This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
One person was really stubborn, insisting it wasn't that big a deal.
I asked them if I poured an ounce of gasoline in their bowl of soup, would that be something they'd want to eat.
No! It would make me sick. That's dangerous.
Same with gluten for a celiac. While I might not look sick on the outside, on the inside my intestines are being damaged and my other organs are being affected. Just like drinking a poison. It's just that gluten isn't a poison to everyone, just us lucky few.
Julissa, I get eyerolls. "There she goes again." Comments if I bring my own food. Comments if I don't eat "a little bit won't kill you."
The latest was kind of a trap. Family dinner for a birthday party. There was a pizza/Italian place that plainly stated "none of our products are gluten-free, and we don't guarantee anything." I was asked by family if that was ok, and I said not really, but don't base a decision around me.
Protests of "we really want you to be able to eat, so you pick something!"
So I gave 3 options. (I was travelling to the west coast for this event.)
Nope. None were acceptable!
Ok. That's fine we'll go with your option and I'll call asked to bring my own food.
Then someone said they'd cook at home, big loaves of French bread, pasta, pizza, cake ... And they'd put together something gluten-free for me.
I told them that I sincerely appreciated the offer, but rather than have them learn gluten-free cooking in one day for one meal, I'd bring my own.
What a miserable evening. There was bread and bread crumbs on every surface of this tiny house. Pasta, flour, and more bread.
Constant snide remarks about me and my "picky eating".
I ate my frozen meal, and an orange I brought. My own bottled water.
And that was family ... Stepson, his wife, brother in law, etc.
Last time I'll subject myself to that.
People can't seem to comprehend that this is a disease. Last year I spent time in the cardiac unit at our hospital after a severe gluten exposure and a seizure.
None of us WANT to have to spend hundreds of extra dollars on food to get gluten-free. Not be able to walk into any restaurant or home and just enjoy a meal.this isn't fun.
It isn't easy, and were not doing it to be an inconvenience.
Sorry for the rant, but sometimes people infuriate me.
I'm so sorry this is a struggle.
It's hard to change, and it sounds like your dad likes his bread.
I'm the mom/grandmom in the family, and I'm the only celiac. The nightmares that causes. Daughters in laws and sons in law acting like I do it for attention. Family members planning big gatherings at pizza places and Italian restaurants and getting angry that I don't attend.
Asking me to pick a place, but refusing to go there because they don't like it.
I don't go to many social events these days, because my celiac causes such an issue for everyone else. I have 2-3 restaurants locally that I eat at ... Otherwise unless I personally cook it, I don't eat it.
I've been gluten-free for about a year now. I feel better than I did a year ago. All my issues are not resolved, but I'm 60 ... So I have a lot of damage to overcome. And some things that may not resolved, but that's a different story.
I know that when I feel gluten, I bump up my intake of water. I want to flush my system as quickly as possible. I drink 4 ounces of aloe vera juice. And if I need to sleep, I sleep. Cellular repair happens when we sleep, so I think of it as restorative.
I'm the only celiac in my house. However, I only cook gluten-free. My husband and grandson eat gluten-free with me. I allow a few gluten-free snacks for the child, but they're kept in a bin on the lowest shelf off the pantry. He's old enough to be able to be responsible for clean up. They're mostly chips or cookies. Some microwave things, like pizza rolls.
None of my cutting boards or pots or utensils are used to prepare items with gluten. Cross contamination is easy to happen.
I can't imagine a little kid eating gluten filled goodies running around my house touching things, or me!