed. This had been going on for several years before I finally got it diagnosed and treated. Use to wake up at night dripping blood from scratching so hard! Could not wear long sleeve shirts or shorts. Besides gluten free diet, doctor gave me dapsone which helped eliminate the itching. Been 2 years now and life is much better. Will note I didn't think I had any GI problems out of the normal until I went gluten-free. If I get any gluten, I know know I had GI problems before but didn't think I did. John