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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

eliana

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  1. Thanks so much for your help guys. It confirms what I have been saying all along. I am going to go get some pediasure today. I dont think she will drink it but it is worth a try I guess. Is the vanilla flavor gluten free? I thought I read somewhere it wasnt. I was thinking that may be the one she would actually drink...she is so adamant when she doesnt want her bottles or cup! I really think this is the flu. She has had fevers and all that. But it sure doesnt help in the weight department. I talked to someone from WIC who is going to be coming to the house with a scale once a week to monitor her weight. Yesterday her dietician asked if anyone's asked us yet to do hospitalization to get some IV stuff in her. Not yet, but I am preparing myself. We are still discussing the biopsy. we have an appointment with a new doctor on Feb. 16.
  2. Thanks guys for your responses. Well we have had an interesting turn of events over the weekend. It turns out the IGg and IGa were extremely high (almost triple the maximum normal numbers) but the EMA (most specific for celiac) was negative. I had not been aware of this. So maybe we have her gluten-free for no reason. She has lost 8 oz. since being gluten-free(2 1/2 weeks) and is only 17 pounds so thats alot. The doc says there is def a problem with her most likely a GI problem, but may not be celiac. SO I am back to square one. She goes to see yet another GI in a month (wish it could be sooner). Right now she has the flu and we cant get a bottle down her to save our lives. I think she is done with it anyway (15 months) but will not take a cup of milk (soy or lactose free). She used to take bottles of soy milk really well. We are trying everything to no avail. They are pushing the endoscopy hard. I am almost thinking we are going to have to do it. What would you do if it was your child? I dont want to put her through anything else she has already had so many tests. She has to have one now for cystic fibrosis, and then I guess we will see what to do next. One other thing, I am 35 weeks pregnant and also have a 3 y/o! NO stress at all!
  3. Exactly what were they testing for? Did they do IGg and IGa, and EMA? If so those numbers are pretty low for being celiac. That is what my daughter had done and her numbers were 131, 133, and negative. Thats the normal celiac panel as far as I know. Did your doctor mention doing an endoscopy? I am kind of in the same boat as far as not really understanding. My 15 month old daughter weighs 17 pounds 14 oz. as of today and they think she may have celiac but they are really pushing the endoscopy which makes me quite nervous. She is so little and frail and has been through so much. It has been 2 1/2 weeks since we got the results back stating she was positive for celiac and started the gluten free diet. There is definately something worng, but dont know if it is celiac or something else. She has a test for cystic fibrosis coming up. I guess we will wait on results from that before we decide on the endoscopy. We are also getting a second opinion. This is all so hard and taxing on you. May God bless you.
  4. Pedialyte is gluten free. It is on the celiac.com website under "mainstream products that are gluten free...medications and medicines." My little girl (15 mos) has the flu too. We have been giving it to her.
  5. Hello, as far as I know the soy milk we are giving her is gluten free. I know that rice and soy dream are though. I will call the company(SunSoy) today. I dont know about Pediasure. She wont drink soy formula...we just tried yesterday. She is very particular about her bottles and sometimes we have to sneak it in in her sleep. It is either that or she doesnt drink anything except water or maybe a little juice. This has been going on since 7 months, when I had to stop nursing. She was throwing up everything last night. We finally got some Pedialyte in her and she hasnt thrown up yet today. I think its just a flu bug (phew). She goes in this morning to get her weight checked due to the throwing up and how little she is to begin with. Last night we gave her Pedialyte in her botlle nad now she will not even drink soy milk out of it. Uhoh. Anyway I think the milk even lactose free does bother her but I am willing to try anything at this point. Maybe Pediasure will work. I will ask her doctor today. About the biopsy we are still discussing it. One of her docs wants to do the test for cystic fibrosis. That really kind of freaks me out. Well I gotta go, she needs me. Thanks for all your help and God bless. Becca
  6. Hello. Thanks so much for replying, I really didnt think anyone was going to. Anyway, Eliana had blood work done-she had the IGg which was 131, the IGa which was 133 and the EMA came back negative. The doctor who ordered the tests wants to do the sweat test for cystic fibrosis, talk about scary. I am dreading having to do the biopsy. I pretty much am scared that it will come back negative, and then what. There is def something wrong with her though. Today she has been throwing up all day. Last time we had her at the doctor she had lost 5 oz. in 2 weeks-alot for her-especially to me. Ever since we got the bloodwork back we have had her on lactose free milk (before she was on soy). She has been constipated and then with the throwing up we decided to put her back on soy. I am so worried abuot her, she will not eat or drink anything and seems to be getting worse. I dont know what to do. My husband and I are discussing the biopsy but it is so scary to me. How old was your son?
  7. Hello, my name is Becca. I have a little girl, 15 months old who has had trouble since she was about 4 mos old with weight gain. Now at 15 months, she weighs 18 pounds, 1 ounce and is 30 inches tall. She is generally happy but looks so little and frail. Two weeks ago we got results back from bloodwork and she was positive. We met with the GI and he suggested biopsy, we denied because she is so little and I just cant bring myself to do it. It just makes me want to cry to even think of it. We decided to do gluten-free for 2-3 months and see where her weight is. Well on first 2 weeks of diet she dropped 5 oz. I know kids weights fluctuate, but still I am concerned. If anyone has been through this please help. We have had such a hard year, I thought we were starting to arrive at an answer, she has been much happier and calmer since gluten-free but who knows.
  8. Hello, my name is Becca. I have a little girl, 15 months old who has had trouble since she was about 4 mos old with weight gain. Now at 15 months, she weighs 18 pounds, 1 ounce and is 30 inches tall. She is generally happy but looks so little and frail. Two weeks ago we got results back from bloodwork and she was positive. We met with the GI and he suggested biopsy, we denied because she is so little and I just cant bring myself to do it. It just makes me want to cry to even think of it. We decided to do gluten-free for 2-3 months and see where her weight is. Well on first 2 weeks of diet she dropped 5 oz. I know kids weights fluctuate, but still I am concerned. If anyone has been through this please help.