Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

1 Follower

About 124chicksinger

  • Rank
    Community Member
  • Birthday 12/04/1959

Profile Information

  • Gender Female
  • Interests Crochet, knitting; teaching both, singing karaoke.
  1. Just bought this.  Ate it today. Best gluten-free pasta I've tried, and I've tried many.  This is the new blue box.  Some reviews online are for the yellow box, and some people are angry they changed the formula - but i am writing to let you know, if you want a gluten-free pasta that tastes pretty darned "real" and doesn't have a funky corn smell or too chewy rice chew or mushy mouth feel, this is for you.  I enjoyed it so much, I literally had tears in my eyes.
  2. Hi folks.  I haven't been lurking around here as much since going gluten-free in March.  What I notice now is the wheat cravings have pretty much stayed gone.    While I initially lost weight, I've put 5 pounds back, and that is ok because over all I eat gluten-free and am not on any other restrictions, and other than that 5 pounds weight is stable.   My nails are longer and stronger--and I've started polishing them and primping them--new for me.  My hair fall-out seems to be less.  Unless my eyes deceive me, some of the grey hair is turning light brown.  The dry patches on both sides of my nose are gone, as is the patch on the right side of my bottom lip.   I'm diabetic and my A1C and thyroid values months ago was good.  I'm going to have a routine liver enzymes check soon and It will be the first time since March going gluten-free, and I'm curious to see if the enzymes have come down at all (they said fatty liver for years....maybe has been gluten?)   I rarely have diarrhea any more.  I have NO MORE what felt like gallbladder pain.  The purpura on my feet/ankles, hands/forearms, has cleared up.  It isn't on my feet at all, but once in a while I get some dots on my wrists.     I have been battling frozen shoulder on the left all year.  I chose not to do physical therapy, but rather exercise it myself.  I have about 75% mobility back, and no pain.  A lot of clicking during exercises.  Having had this on the right side 10 years ago, I think I'm getting this right, and getting it under control.   Other than its a bit harder to eat out, or get take out and prepared foods, I don't mind this one bit.  I wish I'd gone gluten-free years ago.  While I am not diagnosed as celiac, both blood and scopes negative, going gluten-free has made me feel extremely better than I have for years.  When people ask me if I'm still avoiding gluten, and I say yes, they ask if I think it makes a difference.  And I answer, well, I feel better, I'm in less digestive stress, my skin is clearer, and if that means nothing at all, I spend a lot less time running to the toilet.  Now, perhaps this is "all in my head" but I certainly could not have conjured up daily diarrhea - so in the absence of that - I'd say going gluten-free is working for me.
  3.  I know what you mean.  After my scopes, it took 6 days to have a BM.  After fits and starts with getting "regular" - avoiding the gluten has made me regular.  If I don't go daily, with a solid BM, at least I'm going every other day.  I still have occasional D, but not nearly like it used to be.   I have also been able to maintain my weight between 163 and 167, depending on the day, the time of day, etc. when weighed, but I'm not following a weight loss plan, and I have begun to eat some gluten-free sweets (let me say, Tate's gluten-free choc. chip cookies are the bomb).  I am on vacation this week, and after its over, I plan to eat "better" again.  2 years ago, I weighed 200 lbs.   After about 3 months of avoiding sweets, except the occasional ice cream (and I really don't like ice cream much) I missed the crunch of a baked good, especially muffins.  I bought Bob's gluten-free corn bread mix, and that was doing it for me.  My husband brought home Udi's bagels, and a brand of gluten-free bread called All But Gluten, and I have to say, I do enjoy eating a hard boiled egg on toast again!   Anyhow, avoiding the gluten has "normalized" my digestion and my BMs, so I know where you are coming from.  
  4. Coping With Hives

    Might you have a histamine problem?  I am no expert, but there are people here who have food/histamine reactions, and hives would be one of the reactions.  I saw an allergist earlier this year.  He said he would like to put me on an antihistamine program, but this was just before I had the scopes done and didn't want to add anything else into my system.  Perhaps you could look into histamine allergy, and foods that are high in histamine.  Good luck. I hope you find an answer.
  5. While I agree, these are better than the "real" Snyder's pretzels (especially the sticks), I found that they sit in my stomach, and I think form a type of "spackle" there.  When I first ate them I was in pretzel bliss.  Maybe by the 3rd time, I realized they bothered my stomach.  After finishing off about 1/2 of the 2nd bag over a few weeks, I realized they really are the cause of my "tight" feeling belly.  I don't eat them now.  I thought perhaps it was all the starch; never thought about soy anything.   Oh, and I miss tofu~!
  6. Is This A Huge Issue?

    For people who are surprised by a diagnosis in blood work - hey, it happens - maybe that they have had no symptoms (tho its odd a physician would perform celiac tests without reason) perhaps having a biopsied diagnosis would convince them to be"compliant" with the diet.  Generally tho, hasn't a person been experiencing symptoms, which prompt the blood work in the first place?   There are people here on this forum who are confirmed and still want to eat the gluten.  Go figure.   I have a negative diagnosis, and but for the now occasional diner food that may get cooked on a cross-contaminated griddle, I'm self-regulated "compliant."  Either the connection is "all in my head" that I feel better, or I am one of the gluten sensitive or gluten intolerant.  I have to admit tho, complying isn't as difficult as I thought it would be.  I don't miss pasta or pizza but of course its a whole lot easier to order a pizza or get takeout than it is to cook a "whole" foods gluten free meal.  I do miss the convenience, I don't miss the intestinal distress.   As to the kids, gene testing could answer that.   Not everyone needs to get sedated and have invasive procedures.   The "experts" are saying if certain criteria is met, the biopsy isn't necessary.  As more information and research is done on gluten, medical opinions are changing.  Apparently, it used to be standard procedure to have 3 biopsies.  Google.
  7. Is This A Huge Issue?

    I am a novice to gluten-free. I was tested both blood and scopes and both were negative, tho I think the GI didn't do enough biopsies of the small intestine. He said I was inflamed from end to end, had diverticulosis and suggested MORE grains, and opined the esophageal inflammation was heartburn/gerd, which I rarely had.   I decided to eliminate gluten, with very good results overall, and also like others have written throughout the forum, different/more symptoms occurred and abated, which for myself I could have easily chalked up to gluten, or explained away (ate bad food, caught a virus, etc.).     If your blood work states you have celiac, you have it.  That is my opinion, and shared by others and in medical print.  At that point, if you want to go have the biopsy, I think that is between a person and his/her doctor.  It advises how much damage is done, and if there are other components going on. like H. Pylori, and can eliminate other diseases, like Chrons, just to name one.   In some parts of the world, having an official biopsied diagnosis is somehow financially beneficial as the foods are medically necessary, and also, if one is a student, to have the school somehow comply with the gluten-free diet.  These are issues I have sparsely read about, and I do not know anyone who has needed this, however there may be some posters here who can advise on these two issues, if not other "benefits" of having the biopsy.   In the past 10 years, celiac disease has come much more to the forefront. Now, the medical field knows how much more prevalent this is, and people at large are becoming aware.  The food industry has stepped up because the disease is now known to be very widespread.  Strides are made more often in diagnosis and categorizing, and the "criteria" for diagnosis, for some "experts" definitively ends with positive blood work and said experts feel that going further, to know what is already known/diagnosed, is just invasive, expensive, and perhaps risky because of the sedation involved.   Were I to have had a positive blood test, I may have stopped there.  The fact is that my blood work results came a day or two before the scopings had already been scheduled to be done.  Frankly, I was having the colonoscopy anyhow, so the upper scoping was a "bonus" because I was having so many intestinal issues.   Meanwhile, I've been gluten-free since March 5, 2014.  The constipation and diahhrea are now minimal.  I've lost a few pounds.  I generally feel better tho I have had a few ups and downs, an intestinal flu with fever, and recurring purpura.  While I did not toss out the toaster or pots or utensils, and will now go to the diner and have eggs and potatoes that have likely been cooked on a grill where pancakes may have been cooked earlier, I feel better.  I don't see myself turning back to eating gluten, and most of the time eat my own home-cooked food.   Having a biopsy done is between a patient and his/her doctor, and depends on how ill the person is, and what they want to know as far as the internal damage that exists, and other conditions that can be ruled out, or in.  Is there a right or wrong on this? I don't think so.  
  8. Thank you Cycling Lady.  In eliminating gluten, in real life, I feel very alone.  My daughter is sympathetic and my husband goes along with it, but I cannot stop (nor would I) them from ordering the occasional pizza or sub.  I have taken this on for myself, and do much more home cooking than ever, so I can control the gluten. In a small way, they benefit as well since they are getting less gluten.  It has been an adjustment for all of us, for sure.     Again, thank you for your comment.  It does make me feel supported in this, even tho it is an exercise in trying to feel better, and not born of a diagnosis.
  9. Since going gluten free, despite negative biopsy and bloodwork, I think that overall I am feeling ... better.  I have had some health blips since stopping gluten, and I think sometimes it would be easiest to blame having inadvertently eaten some gluten.  But, I can't blame gluten for a stomach flu with 101 fever!     I am by and large, feeling better.  Constipation has gradually disappeared, and the D is much less.  This is a great change.  I have lost and kept off 8 pounds.  I am interested to see if this has any effects on thyroid, liver enzymes and the A1C test at my next appointment.     Unfortunately, I have some vasculitis happening, which I wrote about in an earlier post, which can have a gastric component.  The purpura rashes are waxing and waning, but are less severe.    Lastly, though I have been pretty good at avoiding gluten, last week I mistook couscous salad for quinoa salad.  I only recently started eating quinoa, and had never before eaten couscous.  It looked the same to me (I did not cook it).   When I realized my error, I thought this will be an unintentional test for whether my avoiding gluten is a panacea or a placebo.  I wound up with explosive D.  I still intend at some point to eat a very gluten-filled meal as the true test, but honestly, the thought of pizza, pasta, sub, etc. isn't appealing, so I don't know when and what that gluten-filled meal will be.    So for what it is worth, this is my update.    
  10. There are plenty of naturally gluten, yeast, wheat and soya free foods/meals.  Soya isn't found in a lot of things; gluten and wheat you know how to look out for, and yeast is in the breadstuffs.  Assuming you cook, there are many things to eat.  Much of the "recipe" part of the more involved suggestions below is just a conglomeration of the normal ingredients.     Eggs and bacon. Eggs/homefries. Steak and eggs. Omelets.  Grits.  Fruit salad.  Check the gluten-free cereal labels.   Hamburger or steak on a plate with corn on the cob or cole slaw. Corned beef/cabbage/carrots/potatoes - 1 pot boiled meal.   Porkchops/saurkraut - 1 pot meal.  Served with homefries or boiled potatos. Chili over baked potatoes. Stuffed cabbages with mashed potatoes or corn. Baked sweet potatoe with butter, cinnamon.  Or toppings. Chicken stew (boneless breast, stringbeans, carrots, onions, tomatoes). Veal and peppers in crushed tomatoes over baked potato. Beef cubes, potatos, carrots, celery, onions, string beans - "beef stew" thickened with corn starch.   Chicken soup w/carrots, onions, celery, parsnip (omg, the parsnip is so delicious). Pea soup, bean soup - any kind of soup you can imagine. Chicken cacciatore (tomatoes, mushrooms, onions, peppers) served over rice. Stuffed peppers (ground beef/rice) served with mashed potatoes or mixed veggies. Beef stroganoff - beef cubes, beef broth, sour cream - served over zucchini "ribbons"  Baked/broiled fish with rice/potatoes vegetables. Salads with meats/cheeses. Quinoia salad with all sorts of chopped veggies. Shrimp and tomatoes, shrimp cocktail.   These are some ideas that I hope are helpful.
  11. Interestingly, I am not craving pasta, and I was a pasta fiend.   I did at the 4 week mark of eating gluten-free buy Barilla gluten-free pasta and my feeling on it now is "meh".  It was ok.  I actually preferred spaghetti squash over the gluten-free pasta.  I definitely don't crave gluten-free pasta~!  Perhaps you'd do better by using spaghetti squash also, or zucchini ribbons, and skip the pasta altogether.   I tried the Snyder's gluten-free pretzel sticks, and I think they are superior in crunch and taste to their regular, however, I also found that eating them doesn't agree with me.  Basically, they are made of starch - and I felt like they sat in my stomach like wall spackle and I didn't feel well afterwards.  Live and learn.     The gluten-free foods are hybrids of substitutes, and some of them good, made from good ingredients, and some of them a really bad choice.  It pays to keep a food diary.
  12. Well I didn't know that allergy testing as you write is notoriously not very accurate and not suggested to see what "sticks."  Is it junk science?  Do you have a link to it being useless?   I went for myself as kind of a puzzle piece trying to put it all together with the issues I was having, and I do get hives, and rashes, and red feet, and tingly lips.  I was glad I went for the testing and saw what "stuck".     He explained to me the different types of allergies and how they manifest, as gastric, skin reactions, anaphalactic, etc.  I found it worthwhile for myself.  I'll never suggest it again, however.  My mistake.  
  13. The symptoms are so diverse and varied and not everyone suffers from them all (I would imagine that to be so).  Also, our levels of tolerance vary.  I think symptom abatement, not healing of damage, can be subjective.  What I may be able to tolerate, someone else may not.  All I know is, with my official diagnosis of not-celiac - I feel better overall without the gluten, despite some unrelated illness, and it has been "just" 7 1/2 weeks.
  14. Awww, I'm so glad you finally have an answer for your daughter and her healing can begin in earnest.  Hugs.
  15. Have you tried the skin prick food allergy testing?  Its non-invasive and may shed further light.   I tested positive for rice, barley and oats, but not wheat, and also have negative celiac diag.  While voiding gluten, I'm also trying hard to limit my rice intake.  Had I not seen the allergist, I'd never have known it could be an issue.