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I haven't had a bad experience, but I can add that I've had a good experience on Princess lines. I've sailed twice since knowing about my gluten intolerance, and they've been very good each time. Before the cruise I fax them a letter with my request for gluten free diet, and when I get on board, see the maitr'd the first day. Like another poster said, they'll go over the next day's menu with you and can make just about anything gluten free. THey even had pasta for me last time. It is MUCH easier if you eat in the traditional dining room with set seating and wait staff, but I've always had what Princess calls "Anytime Dining" and have been well taken care of. The buffet is risky, but if you befriend one of the staff there, they can point out what you should avoid, as happened on one of my cruises, so I was able to eat at the buffet with my friend who REALLY LOVES buffets, lol.
I haven't sailed Disney yet, but very much want to. The Travel Channel has a 1 hour show on the Disney line, and it looks like a great experience. The Disney folks are very knowledgeable about food allergies and Celiac.
I stayed at Port Orlean's in Disneyworld. They don't have a table service restaurant, but the food court had a head chef who was VERY helpful for me. They can make gluten free pancakes with real maple syrup. They were very knowledgeable about food allergies and about celiac.
In Disneyland, we stayed off property...fortunately I had good luck with that except for one day, but we ate mostly in the park anyway, and that was also a good experience.
Sorry Philibuster, I haven't any experience with that. I think in general a colon cleanse once in a while is probably a good thing, especially for those of us with bowel problems, but I have no data on that.
Yeah, I decided a while ago to not post too many details about what goes on with me. Which is one reason why I haven't posted the name of the procedure they did for fixing the floppy intestines, lol. It's an unusal word and if someone (like me) does a search on it this thread will come up.
On a different note. I was really sick again yesterday. My surgeon is referring me back to my gastroenterologist for more testing and to check the ducts. Not sure what is involved with that, but I'm thinking it's probably an endoscopy. I see him Friday.
Both of mine are just even with the joint. I don't have a formal diagnosis of Celiac because by the time I had the blood testing and biopsy I had been gluten free for 6 months, but I do have a diagnosis of gluten intolerance.
I would have never known I had them if he hadn't put that medical term for fixing it on my sheet of paper listing everything he did. No one has ever told me I had them. I DO wonder if that isn't the cause of some of my gut symptoms though.
Ha, ditto for me! I have never dated much...just ended up in relationships.
Ditto again! Only, I can talk to total strangers about nothing in particular easier than I can talk to someone I'm trying to get to know.
Oh YAY, this is AMAZING!!!! I'm so happy for you!!!
Any stress can cause the adrenals problems. Good stress, bad stress, moving, too much to do, etc. I used to get that dizzy feeling you described all the time, but fortunately I haven't had it in a while (well except for right after each of my surgeries).
Yeah, I'm making my own jello with the recipe that Sherry posted. Although I HAVE eaten some of the store bought kind without problems, I don't want to eat too much of it...it's that bucket thing you were just talking about. I know it will eventually give me problems.
I don't think he did that. It's not listed on the list of stuff he did. Isn't ERCP some sort of endoscopy, or do I have that confused with something else, lol.
Ug, those Mucinex ads, lol. I don't think it has a name, lol. He just called it "floppy" when I talked to him. I wasn't written on the sheet they gave me of what they did.
Yeah, it's no wonder you can't get much progress!
Gosh, the tingling tounge worries me. That sounds like an allergy to me.
Ha, no, no new EM makeup, but I did actually put some on, lol.
Yeah, I've lost about 13 pounds. I can FINALLY fit into most of my clothes again, lol. I expect I'll gain a little bit back once I can get my calories over 1000...I've figured out that I'm only getting between 600 and 900 calories a day...definitely not healthy, but at least I feel full, lol. Even better news is that I can work out again. The doc gave the okay and so I've started with some brisk walks...my toe is holding out and I'm able to get in some really good walks. He gave me the okay to lift weights too, so I've been doing a little weight work as well. In a week or two I should be able to do some better aerobic exercise, and that should help keep the weight off.
I've expanded my foods to chicken, ground beef, green beans, white rice, potatoes, jello, fruit juices, applesauce, asian rice noodles. I tried an egg this morning, but couldn't finish it because it was sort of making me feel ill, lol. That's different than the pancreatitis attacks though...this is just an on again off again thing I have with eggs.
Well, I don't know what it is or why it's important, but I do know that I looked up the medical term for the procedure he did and it said "to correct excessive movement of the intestines". Not sure why exactly it's a problem, but I can see that it might be a problem, lol.
No need to apologize about eating lots of food...I can live vicariously through other people, lol.
Nice to see Jin again, although so sorry for the rough times!
Also very nice to see Rinne!!!
I've been doing well for a couple of weeks now. THe bouts of pancreatitis seem to be over although I'm still having to be careful what I eat and the doctor said not to add any fat until at least Christmas. I still can't eat much, but I'm slowly increasing.
Rachel...there was a procedure on the list of stuff they did during my surgery that I'd never heard of. I asked my doctor what that was...turns out my INTESTINES WERE TOO FLOPPY, so he did a procedure to tack it down! So, looks like I have (or had) alien baby junior, lol!
I survived the CT scan, lol. Barely! I couldn't drink all the stuff today, but they did the test anyway. I had most of it down, but probably had 4-5 more swallows, and just couldn't do it. I'll know about the results tomorrow.
I made the jello last night and it's WONDERFUL! I made it with apple juice. It's not very sweet, but that's good for me right now with my touch pancreas.
I'm hoping he'll let me have at least full liquids tomorrow if my CT scan looks good, but I may still pick up some different flavors of juice tomorrow to make more jello, lol.
WOW, THANKS!!!!! This is great! I may even have some gelatin in my cabinet! If not, I'll get some tomorrow.
Speaking of tomorrow, I have a CT scan. That means I have to drink the banana chalky stuff tonight before bed. I'm a little concerned about that, lol. Then more tomorrow, plus the dye they inject.
My doctor pulled out the pancreatic drain yesterday. He wasn't planning to do that until NEXT Monday, but he said that the drain could cause irritation and he felt that at 3 weeks, the internal stitches were probably safely dissolved. I can tell you that I feel MUCH better today. I felt a little worse last night (thankfully didn't have to throw up), but I'm not sure that wasn't because he pulled the drain. I ate 3 small bites of rice (which he said was okay), so that also may be it. Just in case, I'm not eating any rice today because I'll need all of my good feelings to drink that stuff.
Still good so far this weekend. Today is a little more iffy than yesterday, but so far am able to keep my liquids down. I went to the store to get some jello because it's considered a clear liquid but is more substantial than juice or water, but sheesh it has a ton of additives! I probably should have waited to go to Whole Foods to see if they have an alternative without so many things. I won't eat much of it, but I may try a bite or two. My doctor said it was okay and I seemed to be okay with it in the hospital (only had it once though)...but I wasn't inflamed then, lol.
Sherry, I just read one of my medical books on inflammed pancreas and it scared me a little?!