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About Jmg

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  1. Haven't been on for a little while but it's great to hear you're doing so well. Hope your remaining symptoms are also on the way out as you keep up the new diet. Good on'ya as they say down your way...
  2. Hi again For obvious reasons (I'm a bloke) I can't really help with the question and I'm sure you'll get some great advice from others on here, but please see your GP or pop into your local hospital and talk to someone there as well. The gluten challenge is unpleasant for many, but for a few it's really severe. One poster here had a particularly rough experience, think it may be Gemini, but I could be mistaken. Given your breathing issues I think regardless of any other issues you need to seek medical attention and perhaps ask your GP / GI whether testing can be brought forward or a diagnosis made without undergoing the full challenge. It's good to get a diagnosis and there's value in doing so, but only in service of your ongoing health! All the best to you, hope your feeling better soon. Matt
  3. Hi VG and welcome It's not unusual for people to react differently to gluten if they reintroduce it for a challenge. It also seems to often settle down after a few days as the body reacclimatises to gluten exposure. Keep a food diary and note what you eat, when and how you feel is my suggestion. It helped during my challenge and reading it after helped me with the diet changes I needed to make. Maybe eat the bread late on, may make it easier to function during the day?
  4. For me, after 3 days I noticed an improvement, but it was by no means magic disappearance of all symptoms. You should be thinking in months for that. Where I think your GP is correct is that after 2 weeks you should hopefully see a reaction and you already have. So you know now that celiac or not, you react to gluten. Your next step should be to avoid it completely. That would probably mean no chicken wing, because even if not breaded it may have been in contact with other breaded ones. As GFinDC says above, if your through with testing keep going on the diet. Keep a food diary to track what you eat and how you feel and just listen to your body and see if you can discern any changes / improvements in symptoms over the next days. Also, pay attention to what your eating. If you've removed all gluten you may have removed a lot of the fibre you were eating. That could be the cause of the constipation. Eat as much fresh, unprocessed foods as you can. Vegetables, fruit, salad, meat, eggs. Go easy / avoid dairy if you can. Good luck
  5. Welcome to the forum this is a nice thing for you to do. I think every celiac would wish for a partner as supportive. First, neither you nor he should panic. At nine months in he's hopefully got a lot more healing to do, so more improvement may be around the corner. Second, with just a few months since diagnosis, can you be quite certain that no gluten contamination is taking place? You'd be amazed at how sensitive people can get once they remove it from their diet. It also has nasty habit of reappearing due to wooden spoons or non stick pans or maybe a rogue vitamin pill or supplement... It's in the most bizarre things also, so recheck that food cupbaord and make sure there's no way its getting in via a sauce bottle, crumbs on butter etc. Even kisses can be a carrier Check out this thread for some info: I second the recommendation for this for instance: Once gluten has been eliminated you still need to give the body as good a chance of recovery as possible. Avoiding loads of gluten-free processed foods, esp grains. The first months after diagnosis are a healing time. His body has probably been starved of nutrients, and it may take time to start correcting levels and healing. For me I have a decent multivitamin B supplement, fish oil and a probiotic each morning. I also try and eat pro biotics, making sauerkraut for instance. Omelettes are my breakfast champion now. You can stirfry veggies or meat for a filling and they supply protein and amino acids as well as being really filling. I eat lots of salads, with olive oil and cider vinegar. There's a chance your BF may need to cut out dairy, at least for awhile, it can be rough on the digestive system and he may be intolerant to it as well. I try to avoid it now as much as possible, although I cheat occasionally if ice cream is within reach... A food diary may help track down any further problems or source of contamination. I found a seasoning mix with gluten only by referring to a diary I'd kept of what I'd eaten. Finally, a little more info may be helpful to us in responding. Is his lack of appetite due to not liking gluten-free food? Did it only happen after changing diet? The recovery process isn't usually a consistent upward curve, there are slowdowns and sometimes reversals, but long term it should be good news. If its gluten-free food for instance, then Paleo is naturally gluten free and there are substitutes for nearly any meal on the paleo recipe sites. You could check some of those out. Best of luck!
  6. This had reminded me of this site: where someone is actually testing different beers to find out their gluten content. You can see from the list about halfway down the page how different beers vary. Not many craft beers amongst them though. If the chills persist meanwhile consider a leather jacket...
  7. Hi Nalazoo and welcome! I found your post fascinating. Thanks for posting it, there's a chance it could help someone else trying to put their own jigsaw together at some point in the future. For me, I had yet another 'aha' moment when you mentioned ear wax. I used to produce loads of brown wax, after gluten went it did as well. Until today I never made the connection. So thanks for that. Best of luck with your ongoing quest. I admire your methodical approach! Matt
  8. Hi, welcome, and Bad Kitty for drinking that beer Some beers have a higher gluten content than others. I've seen some say that they could drink a corona for instance which is lower than some. There's no way I'd do this however. There's plenty of gluten-free options available if you want a beer, or go for cider instead which is a better bet imo. Not as an immediate reaction, at least not yet. However gluten did mess around with my heat sensitivity. I used to feel very cold, for years I'd wear 2 pairs of socks, ridiculous amounts of layers of clothing etc. That's one of the odd things which had become a part of me and which went when the diet changed. Hope you're feeling better soon
  9. I don't think a reputable doctor is just going to give you anti emetics, they have a duty to try and find out whats wrong first. You still have the option of doing the gluten challenge. You just need to weigh up the pros and cons and see if it's worth it to you. A positive diagnosis may help you get that endocrinology referral, although there's no guarantees obviously. If you've decided against, that puts the medical establishment out of the picture and you need to fill the gap. You need to act as if you've had a positive diagnosis. That may mean exploring for yourself any further intolerances - you've already mentioned dairy may be an issue - I find it can give me the stomach problems, though not the neuro. A food diary is your friend here, eliminate and then add back. You may want to explore fodmaps also. Then there's the same advice on cross contamination, etc we discussed previously. Finally, some positive steps in healing the gut via probiotics, bone broths paleo diet etc. Have a look on the forum at how newly diagnosed coeliacs are advised to go about the healing process. It takes time but the results are usually good. But do consider a challenge also - because to go through the endoscopy without the biopsy could leave you forever uncertain. Best of luck
  10. Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you. I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related. I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more. Best of luck! Matt
  11. Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least.
  12. It is normal for other intolerances to become apparent once you remove gluten. I don't know why, perhaps as the immune system is free'd from chasing gluten it finds new targets? A lot of coeliacs find they have to cut out dairy as well for example. It's certainly my number one culprit for skin issues. It also can take time for removing gluten to have its full effect, as antibodies will remain in the body for up to 6 months. So the reaction could still be to gluten in a way.
  13. That was my story Rhian and that of many others here no doubt. I spent years on each and every anti-depressant under the sun whilst telling doctors that I thought something was physically wrong. I found out for myself in the end, so don't be afraid to back your own judgment, ultimately you are the world's leading expert on yourself But, whilst the diet change made a massive difference to my mood, it doesn't preclude me from suffering from depression. I think in some ways all those years have made it a part of me. I chose to go back on gluten for testing and it wasn't particularly pleasant. At the end of it I had a negative biopsy, although such was my reaction that the GI told me to avoid gluten for life. So I'm NCGS, or coeliac if I'm in a restaurant and want to eat safely. To me you're like I was, with two choices. Given what your body is telling you, just assume coeliac/NCGS and work even harder on nailing any contamination. See the tips above etc. Maybe try elimination diets with your Dietician's help to see if there's any other diet based intolerance - it does go with Coeliac - I have a problem with dairy for instance, with others its fodmaps. Finally look into gut healing diets - bone broths, probiotics etc. If your super sensitive it could be that you have leaky gut and you could help to repair that with some diet choices which may make you less sensitive. Or you can go to the GP and try and nail down a bona fide diagnosis. That would mean a gluten challenge and you'd need support for the 8-12 weeks of blood testing and possible endoscopy. This board would be a good place for that if you choose to go down that route. A good GP or GI consultant makes all the difference there and maybe you could quietly check via colleagues or the web to find someone you can build a good relationship with. I think either of them would be a rational approach and in both cases you'll be taking action to improve your situation, which in itself is a good thing.
  14. I'm not super sensitive so the following may not be of much use! I do suffer from depression however and one thing which can help is taking action, not just the action itself but the feeling that you are making positive steps. So, you could change travel plans to avoid the wheat fields during harvesting and if you cant do that get a dustmask for the car so you can wear it in extreme circumstances. Worked for the farmers! Get a small halogen oven which is just for you, they're great, super quick and cheap and that way you can relax and not worry about cross contamination. For shared kitchens just have your own pan, chopping board and some non wooden utensils for cooking and keep them separate. Massively reduces your contamination chances and reassures you also. For: Make extra big meals and freeze them in individual portions. It takes the same time to make a lot as a little and that will give you some extra time away from the stove! I wouldn't worry about the pizza place unless your stood right under the outlet fan as you were in your bakery episode and the sunlight will also help with your mood. As will exercise, doing something you enjoy and yes, a good diet. You can include foods that boost serotonin levels for instance and make sure you take a good multivitamin. Take some steps where you can and don't worry about things you can't control. Finally, the two posters above are both super experienced and helped me a lot. So do follow their suggestion about the doctor. Best of luck