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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About GFAnnie

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  1. Thank you! He does want her to do a gluten challenge, but since she's about to start the school year, she is going to wait until next summer. I guess what the GI doctor had told was that she only scored positive in the test he considered the weakest indicator of celiac. So I guess I was just curious If my sons results were similar to hers. I need to contact her now that I found his results, but I know there are much more knowledgeable people here!
  2. Quick background - This test was done in 2014. I had just been diagnosed with Celiac myself (via bloodtest) and so my doctor suggested we test my then 3 year old as well. He did the bloodtest and my doctor said he had it as well. I had just had a baby and my life was totally nuts at that moment so I said thank you, and our home has been gluten free ever since. Also, my niece had been diagnosed with celiac (via bloodtest) a few years prior so I figured it's in my family. What brings me back to re-reading our results is that my sister recently brought my niece to a GI specialist who looked at her test results and said he's not convinced she has celiac. He said it's more likely a wheat allergy, and suggested she do the endoscopy. So my "it's in the family so it makes sense I have it too" is beginning to erode. And if I understand these results at all, my son only test positively in 1 of the 3 things tested. I personally never had much in the way of symptoms but I do suspect I have DH. So long story short, here are my son's results. I apologize because I'm just going to copy what I think it supposed to be the important part, as much as I can understand it!   Tissue Transglutaminase AB, IGA  25H  (less than 4 means no antibody detected) Gliadin (Deamidated) AB (IGA) 6   (less than 20 antibody not detected) Gliadin (Deamidated) AB (IGG) 18  (less than 20 antibody not detected)     So my understanding is that the first test there were a lot of antibodies detected, but in the last two, there were none. So, celiac? I wish I could find my own results, but at the moment I cannot. I believe my results we that same kind of deal though, high in the first test (but not as high as his) and clear on the last two.      
  3. I have a one year follow-up appointment next week with my doctor who doesn't believe any follow-up is necessary! And to be honest, I don't even know which tests exactly I'm supposed to request, and what kind of results are expected/acceptable after the first year. I know my doctor is not going to know, because like I said, she believes if I'm following a gluten free diet no follow-up testing is necessary. I know well enough to know this isn't true, but that's about all I know. In general, I'm quite clueless about the blood tests and results - my diagnosis was really kind of an unexpected surprise. Can anyone guide me, please!  
  4. Oh, and I'll also add that the mistake I made the first couple of times was taking "low heat" very literally and only turning my stove on "low."  This resulted in a sticky mess.  Once I started cranking up the heat a little I started getting perfect playdough every time.  Another benefit of playdough with white rice flour is that the playdough comes out pure white, and colors very nice and brightly with food coloring. As to your question Missdiamondbc, I don't know for sure if you can just swap rice flour for the wheat flour in your usual recipe.  But the recipe I posted is probably not too far off from your own?  It seems like the ingredients are not too far off from the standard wheat playdough.
  5. I know what you mean, we pay a lot too. But I guess I feel like I'm asking the teachers to go a little out of their way to protect my son, so I'll go a little out of my way too. Not to mention, my son loves playdough so this keeps a fresh supply going in our house as well. I just buy the ingredients in bulk on vitacost. And even though we pay a lot for his school, they still hold a lot of fundraisers that parents are supposed to be involved in, so in a way this gets me out of a lot of that!   Here is the recipe! (from   Easiest Gluten-Free Play Dough Recipe Ingredients: 1 Cup White Rice Flour 1/2 Cup Cornstarch 1/2 Cup Salt 1 Tbsp Cream of Tartar 1-1/2 tsp vegetable oil 1 Cup Water, hot but not boiling Food Coloring, as desired Directions: Mix all dry ingredients together in a medium pot. Add the vegetable oil, then the water, and continue to mix until thoroughly combined. Heat the pot on the stove over low heat for about 3 minutes. I like to stir frequently with a silicone spatula. When the dough starts to pull away from the sides easily, turn out the dough onto parchment paper. Let it cool briefly until you can work it with your hands. Knead food coloring into the dough until you get the color you desire. Additional Notes: Don’t overcook the dough. It shouldn’t need more than five minutes. To add food coloring, I use the method I’ve used since I was a kid: Using your thumbs, make a well in the middle of the ball of dough and drop the food coloring into the well. Close up the well with the outside dough, keeping the food coloring in the middle of the ball. Then, carefully begin kneading it until the color is evenly distributed throughout the dough. You don’t have to use the parchment paper. The dough shouldn’t be sticky. I use the parchment paper to simply keep residue and food coloring off my counter top. Wax paper or a plate would work just as well. If needed, adjust the texture with small amounts of water (for dry, crumbly dough) or cornstarch (for sticky dough). Makes about 2 cups of play dough, or about 2 baseball-size balls of dough. Store in tightly sealed plastic bags or containers.
  6. I agree with everything already said, but one thing I'm wondering, do you have any skin issues? Some of us have DH, or other celiac skin conditions, and in those people (like me), very few or no digestive symptoms can be present.  This was something that took me a while to figure out post-diagnosis, and my doctor was clueless about. Also, perhaps your symptoms are more neurological, like anxiety, depression, or just plain crazy irritability, weapiness, paranoia, or feeling like you can't handle life.  I also thought I was "mild" but then as I learned more about the variety of symptoms and became better at detecting my non-digestive reactions - skin rashes and temporary insanity!
  7. I am "playdough mom" at my son's preschool!  I provide a fresh batch of gluten free playdough to his preschool every two weeks. The teachers love the donation of time and supplies, and I don't have to think twice about my son getting glutened via playdough.  I couldn't tolerate gluten playdough in his classroom. All those gluteny little hands touching all the furniture, books, art supplies, my son etc.  I don't see how my son would be able to avoid getting glutened in those conditions. Making a batch of homemade gluten free playdough is just as easy as regular playdough, and once you do it a couple of times you'll have it nailed.
  8. I have a bottle of elderberry syrup for my celiac kids (supposed to help boost immune system because they're catching EVERYTHING this winter!) and I noticed that it contains "Pure grain alcohol."  I'm so confused about alcohols and what is and is not okay.  Because it is "pure" grain alcohol, does that make it gluten free and safe? I'd love to start giving this to them, but the point is to make them better not worse! Thank you!
  9. Dish Soap

    Just an FYI - Seventh Generation dish soap actually says Gluten Free right on the bottle.
  10. Kitchen size is a huge problem for me too, which is why I've never seriously considered one.  But with all the Black Friday/Cyber Monday deals coming up, I'm wondering if I should make the leap and get creative with kichen space!
  11. BlessedMommy - you have been extraordinarily helpful. Thank you!  Which model of Kitchenaid do you have?  And capacity?
  12. Now that I've bombarded you with questions about avoiding rice flours, it's clear to me that I need to start making our own gluten free, rice free, corn free breads!  My first thought was "bread machine" but  the more I read the more I get the sense that a Kitchenaid would be a better investment than a bread machine for gluten free bread.  I do have experience with making gluten breads (pre-diagnosis) so it dosesn't intimidate me much, especially since it seems as though gluten free breads are actually easier, except for the mixing. Soooo... long explantion for the question - which Kitchenaid mixer do you have?  It looks like the lower priced, widely available ones are the classic and the artisan. If you use the classic, is it powerful enough, as it seems to be the least powerful? And capacity?  It looks like the 4.5 quart is the smallest.  Is that large enough?  Or should I aim for something larger?  (My whole family has celiac, so I won't be making mini-loaves for one person.) Tell me about your Kitchenaid please!
  13. I've tried the wholly wholesome pie crusts and thought they were delicious!  I just bought another package for the Thanksgiving pumpkin pie next week.
  14. I also started a post about rice free pizza crust recipes, but I want to also ask a general question to some of you with more gluten free cooking experience than me. I would like to start moving away from the copious amounts of rice my family is consuming, due to the latest arsenic in rice news. We eat way too much, especially my children.  I'm hoping that maybe there are some good alternatives to rice flour in baking? Anyone have any suggestions, or are also trying to steer away from rice flour? I did a quick search and saw sorghum and amaranth flour mentioned. Anyone try these? Can you simply swap them out in a recipe asking for rice flour? I've done some baking with almond flour, which is delicious, but very expensive and not great for all kinds of baking, I don't believe. Anyone?
  15. All of the talk of arsenic in rice is really starting to worry me, since both of my small children also have celiac. Between the pastas, the flours, and just plain old rice, we live on rice!  I really need to start reducing the amount we eat, and since pizza is their favorite food, I thought I would start out by trying to find a crust recipe (or mix) that doesn't use rice flour or corn because I am also corn sensitive.  Does anyone have such a recipe? And in general, what are the other good sort of all purpose gluten free flours out there, that can take the place of rice flour?  Preferably something not terribly expensive.  Sorghum?  I'm not too familiar with it.