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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About nsoroma79

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  1. Thank you again for all of your responses. I called the doc office yesterday and was told I need to be eating gluten again. Since it was only a few days since I ingested gluten, I would be fine. So, last night I ate a handful of frosted wheat cereal and I felt fine. No upset tummy. But within 2 hours, my knee pain started up again and today..... I'm very dizzy, my right arm and hand are numb, my leg is in so much pain and I just feel out of it. I also very anxious. Can these be side effects of gluten?
  2. Thank you everyone for reading and being so welcoming! below are my test results. Component Standard Range Your Value Tissue Transglut (Endomysial) see fn U/mL <1.2 Ref Range: <4.0 (Negative) She only ordered one test (it was my pcp and not a gastro doc) and mentioned s more in depth one, but said I should be fine with just that one. In my results she said that I may not have had enough gluten in my system..... But I had eaten gotten the night before by accident ahs just had a cupcake 3 days before that. So I doubt that was the issue. It's only been 2 weeks since I started decreasing gluten overall and now it's been 3 days without any that I know of. Aside from touching pizza crust today and being fine. As for my other problems, Chiari is where I have a small piece of brain matter that protrudes out of my skull and into my spinal column. It swells and causes the cerebral fluid to backup. Horrible headaches!! EDS, is more so that my body doesn't produce collagen. I have painful joints and muscles. It seems that a lot of people with EDS have stomach issues, since the intestines cannot move like they should. As far as treatment, I have been fighting to get disability, but since both are rare, I can't get approved. I can't work and I'm on welfare. Sadly, they won't pay for fancy genetics testing and other specialists. So, I'm pretty much up the creek, until I marry a rich man lol Since its only been a few days since I've not had any gluten, I'm thinking I should be ok with eating a bit. I've lived on bread and baked goods, up to that point. Plus, I was always baking, with no issues. I'm just scared to take that first bite... just in case
  3. Thank you Stephanie. I was diagnosed in 2008 with Chiari, after a bad car accident. I lived up to that point diagnosed. From there I went to the Chiari Institute and confirmed that I had it, along with EDS and tethered cord syndrome. It's been downhill since then.
  4. Hello everyone, my name is Lorrie and I'm new here. I've had stomach aches all my life and they've been getting worse. My symptoms include: constipation, my intestines feel like steel, bloating, nausea and acid reflux. Then there are others not tummy related: severe depression, anxiety, headaches, joint pain, insomnia, fatigue, fogginess and others. I do also have Chiari Malformation and Ehlers Danlos syndrome as well. So 2 weeks ago, I went to a gastro doc and was told it could be a variety of issues but it sounded like celiac. I was scheduled a month later for an endoscopy and colonoscopy. But I decided, like an idiot, to go gluten free. It's been since July 1st, but I've been accidentally glutening myself. I'm new to all this. So after 3 days of what I thought was no gluten, I had the blood test done and it was negative. I'm now about one week in, of being gluten free and I am miserable. I'm so depressed, I can't eat anything without feeling sick, I'm back to being constipated and I hate my life. Worse part is, I have to start eating it again to get my test in 2 weeks. I just sat at dinner tonight and cried. I'm also emetophobic, so the thought of getting sick from it, scares me. I accidentally ate twizzlers the other night and felt horrible. I'm wondering if too far into this now to go back or if it's even worth it. I have the same symptoms now, as I did before I went gluten-free. I'm sorry if this is a bit jumbled, but I'm panicking and I'm just a mess. Thanks for reading