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About icelandgirl

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  1. Hi Bamagal, That sounds super scary...((((hugs)))). It could definitely be thyroid...hyperthyroidism or Graves will increase heart rate. Please ask that they do a full thyroid panel on you to include: TSH, Free T3, Free T4, TPOAb and TgAb. Good luck and let us know how it goes!
  2. Honeyville is great!
  3. Hi Ravenu5! I feel your frustration! I have Hashis. After being diagnosed with celiac and continuing issues I ended up gluten, soy and dairy free. That led to my having kidney stones earlier this year and switching to a gluten free, soy free, low oxalate, adequate calcium diet...this led to high cholesterol. I'm super frustrated and annoyed. I broke down and made an appointment with a nutritionist. I'll see her in about a month. Hoping it helps. I hope you get stuff figured out soon. (((Hugs)))
  4. Hi Lisa, I completely understand why you didn't do a biopsy on your daughter. I went through the appendix thing myself...not fun! I was diagnosed with just bloodwork and no biopsy, but did have the full panel. I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests. Since she was already willing to test you, I'm sure she would be willing to order these. Good luck!
  5. Big ((((hugs)))) to you sweetie. I'm glad the surgery is behind you...that's always tough. I'm so sorry that you are facing this, but you sound ready to taking it on. Please do keep us updated. As Gemini said, we really do care. I will be praying for you.
  6. Oh boys mom, I'm so sorry. (((((Hugs))))) I have not been through this either. I would follow Geminis advice on a nutritionist. I wish I could offer something more. Hopefully your boys are surrounding you with love right now. Do whatever you can to take care of yourself now. Be good to yourself. Pray, meditate, yoga, etc. I hope that someone with more experience chimes in with advice. We are all here for you. (((((((Hugs))))))
  7. That's so wonderful cyclinglady! I'm so happy for you...this makes me want to head to Europe!
  8. Everything Gemini said!! I'm just wondering about ordering your own tests online? I have not done this, if anyone has please chime in. I found this website where you order and pay for it, they send you a lab req, you go get it done and get results. It might be worth a try? I know that you're getting discouraged. Hang in there. (((HUGS)))
  9. Hi Mom...I take Florajen 3. It has worked really well for me. It is kept refrigerated. I have a hard time finding it where I live so I usually have to order it.
  10. Totally agree Cristiana!
  11. Hi Matt, Since celiac impacts the whole body...I think kidneys are affected. I have kidney stones and they are super fun(not) and my urologist says that it's fairly common with celiac and malabsorption. I don't know specifically about kidney disease, but when I was in the hospital passing my stones...prior to passing, my GFR was around 60. A few weeks later when my doctor did bloodwork it was 87. Here is some info that may help.
  12. Hang in there is hard and frustrating. Good job getting that appointment moved up. I've done too...I've called daily looking for cancellations. I can also remember counting down the days until my appointment. ((((Hugs)))) and please let us know how it goes.
  13. I get so frustrated! My friend's mom is 67...there has to be a reason for this. And all she says is, they have no idea how she can be in end stage liver disease! Anyway, I'm doing ok. I got cc'd on vacation which stunk. I had forgotten how terrible it feels. Ugh! The good news is that my vitamin D level is finally moving up...not inching. It increased by 3 points in the last 6 months. Previously, it was inching with increases of .5 or .6. So I'm pleased that I'm absorbing better. Bartie's passing really shook me up. This disease is a scary thing as so many people go undiagnosed for so long. Then other people have disappeared from the board(nvsmom), who were huge contributors and I worry that they aren't doing well. But I am a worrier. How are you?
  14. Gemini...I'm so sorry about your brother. (((Hugs))) It's just awful...I too have relatives that I believe have celiac. One uncle is deteriorating...and in and out of the hospital. He hasn't been tested for celiac and no one wants to hear it. I also have a friend whose mom has been diagnosed with early onset alzheimers and end stage kidney disease. She's not a drinker at all. This is after surviving breast and lung cancer and she's never smoked. Last year she was in the hospital with severe diarrhea and dehydration. Has she been tested? No. I've talked to my friend and she says she doesn't think she'd go gluten free anyway. makes me so sad.
  15. Hi RMJ...I'm so glad that your spine is fine...that's great news! Think abouthat trying magnesium? It has helped my super annoying tingling so much. Thanks for letting us know.