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SPinch03

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About SPinch03

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  1. Posted this on my original thread but then decided to start a new topic in case my old one gets buried. Okay... so here goes all the new lab results: Gliadin (deamidated) IgG: 4 ....normal <20 Gliadin (deamidated) IgA: 9 ....normal <20 tTg IgG: 3 ....Normal <9 tTg IgA: 1 ....Normal <4 Previous blood work I only tested positive for: Gliadin (AGA) IgG 3.59 IV.... positive >/= 1.1 IV GI still wants to perform the endoscopy even with the negative serologies. Still says there is a possibility for the biopsy to be positive. I'm preparing myself for a negative result tho, which still leaves me with no answers and an appointment with a rheumatologist next month. I'm guessing something else is cross reacting and giving a false positive for the AGA IgG? Anyone ever see these serologies with a positive biopsy?
  2. Okay... so here goes all the new lab results: Gliadin (deamidated) IgG: 4 normal <20 Gliadin (deamidated) IgA: 9 normal <20 tTg IgG: 3 Normal <9 tTg IgA: 1 Normal <4 Previous blood work I only tested positive for: Gliadin (AGA) IgG 3.59 IV positive >/= 1.1 IV GI still wants to perform the endoscopy even with the negative serologies. Still says there is a possibility for the biopsy to be positive. I'm preparing myself for a negative result tho, which still leaves me with no answers and an appointment with a rheumatologist next month. I'm guessing something else is cross reacting and giving a false positive for the AGA IgG? Anyone ever see these serologies with a positive biopsy?
  3. I have Hashimoto's thyroiditis. Last year I was tested for AGA IgG/IgA as well as tTG IgG/IgA. My AGA IgG was the only test that was positive, had biopsy and it was negative. Doctors all pretty much said it was probably a false positive, I'm assuming from having hashimoto's. I was just retested for DGP IgG/IgA and a repeat of tTG IgG/IgA.... so far my DGP IgG and tTG IgG are normal... just waiting on the IgA's to come back.... I'm scheduled for another endoscopy but now I'm wondering if I should just cancel it... very frustrating but I hope this helps a little bit. Did you have any labs done?
  4. Went to the new Dr. he was very nice and understanding and did say that I am at very high risk for developing celiac. Had repeat blood work done (Waiting on results..) and he already scheduled me for an upper GI. which I will have on September 1st. *fingers crossed* that I get answers!
  5. Hello everyone! I'm back after a year of still no answers. Finally seeing a new group of doctors since I recently got a new job. My new primary doctor thinks I may have celiac and wants me to get another opinion. Going to see the new gastroenterologist next week and I can't wait to go. I'm hoping to finally get some answers to the issues I've been having. Although it will be a huge lifestyle change I think I will be relieved to know that everything I'm feeling just isn't in my head. Doctors are so quick to tell me all of my symptoms are stress-related. Here is a little background about me! May of last year I started realizing I was loosing my eyebrows (Still haven't grown back!!) - initially thought it was my thyroid, all levels were within range though. I'm also not loosing them on the outer corner of my eye but more towards the inner corner (Doesn't really matter I'm sure). Tested my Iron and my ferritin was down to an 8 when in previous years it was around 200 something. No bleeding episodes and my menstrual cycles are light. I started researching hashimoto's and iron deficiency and started seeing stuff about celiac. In the lab I work in I was tested for tTg IgG/IgA, Gliadin IgG/IgA and Total IgA. I was not deficient in IgA and I'm not sure if the testing for gliadin was deaminated or not (don't believe it was). I don't have my exact results for the tTg IgG/IgA or Gliadin IgA but I remember they were within normal limits, but my Gliadin IgG was 3.59IV and a positive was anything greater than of equal to 1.1. I also had the genetic test done and I was negative for HLA-DQB1*02 and HLA-DQB1*03:02 but I was positive for HLA-DQA1*05. I know this isn't diagnostic in itself for celiac disease. I had a endoscopy and the report read as follows: A. Duodenal mucosal biopsies with no significant microscopic abnormality. No diagnostic histology features of celiac are appreciated B. Gastric antral and oxytocin mucosal biopsies showing chronic gastritis. Reactive foveolar hyperplasia is present. H. pylori is negative The material present is partly tangentially sectioned. The villous crypt ratio is about 3.5. There are intraepithelial lymphocytes but they don't seem to be significantly increase in most of the villi. There are inflammatory cells in the lamina propria including plasma cells and lymphocytes with an occasional germinal center. They are normal to slightly increased in number. No histologically diagnostic features of celiac are appreciated. Really hoping this new gastro will shed some light on all of my questions... Trying to eat as much gluten as I can tolerate before going for testing. I previously did not experience any GI symptoms but now I have been experiencing stomach pain (not everytime I ingest gluten but occasionally) The pain comes in waves, the pain builds up then subsides..I'm okay for a little while and then it happens again. Keep your fingers crossed for me!!
  6. Hello everyone!! Still on my journey to figure out what's going on with me! I've had a positive gliadin IgG test, negative gliadin IgG, Negative tissue transglutaminase IgG/IgA... Negative biopsy, it showed inflammation and lymphocytes infiltrating the epithilium but no issues with the villi... After I went gluten free for a month and felt great... Reintroduced and all my aches pains and respiratory issues came back I didn't think I had any GI issues but when I reintroduced I realized it made me constipated.... Now I had the genetic testing done and my HLA-DQB1*02 and HLA-DQB1*03:02 were negative but HLA-DQA1*05 is positive. Report says this is rarely observed in individuals with celiac and that it is only mildly supportive of a clinical diagnosis of celiac disease..... I know I should just go gluten free cause it makes me feel better... But I would have really loved a yes you have this or a no you don't
  7. Had positive DGP IGG... 3.59IV positive is GT .90 Biopsy says A. Duodenal mucosal biopsies with no significant microscopic abnormality. No diagnostic histology all features of celiac are appreciated. B. Gastric antral and oxytocin mucosal biopsies showing chronic gastritis. Reactive foveolar hyperplasia is present. H. Pylori is negative The material present is partly tangentially sectioned. The villous crypt ratio is about 3.5. There are intraepithelial lymphocytes but they don't seem to be significantly increased in most of the villi. There are inflammatory cells in the lamina propria including plasma cells and lymphocytes with an occasional germinal center. They are normal to slightly increased in number. No histologically diagnostic features of celiac are appreciated Opinions anyone??? I'm confused see. Lymphocytic gastritis can be associated with celiac plus my positive blood test!! Ahh maybe I'll just give up the gluten and see how I feel
  8. Had positive DGP IGG... 3.59IV positive is GT .90 Biopsy says A. Duodenal mucosal biopsies with no significant microscopic abnormality. No diagnostic histology all features of celiac are appreciated. B. Gastric antral and oxytocin mucosal biopsies showing chronic gastritis. Reactive foveolar hyperplasia is present. H. Pylori is negative The material present is partly tangentially sectioned. The villous crypt ratio is about 3.5. There are intraepithelial lymphocytes but they don't seem to be significantly increased in most of the villi. There are inflammatory cells in the lamina propria including plasma cells and lymphocytes with an occasional germinal center. They are normal to slightly increased in number. No histologically diagnostic features of celiac are appreciated Opinions anyone??? I'm confused see. Lymphocytic gastritis can be associated with celiac plus my positive blood test!! Ahh maybe I'll just give up the gluten and see how I feel
  9. ahhh as soon as I think I'm a step closer to knowing what is wrong I get thrown another curve ball! So here is a little bit of info about me.. 27 year old female with Hashimoto's thyroiditis. I've suddenly developed iron deficiency anemia. After doing some research and seeing my doctor I learned that a lot of people with Hashimoto's can also have celiac disease so we ordered some celiac blood tests TTG (IgG/IgA) both came back normal (however total IgA wasn't tested..) DGP IgA negative, and DGP IgG positive (3.59 IV anything above .90 IV considered positive). After getting my blood test results back I made an appointment with my GI doctor and had the endoscopy done yesterday.. I also work in the hospital laboratory so I know the pathologists and all so I called today and he said he didn't see any signs of celiac but wants to pass it around to the other pathologists to make sure, he did say I have gastritis tho with no signs of H. pylori...told me to come talk to him tomorrow but now I'm stressed out and confused!! :/ any advice?
  10. Thanks for your story! Doctor told me to start taking over the counter iron and vitamin B12 in the meantime and if I'm still not absorbing that then I'll have to see a hematologist and receive it through IV. I really don't have any intestinal symptoms either, at least nothing that truly bothers me... I am just TIRED! I'm 27 and I shouldn't be wishing I was staying home in bed than going out and being with friends. I'm trying to mentally prepare myself for the possible diagnosis even though he said it could be a false positive... Because why else would I suddenly start becoming iron deficient? Update tho my appointment with the GI got pushed to this Friday the 16th so I am relieved that I will get in sooner!
  11. Let me start off by giving a little background on myself. I am 27 years old and was diagnosed with Hashimoto's Thyroiditis back in 2006. Since my diagnosis I have taken different doses of levothyroxin and everything seems to be under control except for my anti-TPo antibodies which are very high. Now fast forward to the present.... I've recently noticed that my eyebrows have started really thinning out so the obvious first thought is my thyroid, but once again everything seems to be in decent shape. The only lab work out of range that is concerning to me was my Ferritin, it was a 10!! I should add that I work in a laboratory so I have tests at my fingertips when I'm there so a day later I check it again and its down to 8! Why all of a sudden am I in the beginning stages of Iron deficiency anemia!? I say beginning stages because my hemoglobin has not dropped below normal as of yet. My Vitamin D was also low for the first time ever but with the winter we had it wasn't as alarming to me and also my Vitamin B12 was to the lower end of the range. So I started googling.....google such a great tool but also frustrating at times!! I started seeing that there is a possible link between people with Hashimoto's and Celiac disease... It made sense to me!! I could possibly have both and this is why I'm not absorbing the right nutrition. We ran some celiac tests such as tissue transglutaminase IgG/IgA as well as Gliadin IgG/IgA, everything came back normal except Gliagin IgG, Mine was 3.59 IV and the range is greater than or equal to 1.1 for positive. My primary physician said that this could be a false positive and that I should see a GI doc because the only way to truly confirm a celiac diagnosis is to do a biopsy... which is fine.. I can't get an appointment with the GI until June though so I'm just a little inpatient and I guess I just want to see if anyone else has had a similar situation?