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NYCEthan

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About NYCEthan

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  1. Audrey Hepburn, I have been told, had Celiac.
  2. Any doc can run an IgA test - but you might want to see an infectious disease specialist. You should be aware that if you are IgA deficient, you stand a much higher chance of having celiac, but the standard blood test for celiac will likely be a false negative. I am IgA deficient and got a false neg celiac test. I started a gluten-free diet. It was almsot a complete cure, so my docs all agreed there was little sense doing many more tests. In terms of the IgA deficiency, I try to be careful when I get a cold so that those viral things do not turn into bacterial upper respiratory infections since my body can't fight that kind of thing well. When a cold comes, i lay on the decongestants so I don't get too much gunk hanging out in my lungs - which in an IgA deficient person is an invitation for bacterial problems. Dayquil and Nyquil are a godsend. That and I always travel with antibiotics just in case. Add the gluten-free diet to the mix and I seem to be able to function at about 95%, not too bad given that IgA deficiency and celiac aren't a good set of cards to start out with!
  3. It's a shame your doc isn't aware that IgA deficient people usually test negative for for celiac - the blood test only works on people who produce IgA. There are studies IgA deficient people are 10 times more likely to have celiac - the two are somehow related, so it's no surprise. You should do some research on IgA deficiency - it will help (as it did for me) explain why you're entire life you've probably had a harder time than most people shaking off upper respiratory infections and perhaps gi infections (e.g. ghiardia). Your body does not make a very common immune cell - the first line of defense - IgA. It lines the mucous membranes of most people and helps shed off pathogens. Like me, your body does not make any which is why its easier for us to get certain infections. It also means, and your doctor should know, that the standard blood test for celiac is meaningless.
  4. I find that since I came down with Celiac, alcohol causes me to have nightsweats. If I have just one cocktail, I sweat terribly, mostly from my neck. If I don't drink, they are very minor.