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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About SMRI

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  1.   Hard part with getting food from other parents is you don't know how it was prepared or what else it touched.  At the in-law Christmas party this year, we brought veges and dip that I made because I knew that would be filling and fine for me to eat....until my B%*#* sister-in-law took her hamburger buns out of the package right over my vege tray....which was sitting away from the rest of the food.....just not worth it to rely on others. 
  2.   My MIL told me at the family Christmas celebration that she though someone was just making up all of this Celiac stuff to make, ok....We've been to visit them twice since my diagnosis and they keep insisting on taking us out to eat because it's "easier".  I brought plenty of food to eat so I was fine.  The place we went was in no way gluten-free, not even yogurt or anything like that so I had a glass of juice.  
  3. Making steak and baked potatoes tonight....once I get the motivation to get the steaks going anyway....I would rather grill them but it's too cold!!
  4. I would take him to an immunologist or an infectious disease doctor.  Have them run the full IG panel--IgA, IgG, IgM, etc.  If his total IgA and IgG are not normal, then his celiac blood tests won't come back accurate.  Ask for the IgG subclasses as well.  IgG3 subclass deficiency has very similar symptoms to Celiac.  Also, the allergy testing isn't definitive, especially in young children, but he obviously has allergies.  Our son was first tested around age 8 and nothing showed up but the allergy dr took one look and said YEP.  He was retested at age 14 and his whole back lit up--20+ major responses.  He just hadn't built up enough histamines by age 8.  
  5. I'd get a second toaster.  It will cost less in the long run vs the foil or parchment.  Any gluten food at our house is in the basement.  The kitchen is strictly gluten-free.   Your utensils and such should be fine as long as there are not deep scratches or you can't wash them for whatever reason.  Wooden spoons are pretty much a no.  Your dishes should be fine.  It is an adjustment and it takes time, but you will feel better.
  6.   Links have been posted disputing this claim and those 3% have been found to have something, not Celiac....if Celiac is an autoimmune disease, which it is, there has to be some genetic component present, identified or not.
  7. New Years Ideas

    I think the "silly and embarrassing" is something that you are projecting.  If people ask, just tell them because of your recent surgery, you can't have alcohol and then move on.  If your "friends" make you feel like you are sticking out because you are not drinking, then they really are not your friends, besides, who would even know if you are having a "mocktail" vs one with alcohol?   I can guarantee that if someone asks you if you want some wine or champagne on New Years and you tell them that you can't have alcohol because of your surgery they are going to say "oh" and drop it.
  8.   That is NOT true.....medications are tightly controlled by the FDA.  There is a very long, very detailed ingredient list along with the chemical compounds for all prescription drugs.  Also, generics are lower cost because they are no longer under patent and the R & D costs associated with the name brand drugs are no longer included in the cost.
  9. If you do want to do the wedding at the cabin--sounds lovely by the way---there may be a caterer that is well versed in gluten-free cooking.  Buying all the food and the time to prep and clean it up just might be worth the cost of the caterer, especially since the rest of your costs will be minimal.  The last wedding I was at (guest) the caterer was very well versed in gluten-free food and those of us that were gluten-free had a lovely meal.
  10. I've been doing so much baking/cooking the past few weeks I'm not doing anything today. Someone else can cook tonight
  11.   So?  Just because celiac is suspected doesn't mean that the other symptoms are not from something else. I don't see anywhere in the OP's post that the child is having anaphlaxtic reactions either.  Most "seasonal/environmental" allergies most certainly do show up on allergy tests....
  12.   It's possible that other genes are associated with Celiac I guess, but there has to be some genetic component or it's not Celiac.
  13.   You've said this before but simple biology says that what you are saying is not possible.  
  14.   Actually the dark circles and cough are very, very much allergy symptoms.  It's also very possible that he isn't allergic enough yet for it to register on the allergy testing.  Our oldest had those exact symptoms and nothing showed up on the allergy testing until he was much older.  His allergy dr was very good and understood that and he was treated.  The dark circles under the eyes are often called "allergic shiners".  Doesn't mean it's a wheat allergy or other food allergy so ingesting anything doesn't matter.  The stomach discomfort could come from post-nasal drip so it's not something that should just be brushed aside.  Now, it's likely that he has Celiac given all of the symptoms and family history, but that doesn't mean some of the symptoms are not allergy related too.
  15. Chef That Wants Your Feedback

      I just ate at a restaurant that had gluten free ravioli!!  I really debated about that or the pasta dish I got.  I ended up with the other pasta dish though.