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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About Fenrir

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  • Birthday May 05

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  1. My TTG was very weakly positive, Deamintated tests were off the charts positive and I had Marsh grade 3b on biopsy. TTG is not the best test, more than likely your biopsy is going to be positive.
  2. I have had luck at Perkins and Applebees. I know that many would say not to eat at these places but I have educated the two that I go two and they will actually clean the area of the grill before cooking on it now and the Fiesta Lime chicken is otherwise gluten free and the pork chops with salt and pepper is OK at Perkins (if you can get them to clean the grill). I have also liked going to Chipotle. Papa Murphy's gluten free pizza at my location is safe as they use a separate station to make the pizza, though you are limited to veggies and pepperoni. Not a restaurant, but Burning Brothers Brewery is 100% gluten free. You go to their brewery/taproom they don't let gluten of any source into their facility. You can sit down and have a beer, cupcake, chips...ect and it's all great and gluten-free. Plus the owner of the brewery has celiac disease so he knows what gluten-free for celiacs is.
  3. Mexican?

    Yeah, I eat at Chipotle for my mexican fix. Not quite the same as a traditional place but it works and it is good. However, care for CC does vary from location to location. I've been to some Chipotle's that will go into great detailed care to avoid CC and others where the people seem completely unaware of the procedures needed.
  4. Mexican?

    The problem I have found with most Mexican places is that they are not really aware of the problem people can have with gluten. They do have many things at most Mexican places that are naturally gluten free but because there is no care for CC you can't eat there. At most places you should be able to eat hard shell tacos, but you don't know if the spices have flour in them. You should be able to eat the chips but you don't know what else is fried in the same oil......ect. It would actually be fairly easy to make the places OK for Celiacs if basic care for CC was taken. The issue is that a lot of the places here are not fluent English speaking or just simply don't even know what I'm talking about.
  5. Struggling...

    Namaste sells big bags of gluten free flour at Sam's Club or Costco pretty cheap (for gluten free stuff) and they have a really good recipe for brownies on their website. They are my go to baked sweets now days.
  6. No, is should not be any different for kids. One thing in a face of several others shouldn't exclude a DX. Has nothing do with being a kid or not.
  7. Great to hear! Also, now that you know gluten is a problem you may actually see an improvement in your depression and anxiety as a lot of diagnosed celiacs will improve in both areas when they go gluten free. I know my anxiety has improved a ton since going gluten free.
  8. looks to me like the normal range is 0-19, her result is 4. the "i" looks like a product of copy and pasting from a webpage.
  9. If you were gluten free for three months these tests are almost useless, unfortunately. Those tests are pretty much negative.
  10. Struggling...

    It took me about 6 months to get over it. Now, almost a year into it, I'm pretty well adjusted to it and it really doesn't bother me to have to eat my gluten free stuff when people are having pizza or other favorites from the old days. Of course, I've gotten a lot better a cooking as well, which helps.
  11. Before I was diagnosed I had chronic joint/tendon issues. There were times the tendons in my knees were so inflamed that I could literally not get out of my car. I was limping around all the time, it was pretty horrible. Luckily, after about a month of being gluten free that probably went away for the most part. Not sure if gluten is the cause of your problems but you should certainly proceed as suggested above
  12. There should be a comprehensive metabolic panel that is ordered. It should cover all the micronutrients, vitamins and minerals. Thyroid and liver testing as well, because Celiac can do a number on both sometimes. My Liver enzymes were elevated before I went gluten free. Also, people can get anemic as well so a CBC should be ordered. If anything comes back abnormal they should be monitored and possible nutrition supplementation could be ordered. My Vitamin D was about 5 before going gluten free so I have been taking a pretty high dose of that.
  13. Also, I don't know where you live but if the Twin Cities in MN is closer than Chicago, Minnesota Gastroenterology (MNGI) is a very good place to go as well. They DX'd me very fast and also have several Celiac patients that they monitor and they are very educated on Celiac as well.
  14. Blood work tends to be extremely sensitive, so like others said a positive is 98-100% chance that you have celiac. One thing I would like to mention is that it would be beneficial to see a GI specialist or another one. Also, may be worth getting the deaminated tests done. For me, my TTG was weak positive (which is still 98-100% chance) but my deaminated tests were very high and later on the biopsy put me at Marsh Grade 3b. Any doc worth his/her salt will DX someone based on several signs symptoms and test results and not exclude a DX because of one unexpected test result. So, if he's having Celiac symptoms and a positive TTG that should be enough to know it's Celiac. The doctor should have suggested doing a 14 day gluten free trial and see how that goes. I have no doubt that the trial would have result in some relief of symptoms which would be another pointer that it is Celiac.
  15. Yeah, no matter what the tests or Dr. says if you feel better without gluten, then do it!