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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About Galixie

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  1. I'm going crazy

    Vitamin B12 deficiency can also cause anxiety. If you go for more testing, you might want to ask them to check your B12 level.
  2. A link to this page was posted on another forum I read and I found it pretty interesting so I wanted to pass it along here. It's clearly meant for practitioners (in Europe), but the detail is fascinating.
  3. I also agree that repeating the blood tests might be helpful. Something might have changed since the last time you had them run. In addition to the newest tests, you might also ask them to re-run the AGA IgA test that was negative previously, because then you could compare your current result to the previous result. Unfortunately, many labs have discontinued that test so you may not be able to get it re-run. I also wanted to point out that even the newest tests aren't without flaws. The only positive I've ever gotten was on an AGA IgA result. At the time I didn't really question it when I was told that result didn't indicate anything. By the time I thought to question it, the lab had stopped performing that test and I have since never had a positive result on any of the newer tests. It was only by going gluten free for a few months and then reintroducing it that I found out that I did have a reaction to gluten. If you don't want to go for further blood testing, you could do what I did, which is to go completely gluten free for 3 or 4 months and then reintroduce gluten to see how your body reacts. If you decide to do that, I would recommend keeping a food and symptom diary starting from before you even go off of gluten so you have something concrete to look back through and determine what, if any, effect there is.
  4. Envelope Glue

    I normally don't lick envelopes (because I don't like the taste and texture of the glue), but I was in a situation where I needed to get an envelope in the mail and I didn't have any other way to seal it. I don't think I've ever gotten sick from licking an envelope before, so this was a surprise. I'm thoroughly stumped on what could have caused illness. Thankfully I'm doing much better today.
  5. Envelope Glue

    I realize this is an old thread, but it's relevant to me at the moment because I did become ill yesterday and the only thing out of the ordinary I can point to is the fact that I licked an envelope. I wanted to think it was somehow coincidence because one envelope surely would not have enough of anything in it to make me ill, yet there was truly nothing else I could blame it on. Can I just say that I hate the way I can never know for sure if something may or may not have made me sick? Grr.
  6. It's about as official as I'm ever likely to get. A couple of months ago, someone gave me the contact info for a clinic in England that specializes in gluten-related disorders. Even though I considered it a huge long-shot that I would get any response, I decided to take a chance and mail a letter because I was still a little uncertain if I could really have gluten ataxia if I didn't have damage that was apparent on an MRI. (I knew I didn't have damage based on an MRI that was done in 2013 to rule out the possibility of MS as the cause of my dizzy spells.) Remarkably, I did get a response. Apparently my results fit in with about two-thirds of their patients and MRI scans can be normal at early stages of the problem. So I guess that makes it officially NCGS. He went on to point out that, if I continued to eat gluten, I could develop a "significant degree of atrophy of the balance centre and permanent balance problems." And he ended by advising me to "do your absolute best to be very strict with the gluten free diet." I think that's about as much confirmation as I could ever hope to get. I was impressed that my letter got there at all. It was neat to get a response back.
  7. Kimchi is another food that is gluten and dairy free and has probiotics. There is also sauerkraut. Or miso soup.
  8. From what I understand, gastritis and low stomach acid tend to go hand in hand. Strangely, low stomach acid often has the same symptoms as too much stomach acid. I wonder if the antacids gave you heartburn because they were reducing an already too low amount of acid? Having gastritis is definitely something to keep an eye on. It can put you at a higher risk for stomach cancer.
  9. I went to see my naturopath yesterday about some ongoing gut issues. We are both in agreement that my gut biome is out of whack and that I need to correct it. I think there may be a possibility that I'm also not producing enough stomach acid (which is a pretty common problem with pernicious anemia). I haven't figured out what probiotic to try yet and I've never taken HCL before so I'm not sure where to start with that one either. I asked her if I should have my stomach acid level tested first but she thought it would probably end up being far easier to just trial HCL and see if it helps. The part of the discussion that was kind of interesting was that she thinks I might, someday, get gluten back. The current theory is that I just have leaky gut and, if we manage to fix that, I might be able to eat gluten and dairy again. (I kind of doubt it about the dairy because I have such a strong reaction to that one.) But it would probably be a long way off so, at this point, it's just wishful/hopeful thinking.
  10. Ever since I first heard about cobalt allergies, I've always had the impression that they were kind of tragic. I remember someone from the PAS forum who had that along with pernicious anemia and it just sounded like a horrible death sentence when I heard about it. But that case was kind of extreme because she was already low in B12 and had no possible way of correcting it. Getting back to S_J_L's issue with the supplements; Assuming you don't have a cobalt allergy, you could try foods that are high in B12. The original treatment for pernicious anemia (back in the 1930's) was to eat large quantities of basically raw liver. Or try a supplement with a different formulation. It is possible to be allergic to any component in a supplement. Last year I discovered I was allergic to something in an over the counter supplement, but to this day I have no idea which component. Allergies can develop at any age.
  11. Need to lose

    How long does the meat need to 'rest' before you can refrigerate or freeze it? Someone at work said it's bad to put freshly cooked meat in the fridge, but we were all a little unclear on whether it was bad for the actual meat or because the warm container might warm up surrounding food.
  12. I was listening to someone a few weeks back talking about having a very long lasting rash that didn't go away even though she had a really long list of foods she was avoiding. It turned out that one of the few foods she wasn't avoiding was eggs, but when she cut them out of her diet her rash went away in just days. Based on her story, you might try eliminating eggs for a week or two to see if it makes a difference. Eggs are one of the top 8 allergens. Or it could be something else...
  13. Need to lose

    Thank you! A few days ago I was talking to a friend of mine about needing to find a basic cooking class. He was lamenting the lack affordable basic cooking classes with me. He would love to find a class that teaches how to cook meat in various ways because he was a vegan for years and doesn't feel knowledgeable now on how to cook meat. I have difficulty following written recipes and learn best in a tactile fashion, so I think a class of some sort is probably my best option. The ironic part is that we live in an area that is very 'foodie', so there are an abundance of very specialized classes on all sorts of fancy cooking techniques (mostly focusing on desserts) that are so far over my head it is laughable. There are dozens of classes in the general area and not a one of them could teach me how to make a pot roast or bake a chicken (although a whole chicken is really too much for me to get through anyway). If I can figure out how to cook basic things, I'm sure it will help. I was looking around online and I started to get interested in the high protein, low GI diet. My blood sugar levels are very good, but my cholesterol could stand to come down and I'm thinking low GI probably fits pretty well with gluten free. It also, in a way, seems simpler because it is more a matter of focusing on meats and veggies. It seems like I can only focus on one thing at a time. I know I basically stopped counting calories right after I gave up dairy, which is why the weight started creeping back up. That's why I'm sort of looking for something that is all-inclusive in the sense of dairy free, gluten free, and low calorie or weight loss inducing in some fashion. It probably doesn't exist, but if I don't look I'll never find, right? I will admit that I can't actually recognize or name a large number of the veggies in the produce isle. That's another bit of learning I need to master to get on the right track. Exercise is still a work in progress. I planned to walk a bit last night and the plan got derailed at the last minute... And I can't even pretend that I'll have the time to try to get to it tonight. I'll keep working towards it though.    
  14. I previously had success losing weight with calorie counting. I lost about 30lbs that way and managed to keep it off for at least a year, but it is slowly creeping back up and I've now regained 10. Calorie counting worked for me because I still felt like I could eat anything I wanted as long as I could fit it into my calorie budget. It didn't feel restrictive to me. My problem now is that, after having to give up both gluten and dairy, I feel like my choices are constantly restricted. The idea of also trying to restrict calories on top of that is overwhelming to me. So I'm not sure, really, how to approach my problem. I'm not very physically active. I find that I have to be conscious of how much energy I expend because I have a B12 issue which causes me to become and stay extremely fatigued if I overdo physical activity. I would like to find a balance where I could be a little more active than I currently am. There's a time/money component to this issue that I haven't quite worked out though. I also have not yet learned to cook. I find calculating calories more difficult on home cooked versus pre-packaged foods. However, if I learn to cook, I could probably eat healthier than I currently manage. So I think I just need to find a non-calorie-counting approach. What has worked for you? Are there any good methods that work easily with gluten and dairy restrictions? I've noticed paleo seems to include a lot of milk/cheese. If I'm going to try to cook things, I don't want to worry about trying to figure out substitutions. I'm really bad (I mean *really bad*) at cooking, so the fewer the complications the better.
  15. This part caught my eye: "low RBC and hemocrit, nearly low Hemoglobin, high MCV and MCH" It sounds like your results are showing a macrocytic anemia which your doctor is treating with B12 injections. It's great that your doctor is treating this (there are so many who don't). But I do wonder if your folate level was also checked? If you have low folate, the B12 shots will not be as effective as they should be. Low folate can also cause macrocytic anemia, but it would not cause the tingling (peripheral neuropathy) or memory issues that you mentioned. If you're having trouble absorbing nutrients (and it sounds like you are) then it would not be surprising if you were low in folate also. I do wish you luck on getting to the bottom of the absorption problem. You could ask to be tested for Pernicious Anemia. That is another autoimmune condition. It can result in gastric atrophy which can make absorption of nutrients difficult. It usually also results in hypochlorhydria, which is low stomach acid. That can cause lots of IBS-type symptoms too.