Subscribe to FREE Celiac.com email alerts
mistresninos added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTesting QuestionWe are still in our testing phase. The specialist claimed the paed did not order the correct testing for Celiac.
Anyway, we are going back to a different specialist but at the same office on Wednesday so I've been doing some more research because we still have no difinitive answer (the lab has not returned the results of the last tests).
I ran across this article http://cpmcnet.columbia.edu/dept/gi/celiac.html . In it the author says, "There is no test yet which is definitively diagnostic of celiac disease. Relief of symptoms or reversion of an abnormal intestinal biopsy to normal on a gluten-free diet is the most convincing evidence that an individual has celiac disease or gluten sensitivity."
Is this simply old information? I am wondering because we have placed our son on a gluten-free diet and he has improved nearly 100%. Whenever we waver from that diet in any way, even to wheat-free foods, his symptoms return.
Thanks so much for any information on this.
- 3 replies
- 664 views
mistresninos added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsOne More QuestionThanks, Julie, for your response to my earlier questions. I thought of one more:
One of his symptoms is stunted growth. Basically he appears to have stopped growing around 12 mos of age. If he does have celiac will this be resolved? In other words, will he return to his normal growth curve or will he remain short the rest of his life?
Stan & Sara Heer
- 2 replies
- 995 views
mistresninos added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsJust Starting The TestsOur 22 mos son had a celiac panel (and several others) done last week. We are currently awaiting the results of all these tests. We had a couple of questions.
1) Last night we were watching Mystery Diagnosis on DHC and they had a little boy with Celiac on there. One of the things the mom said he did as a 1yo was to stuff his mouth full of food but not swallow it. Is this a typical thing for a baby with celiac? We were surprised when she said that because our son does that. In fact we have to check his mouth before he goes to sleep because he wants to sleep with food in his mouth.
2) I was reading up on some of the testing and was wondering if the endoscopic intestinal biopsy is always done for confirmation?
3) We have another son who has a birth defect that is possibly genetic (they are still studying to find out the cause, no one currently knows what the cause is). Is it common for people with Celiac Disease to come from families who have several people with birth defects or genetic disorders? Or is this just our fluke?
Stan & Sara Heer
- 1 reply
- 630 views