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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Deekle

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  • Birthday 02/04/1981

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  • Location Washington, IL
  1. So....endocscopy and colonoscopy went well:  Pathology report will take a week or so, but the doc's initial findings are:   drum roll........   Celiac Disease (not a big surprise there) and also Eosinophilic Esophagitis  (That was a new one on me)
  2. Celiac Log:  Day 6 of gluten challenge   I have discovered some wonderful new symptoms that I'd never had before.  Most of my symptoms were GI related in the past, with some "brain fog" thrown in.  During this challenge though, I have had the worst acid reflux combined with just crazy lightheadness/vertigo.  It's not all bad though.  I had the some rolls at Texas Roadhouse today for my daily gluten allotment.  I didn't realize how much I'd missed those.   Score:  Gluten 2  Me 0
  3. Need Help

    As has been stated, this is a celiac site, and celiac in itself would not preclude us from eating dairy, yeast or tomatoes.  That said, all celiacs are experienced with having to tinker with their diet.  You're right.  A lot of that gluten free stuff tastes like garbage!  That said, there are also a lot of good things out there.  If I had to eliminate yeast, tomatoes and dairy, I would look into asian or south american cuisine if I were going out to eat.  There should be some good options.  Obviously a good steakhouse is still in as well.  Pasta is going to be difficult as most will have either dairy or tomato included.    At home...I'd invest in a rice cooker.  You can make some amazing stir-fry that is going to be free of your allergens and gluten free as well.  Throw some seasoned chicken in with the stir-fry veggies for a great meal.
  4. A sandwich before a biopsy or serology test is not going to work to diagnose celiac disease.   Celiac is caused by autoantibodies attacking the mucosa of your gut.  Antibodies are part of the adaptive immune system and take time to really ramp up.  In order to have detectable levels, you should be eating gluten for around 6 weeks for serology and about 2 weeks for a biopsy.   The DQB1 info is kind of useless without knowing which alleles you fall under.  (DQB1*0201, *0202 and *0302 are linked with celiac disease and correspond to HLA-DQ2 and HLA-DQ8)  at least 95% of celiacs will beither DQ2 or DQ8.   The gold standard of celiac diagnosis is a biopsy.   Kareng likes to link to this site and it has a lot of useful information.  You might want to take a look.  It will explain a lot of info about how diagnosis works.
  5. Fritz, no problem. The reason for a gluten challenge is simple: No gluten = no autoantibodies attacking your guts. Since I had been gluten free for most of a year, my gut had time to heal. Now I have to jack it up again so that the biopsy will show accurate results (namely: flattening/atrophy of the villi). The why is more complicated. I already had a positive serology test, so we pretty much know I have celiac. Problem is that I may have other issues (maybe crohns or ulcerative colitis). I just want to have the most accurate diagnosis possible so that I know what complications I'm at risk for and how to manage things.
  6. you said it just right!  I mentioned it more for AfterAll to make sure that it was clear that anabolic exercise is not a substitute for cardio.
  7.   This is a good suggestion to remove the "baby weight", though you may not see much of a difference on the scale.  Anabolic exercise will build muscle mass.  Muscle mass requires a LOT of energy to make, and a lot of energy to maintain.  The scale may not budge much because muscle is heavier by volume than adipose tissue (fat).  You'll notice the difference though because you'll be packing the same weight into a smaller volume.  That said, I wouldn't cut out the cardio excercise.  If your cholesterol is high (specifically the LDL), then its a good idea to keep up a good cardio regimen.
  8. Celiac Log: Day 1 of gluten challenge.    I ate a positively delightful bavarian cream filled donut last night at 7:00PM.  I expected to experience symptoms by 11:00PM as it usually takes the gremlins about 4 hours to strike in my experience.  Naturally the roiling stomach cramps and unmentionables came on at 2:00AM instead.  (P.S.  Sitting on the can until your feet go to sleep from sciatic compression really sucks.)  Score:  Gluten: 1  Me: 0
  9. Also, Wal-Mart has many more options than you see on the shelf.  I have several celiac friends who shop online at  You get free site-to-store shipping.
  10.   If I wanted to go back in, then yes.  The navy paid for my undergrad and they only do one or the other unless I went in for another tour.  My wife would not like that very much.
  11. I found an old post about the Garden-Lite souffle's, but they've got some new stuff that is VERY good.   If you haven't tried them, I highly recommend the Gluten Free Blueberry and Chocolate Zuchinni muffins.  I was able to get them from Costco (though they don't always have them).  They come frozen.  Pop them in the microwave for 35 seconds and they're good to go.   My first impression was "tastes too good to be gluten free".  I still think they must have used some kind of witchcraft to make them taste so good.
  12.   Don't you dare tell anyone this....   but it's the one job on this planet that I would do for free.  If word gets out I'll never be able to pay back the 50 grand a year they charge me for tuition.
  13. No offense taken at all.   In fact, I completely understand.  I had IBS thrown at me for 8 years, so I know what it's like to be misdiagnosed.  It's an interesting'd think a GI would be able  to nail the diagnosis  pretty easily.  I would immagine its a failure in education coupled with a bit of overexposure from the gluten-free fad diet crowd.   I hope I didn't come across as being a know-it-all.  I mentioned med school because it's such a huge part of my life and because it played such a huge role in me figuring out what was going on with my innards.  I very much respect folks who take the time to research their illness.  I wish more people would do so.  If there's one thing I've learned in school, it's that NO ONE can know it all.  There's just too much information.  I can (and have) memorize ten thousand different facts about the human body and still have ten million more that are still out there to know.    Oh yeah...and I'm the only member of my med school class who didn't join the AMA, if that says anything...   P.S.  I also spent 5 years in the United States Navy.  I earned my thick skin there.  Feel free to bust my chops all you want.  I can take it.
  14. First, I wrote colonoscopy, but the others are correct, I should have said endoscopy. (Colonoscopy goes through the anus and you'd have to traverse the entire large intestine and most of the small to biopsy the duodenum. Endoscopy through the mouth and stomach to the duodenum is a much shorter path, so you wouldn't have to go through 20+ feet of small intestine. I don't think they make endoscopes that long.) The study I mentioned showed that a large percentage of biopsy confirmed Celiac pts (those already confirmed to have villous atrophy) still had villous atrophy years later. So they didn't heal completely. A certain percentage of celiacs are refractory, meaning even a gluten free diet doesn't correct their disease. 43% sounds awefully high to me though. I would expect that many of these were cases of cheating, cross contamination or improper label reading. Still, it was surprising to me that such a large percentage in the study still had signs of villous atrophy on follow up.
  15. They're doing both endo and colo. I've got some symptoms which leave Crohns and Ulcerative colitis on the table.