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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Galixie

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  1. Kimchi is another food that is gluten and dairy free and has probiotics. There is also sauerkraut. Or miso soup.
  2. From what I understand, gastritis and low stomach acid tend to go hand in hand. Strangely, low stomach acid often has the same symptoms as too much stomach acid. I wonder if the antacids gave you heartburn because they were reducing an already too low amount of acid? Having gastritis is definitely something to keep an eye on. It can put you at a higher risk for stomach cancer.
  3. I went to see my naturopath yesterday about some ongoing gut issues. We are both in agreement that my gut biome is out of whack and that I need to correct it. I think there may be a possibility that I'm also not producing enough stomach acid (which is a pretty common problem with pernicious anemia). I haven't figured out what probiotic to try yet and I've never taken HCL before so I'm not sure where to start with that one either. I asked her if I should have my stomach acid level tested first but she thought it would probably end up being far easier to just trial HCL and see if it helps. The part of the discussion that was kind of interesting was that she thinks I might, someday, get gluten back. The current theory is that I just have leaky gut and, if we manage to fix that, I might be able to eat gluten and dairy again. (I kind of doubt it about the dairy because I have such a strong reaction to that one.) But it would probably be a long way off so, at this point, it's just wishful/hopeful thinking.
  4. Ever since I first heard about cobalt allergies, I've always had the impression that they were kind of tragic. I remember someone from the PAS forum who had that along with pernicious anemia and it just sounded like a horrible death sentence when I heard about it. But that case was kind of extreme because she was already low in B12 and had no possible way of correcting it. Getting back to S_J_L's issue with the supplements; Assuming you don't have a cobalt allergy, you could try foods that are high in B12. The original treatment for pernicious anemia (back in the 1930's) was to eat large quantities of basically raw liver. Or try a supplement with a different formulation. It is possible to be allergic to any component in a supplement. Last year I discovered I was allergic to something in an over the counter supplement, but to this day I have no idea which component. Allergies can develop at any age.
  5. Need to lose

    How long does the meat need to 'rest' before you can refrigerate or freeze it? Someone at work said it's bad to put freshly cooked meat in the fridge, but we were all a little unclear on whether it was bad for the actual meat or because the warm container might warm up surrounding food.
  6. I was listening to someone a few weeks back talking about having a very long lasting rash that didn't go away even though she had a really long list of foods she was avoiding. It turned out that one of the few foods she wasn't avoiding was eggs, but when she cut them out of her diet her rash went away in just days. Based on her story, you might try eliminating eggs for a week or two to see if it makes a difference. Eggs are one of the top 8 allergens. Or it could be something else...
  7. Need to lose

    Thank you! A few days ago I was talking to a friend of mine about needing to find a basic cooking class. He was lamenting the lack affordable basic cooking classes with me. He would love to find a class that teaches how to cook meat in various ways because he was a vegan for years and doesn't feel knowledgeable now on how to cook meat. I have difficulty following written recipes and learn best in a tactile fashion, so I think a class of some sort is probably my best option. The ironic part is that we live in an area that is very 'foodie', so there are an abundance of very specialized classes on all sorts of fancy cooking techniques (mostly focusing on desserts) that are so far over my head it is laughable. There are dozens of classes in the general area and not a one of them could teach me how to make a pot roast or bake a chicken (although a whole chicken is really too much for me to get through anyway). If I can figure out how to cook basic things, I'm sure it will help. I was looking around online and I started to get interested in the high protein, low GI diet. My blood sugar levels are very good, but my cholesterol could stand to come down and I'm thinking low GI probably fits pretty well with gluten free. It also, in a way, seems simpler because it is more a matter of focusing on meats and veggies. It seems like I can only focus on one thing at a time. I know I basically stopped counting calories right after I gave up dairy, which is why the weight started creeping back up. That's why I'm sort of looking for something that is all-inclusive in the sense of dairy free, gluten free, and low calorie or weight loss inducing in some fashion. It probably doesn't exist, but if I don't look I'll never find, right? I will admit that I can't actually recognize or name a large number of the veggies in the produce isle. That's another bit of learning I need to master to get on the right track. Exercise is still a work in progress. I planned to walk a bit last night and the plan got derailed at the last minute... And I can't even pretend that I'll have the time to try to get to it tonight. I'll keep working towards it though.    
  8. I previously had success losing weight with calorie counting. I lost about 30lbs that way and managed to keep it off for at least a year, but it is slowly creeping back up and I've now regained 10. Calorie counting worked for me because I still felt like I could eat anything I wanted as long as I could fit it into my calorie budget. It didn't feel restrictive to me. My problem now is that, after having to give up both gluten and dairy, I feel like my choices are constantly restricted. The idea of also trying to restrict calories on top of that is overwhelming to me. So I'm not sure, really, how to approach my problem. I'm not very physically active. I find that I have to be conscious of how much energy I expend because I have a B12 issue which causes me to become and stay extremely fatigued if I overdo physical activity. I would like to find a balance where I could be a little more active than I currently am. There's a time/money component to this issue that I haven't quite worked out though. I also have not yet learned to cook. I find calculating calories more difficult on home cooked versus pre-packaged foods. However, if I learn to cook, I could probably eat healthier than I currently manage. So I think I just need to find a non-calorie-counting approach. What has worked for you? Are there any good methods that work easily with gluten and dairy restrictions? I've noticed paleo seems to include a lot of milk/cheese. If I'm going to try to cook things, I don't want to worry about trying to figure out substitutions. I'm really bad (I mean *really bad*) at cooking, so the fewer the complications the better.
  9. This part caught my eye: "low RBC and hemocrit, nearly low Hemoglobin, high MCV and MCH" It sounds like your results are showing a macrocytic anemia which your doctor is treating with B12 injections. It's great that your doctor is treating this (there are so many who don't). But I do wonder if your folate level was also checked? If you have low folate, the B12 shots will not be as effective as they should be. Low folate can also cause macrocytic anemia, but it would not cause the tingling (peripheral neuropathy) or memory issues that you mentioned. If you're having trouble absorbing nutrients (and it sounds like you are) then it would not be surprising if you were low in folate also. I do wish you luck on getting to the bottom of the absorption problem. You could ask to be tested for Pernicious Anemia. That is another autoimmune condition. It can result in gastric atrophy which can make absorption of nutrients difficult. It usually also results in hypochlorhydria, which is low stomach acid. That can cause lots of IBS-type symptoms too.
  10. I really know nothing on this subject but the first thing I thought about when reading your description was 'could it be a gallbladder problem?' The insurance thing is a drag, but if you put off signing up for it, it will take even longer for you to be covered. Since specialists often have fairly long waiting lists, it might work out to sign up for insurance now, find out what specialists are covered and immediately book an appointment for the day your coverage begins. Obviously, if it feels like it is becoming life-threatening you should get to an ER despite the lack of coverage. Most hospitals will let you work out a payment plan. That sounds like such a unpleasant pain. I hope you can get it diagnosed soon.
  11. PCOS

    PCOS is a diagnosis of exclusion which means that you need further tests before it can be considered PCOS. Just having cysts on your ovaries doesn't automatically mean it is PCOS. In true PCOS there is also hormonal imbalance which is measured through blood tests. Finding out which hormones are out of balance is essential to figure out what the correct treatment is. Treatment is also often based on whether or not you are currently trying to conceive. If you are not trying to conceive, most doctors will advise taking some kind of birth control pill which can mask symptoms but not actually treat the problem. For those trying to conceive, sometimes doctors will prescribe the diabetes medicine Metformin. The science is a bit murky, but it seems to help some PCOS patients. (If you take Metformin, be aware that it can lower your vitamin B12 levels.) If the only test you've had done was an ultrasound, you should ask about the related blood tests to confirm the diagnosis. You should probably be referred to an Endocrinologist for those additional tests.
  12. The next acceptance battle

    Thank you for reminding me about the airborne flour issue. I'm not usually at her house when she's baking. When I mentioned it to her she had a response that made me laugh: "Yeah I'm sure I'm covered in a fine layer of gluten at all times, but as long as you don't lick me you're probably safe."
  13. I might hold the record for being in denial the longest. After five years I'm just now coming to the realization that gluten is a problem for me after all. As difficult as it has been for me personally to reach a point of acceptance, now I find that I will have to persuade my friends. They mean well and they just want me to retain some skepticism. I get that. But I feel like I've already fought a battle with myself (and lost) and that I shouldn't be obligated to convince anyone else of my need to be gluten free. On the other hand, I would like them to understand and accept that I am making the healthiest choice I can for my body. Naming my gluten issue has been a challenge for me. I feel like the perception in the general population of the term 'gluten intolerant' is that it is less serious than celiac and that corners can be cut. But I've also been told repeatedly that I don't have celiac so I feel like I can't use that term. I think I feel more comfortable using the term 'gluten ataxia' since it seems to get to the heart of my problem, even if nobody knows what it is. Using that description will also remind me that I really can't become lax about cross contamination since the damage I'd be doing to myself would likely be permanent. I can sort of understand where my friends are coming from in their resistance. One of them bakes and it means I can't taste-test her creations anymore. Others have a tendency to hold social gatherings at restaurants and they'd find it inconvenient to accommodate my need to eat either before or after their get together when the restaurant they've chosen doesn't have anything that is safe for me. It also means that I can't just spontaneously go out to eat somewhere with any of them (and none of us are good at pre-planning). Still others just want there to be more solid science to back up my claim. I understand all of this. I don't know how to make it easier for any of them. Is there anything I can do? On top of all of that, I still have a lot to learn about navigating gluten free as a permanent lifestyle. And, at some point, I will need to grieve a bit...
  14. Is "borderline celiac" similar to being "only a little pregnant"? Can you have only a little of an autoimmune disease? There is a small portion of actual wondering in my question as well as some facetiousness. I think you're probably justified in calling it celiac. It sounds like both of those doctors are acknowledging that gluten is the cause of the damage. I don't know why they would avoid the word celiac, but it sure sounds like that is what they are saying.
  15. You mentioned that you're vegan. That coupled with the malabsorption of nutrients that goes along with celiac disease puts you at a high risk of being deficient in vitamin B12. B12 is essential to the human body. Not only is it needed for blood production, it is also responsible for repairing/maintaining the myelin sheath that coats every nerve in the body, allowing them to successfully send signals. It is also known to affect fertility. Basically it's needed all over the body for multiple things. I had wildly irregular periods for over 20 years before my B12 deficiency was discovered. It took less than a year for my cycles to correct themselves, without any additional measures, after I finally started getting treatment. Chances are good that your B12 level has not been tested, because it is not a test that is frequently requested. You may want to check your records to see if you've been tested, or just ask to be tested. Do keep in mind that the common reference range of "normal" is huge. It goes from around 200 to 900 pg/mL. However, symptoms of deficiency can develop with levels below 400 pg/mL. Symptoms can include things like: Fatigue (extreme fatigue where you sleep for hours on end but are still tired when you're awake) Dizzy spells/Balance problems/Vertigo Peripheral neuropathy (sensations of burning or tingling or numbness in the extremities) Mental confusion/Lack of concentration/Short-term memory loss Tinnitus (ringing in the ears) Anemia symptoms such as breathlessness (even small amounts of exertion lead to something collectively referred to as 'the sighs'), heart palpitations/arrhythmia, weakness, pallor, etc. It can be a good idea to also have a folate test done at the same time, because high levels of folate can mask some of the markers of low B12. Low iron levels can cause similar problems with interpreting test results. But the two tests that would be most helpful (along with the typical standard CBC) are serum B12 and MMA (methylmalonic acid) tests. An active B12 test does exist, but it is usually not covered by insurance and most doctors would not be willing to order it done. Untreated B12 deficiency eventually becomes fatal, so it is a good idea to at least get it checked out so you can rule it out as a cause of your continuing misery. Sorry for the long response, but I hope it is helpful.