Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    • Content count

    • Joined

    • Last visited

    Community Reputation

    0 Neutral

    About l.badlass

    • Rank
      New Community Member

    l.badlass's Activity

    1. l.badlass added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Prediagnosis And Frustrated!
      Hello All, 
      My name is Leah and I am new to the forum.  I think this post is partly seeking advice and partly to vent so I'm sorry if it comes off as a bit of a rant.  
      2 years ago I was diagnosed with pernicious anaemia.  My symptoms were fatigue, brain fog, and a ridiculously low b12 level.  I have been on b12 injections monthly since.  It seemed to help with the symptoms.  I have been lactose intolerant for nearly 10 years and have had GI symptoms off and on my whole adult life.  From April of 2013 to October 2013 I was eating a gluten free diet for a cleanse I read about and was symptom free.  In October of 2013 I started eating gluten again and began experiencing extremely severe stomach pain, diarrhoea, fatigue, and a foggy brain again.  Initially the pain was radiating towards my back under my shoulder blade.  I was tested for pancreatitus and blood work that would indicate an ulcer - both negative.  I have been prescribed a variety of drugs for reflux and diarrhoea with no improvement.  
      I was scheduled for a colonoscopy in mid december and was told by my doctor that I could begin eating gluten free and that it wouldn't affect any tests for celiac and that she was sure I didn't have celiac anyway.  Upon speaking to the Gastroenterologist prior to my colonoscopy I was told that I must continue to eat gluten until he could have me in for an endoscopy mid February.  I also had blood work done for gluten antibodies in December when I had my colonoscopy.  Again both negative.  
      I am eating a gluten diet now and have all the same symptoms I started with in October with nothing really providing any relief.  The pain and diarrhoea have kept me off work since mid October.  I see my doctor for results and follow up appointments to complete paperwork for my work benefits and she keeps insisting that I have IBS and to make plans for when I go gluten-free and continue to have symptoms.  She's so convinced and so smug.  I've done reading online about IBS and Celiac and while they do share some symptoms, my doctor is convinced that because I'm not textbook Celiac that I have IBS which is basically a way to say undiagnosed GI issues.  
      When I read about IBS online it says that there is some relief of abdominal pain after BM and I don't get that relief.  It speaks of bloating and other things I don't experience.  
      I will admit that my blood work isn't textbook celiac but so many of the other symptoms I'm having are things I've read on this forum by people who have been diagnosed.  I'm worried about what will happen with my endoscopy in February and I'm constantly reading and researching online because I'm learning that my doctor is kind of old school and doesn't really have a clue when it comes to celiac.  
      Thanks so much for 'listening'.  I feel better even now after stabbing this out on my keyboard into cyber space.  At this point I'm sure I am where so many of you have been....I just want a diagnosis.  
      • 1 reply

    Ads by Google: