hello! i have been scanning all of the wonderful posts for the past few months or so. what supportive folks you all are! I decided since I'm going to deal with celiac disease for life, I will probably need some support along the way, so, I finally registered. I have many questions..... I was diagnosed a year ago/ kind of. negative blood test. but, my endoscopy results showed "enlarged lymphocytes- possible celiac sprue". my doc. told me that I more than likely had celiac disease. i asked what else would cause enlarged lymphocytes and he said "nothing". He told me to go gluten-free for 6 months and if my sickness abated, then it was Celiac. So, I guess that was my diagnosis. I was in denial for a few months, but, being sick all the time got really annoying. I thought I could just limit gluten. But, I have found out since, that is NOT the case. Now, if I accidentally get a few crumbs on something or accidentally eat a bite of something tainted, I get REALLY sick almost immediately. The reaction is much more severe now that I have eliminated the gluten. I am wondering if anyone relates.
I want to see if anyone's symptoms are similar to mine-- because celiac disease is such a vague diagnosis-- I feel like I need to remind myself that I truly have this disease. I used to be sick all the time- bloated constantly, D, really tired, and my stomach always just hurt and was in pain.
Since being gluten-free for about 7-8 months, when I get glutened, I throw up about 30 minutes after eating. And I also get severe gas on occasion. I also get extremely tired and depressed feeling. And- nauseas. Of course, all in all, I feel 500% better than I ever did. But- when it happens- it SUCKS!
Did anyone elses symptoms change after going gluten-free?
Also-- I'm just venting now because I don't personally know anyone who can relate. But- I have always been a huge food lover (which is why it devastated me to find out my limitations). And, lately, I am so bored with my food because I'm scared to eat anything different!! I am 25 and a single professional. So, I do not take the time to cook. And, I love eating out. But all i eat now is: French Fries, Mexican tortilla chips with lots of Queso, cheese enchiladas on corn tortillas, refried beans-- and LaraBars. That's it! Oh- and puffins cereal, which I am addicted to and made myself stop for a while. I just feel like it is so hard to even TRY to order safe at restaurants. I tried being adventurous yet safe last week and I ordered a Salmon Salad. turns out the salmon was blackened and must have had something bad in the seasoning. I spent the afternoon throwing up with the WORST fish taste in my mouth!! it was GROSS. sorry to share that- but, I just have to vent to someone who may feel my frustration. I know its not healthy to eat fries and cheese all day. but, everything else is so risky w/ contamination and added secret ingredients. I am fed up!
I guess this is adequate for my first post and its mostly venting. but, if anyone took the time to read it and can relate, that would be helpful.