Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About nikkijayne28

  • Rank
    New Community Member
  1. I don't think getting angry with yourself helps - I've been there when trying to eat healthily and the angrier I got with myself, the worse I found it was to fight it. When you screw up, don't beat yourself up about it. Also, don't write the rest of the day off.   Once you have done one day gluten free, remind yourself the next day that you're already one day into it and if you ate something with gluten today, you'd undo all of yesterday's hard work. This works for me. The first three days are the hardest, then it gets easier. I promise!
  2. Thanks to some really helpful comments on here to my last post, I'm having my bloods taken on Friday to test for coeliac (along with thyroid problems, colitis and IBD).   Now, my doctor reckons I have IBS with NCGS - before I went to the doctor I stopped eating gluten and felt great, so she's recognised I definitely have a problem with it - and boy, doing this challenge has really hit home how much I have a problem with it! I forgot what it's like to need to rush to the loo multiple times a day!   Anyway, she said after I'd had my blood tests I could resume eating gluten-free. Now I've been thinking, if my coeliac screen comes back positive, won't I be referred for an endoscopy which means I have to carry on eating gluten? I've been SO looking forward to coming off gluten in a few days and all of a sudden I realised I might have to continue eating it for months! Is this correct? I'm in the UK and had an endoscopy earlier this year for my acid reflux, and from my referral to my appointment was about 2 months. My coeliac blood results will take 10-14 days to get back to the doctor - would it matter if I was off gluten just for those 2 weeks? I'm so fed up of walking around looking like I'm 6 months pregnant!
  3. Getting Tested In The Uk

    Thought I'd post an update! Went to the doctor yesterday and she was really understanding - she said it sounds like a textbook case of IBS with NCGS, but she's sending me off for blood tests for coeliac, anaemia and thyroid problems. I can't have these tested for another 2 weeks as she's of the school of '4 slices of bread every day for 8 weeks' - this is hard as I rarely ate that much gluten prior to going gluten-free! I'm trying my best but good god my stomach is in a world of pain. Not fun!   The good thing is that she's a doctor who accepts that non-coeliac gluten sensitivity is a real thing, which is awesome
  4. Really interesting, thanks for this! I'd heard someone else mention that they were trying to get the rates of diagnosis up in the UK so this should make getting tested easier!
  5. Getting Tested In The Uk

    Hi oukethelousa!   I've just read your post and we seem to have a lot in common regards symptoms! That's pretty reassuring that your doctor was so easy to persuade, do let me know how you get on.
  6. I have tinnitus that is only brought on when I sleep without my mouth guard; I grind my teeth in my sleep and it seems like it's all connected to the muscles in my neck and shoulders; when they're tense, I get the ringing when I move my head. Since yours get worse with movement too I'd guess that it could be connected!
  7.   This is interesting; I'm yet to be tested (going to the doctor on Wed), but when I had my endoscopy before I was diagnosed with acid reflux, they also mentioned how much bile was in my stomach. I have no idea what it means though haha, just thought it was an interesting coincidence!
  8. Hi guys,   I'm going to see my GP on Wednesday morning in the hopes of finally getting to the bottom of my constant stomach issues.   For about ten years I've suffered with stomach aches - when I was younger I had chronic diarrhoea, now it's turned to constipation. Unexplained tummy aches that can either be high up around my stomach, or low down like period pains. Awful bloating - my waist regularly measures 2" larger in the evening versus the morning. Headaches, constantly being cold, and sometimes I get a feeling of 'being out of it'. I also have LPR (acid reflux), diagnosed earlier this year.   A few months ago I went gluten free to see if that helped my problems, and it did, but I didn't really notice it at the time. Then it was my birthday so bread, cakes, beer made their way back into my life, and suddenly I remembered what it's like to want to fall asleep at 3pm. The stomach aches started back up, as have the dull headaches. My bloating is more than ever and I constantly feel sluggish. The only thing that has changed in my diet is eating 2 pieces of toast in the morning (which I have started to do daily because I know I have to be eating it for the tests to be reliable).   The doctor I'm seeing is lovely but I was just wondering what other people's experiences were with getting tested in the UK? The one thing that scares me is being thought of as a hypochondriac and all my problems being dismissed as IBS, which they have been in the past.