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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About danikali

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  1. I have IC..........struggling with the diet for that and for Celiac is extra hard. But for some reason, citrus doesn't really bother me. It's more just things like smoking (kills my bladder), alcohol, coffee, SUGAR (VERY BAD), and gluten, even a tiny amount WILL KILLLLLLLLLLLLLLLLLLLLLLLL ME!!! Does anyone else with bladder problems notice this? That when they get glutened, or eat it, it doesn't only give them the 'runs' but it kills your kidneys and bladder, and the whole system? But def. get tested for IC. And stop taking antibiotics.....they only bring them back. Take some allergen free acidopholis.....get your diet completely clean, and then find out which foods might make it worse. And if it is UTI's, it just means your immune system is not working as it should and antibiotics will seriously only make it worse.
  2. Well, it for sure always lasts about a week. It's not just digestive things that I get though, it's disrupts my whole system....I get muscle aches, feels like I have black and blue marks all over my body, sore insides, pretty much everything hurts. It always last at least 7 days but I was just wondering if anyone knew of it lasting longer......This time was realllllly bad....and all of the body aches and everything, all the 'weird' symptoms are gone, but now I just have a weak digestive tract all over again.
  3. Now What?

    The blood tests aren't always accurate. I got negative blood tests and a positive biopsy.... the diet (to a T) and see how you feel. Doctor's tests for celiac disease or gluten problems aren't always the best measure.
  4. Well I had gluten not last Friday, but the Friday before that..........I was extremely bad last week, and it has gotten better, but I still keepg etting bad gas pains in my back and lower abdomen, I'm still extremely bloated, and I'm still long does it take you to get 'better' after you get sick from eating gluten?
  5. I was just wondering if everyone could post a little bit about what happens when they get glutened........ I haven't been like this for a LONG time and I know I'm being a little baby here (for those of you who keep reading my reccent posts), but it's been 10 whole days and I'm not better yet! I used to think it only took about a week, but now it seems like it's going on forever, no matter what I do to speed up to process! But if you guys tell me that it sometimes take you this long to get over it , then I'll at least feel better knowing it's not some like bad bad thing that will never go away! (I know, I'm a total pesamist now, but when I'm sick, it's hard not to wonder 'what if') So any thoughts or advice. I'm not really new to this, but like I said, it has only happened two times in the past 8 or 9 months or so, so when I get this bad again, I get mad/scared/frustrated..........Thanks guys...........
  6. haha thanks. Thanks for the tips on making it a little better. Can you eat real cheese? Or you added more soy cheese on it? Does soy cheese taste like regular cheese? I haven't tried it yet, but I'm excited because cheese used to by my favorite food, especially the mozeralla kind on pizzas. I'm from Chicago and Giordano's deep dish was my favorite. Talk about cheese!!!!!!!!!!!!!!!!!!!!!!!! MMMMMMMmmmmm
  7. Thanks Lisa. Yeah, I wonder what that 'syrupy' stuff could have been.....? See, this is when I get mad at myself because why didn't I ask the waitress? Or not eat it all together? I get so hungry I tell myself that I'm just being paronoid and I make up a reason to eat it anyway. It didn't taste like anything really.....I don't think... Anyway, you're the first person that understood that 'balloon' pressure, achy feeling before. It makes me sick just thinking about it. At least that part is over with. I can lay down now and nothing changes. I mean, that pressure is gone now. Thanks for helping.
  8. Hi everyone. YES, I used to have horrible back pains when I was eating gluten. Honestly, I had horrible EVERYTHING! I mean, everything ached. That's why I felt like I was dying! I really thought that my life was going to end in my early 20's. Anyway, the only time I get any kind of ache is when I eat something bad. Other than that, I am so 100% perfect. I'm not joking. If I stick to veggies, fruit, meat, fish and rice (and I also use the food combining method which helps), I don't get sick AT ALL! I don't take any supplements anymore, unless for a short while, like acidopholis when I get glutened or something, but going from feeling like you're dying to feeling like there isn't anything in this world world I CAN'T DO, it's an amazing feeling. The only thing that gets me down these days is that I have to live so restricted to feel this way. I can't drink with my friends anymore when we go out (because of the cystits, I get horrible kidney pains if I drink, and of course the regular UTI symptoms), I can't eat junk food, processed, I can't have coffee (IC), I can't have dairy of course, and then I get mad and 'even' and decide to 'treat' myself and end up over doing it and making myself sick. Of course not on gluten, raaarely dairy, and I get stomach problems for a few days. Not gluten sick of course, I would never ever intentionally do that to myself. Gabby, yes, I've had IC pretty much since I started puberty but the doctors never figured it out. HORRIBLE. But doing my own research, I figured it out and got myself tested. (just like with celiac disease-same thing). The doctor gave me Elmiron, but right before I was going to take it, I found something on the IC Network forum. A girl posted her sucess with food combining and IC. So, I tried it, and it works! So I never actually took the Elmiron. It's sitting in my med. cabinet and I told my doc. about the food combining and said I would call him if I was going to start the meds. (I'm actually really against mainstream medical meds. unless it is the last option available and all else has completely failed.) And yes, if I have gluten, it also kills my kidneys, bladder and urethra for about a week! It's weird because I never know if gluten is going to affect my IC or the digestive system. Sometimes it's both. One time, my fiance's Mom made a ham for our pre-Thanksgiving Dinner and she put bourban on it. We all thought that bourban just comes from corn, plus we thought it would burn off in the oven. Well, that night I got up to go to the bathroom and I tried to pee and nothing came out but a drip and I looked down and my stomach was a balloon and my whole lower back and kidneys were throbbing, not to mention it burned down there! Then for the next 2-3 days, I had all of those symptoms and bleeding.....abdominal cramps like I had my period (I didn't of course)......oh my gosh, that was one of the worst. Anyway, a few months later I decided to check on bourban, because I still didn't understand why that happened to me. Sure enough, bourban is only about 40% corn derived (not totally sure on the percentage, so don't quote me) and the other 60% usually comes from rye or barley!!! These days, I eat EVERYTHING PLAIN, COMPLETELY, unless I can season it myself.
  9. Lisa, YES, that is exactly what I have been feeling like. When I lay or sit, it makes things hurt a million times worse because whatever is touching my body puts pressure on it and I feel like my insides are going to rupture. I picture them really swelled up inside of me, like a balloon, and when I lay down, the balloons are being squeezed and might pop! It's horrible! Is that what happens when you loose a lot of liquids? Because I know that I was 'going' so much this weekend and I remember asking myself every 10 minutes (running to the bathroom) where is all of this liquid coming from??? Because it sounded like a huge bucket full every time! Gross, I know. Well, today I'm feeling a little better because yesterday all I had was applesauce and rice and TONS of water. Today I'm just going to have apple juice mixed with water and maybe rice for dinner.. ....and I do remember eating chicken out on Friday (this all started on Saturday), and I thought it was kind of weird. I told them not to put anything on it but when I was eating it, I thought it was kind of weird because there was like this brown syrupy liquid around it and the chicken was really soft. I didn't eat it all because it was so weird and usually I finish my plate completely. Anyway, that's what I thought it was at first. But it just felt so much like when I was eating gluten that I thought I had to be glutened from the cereal the week before. Then I wonder, why didn't I get sick from eating those two bowls of Wheat free (with Oats) cereal if they didn't say gluten free?
  10. Hi, I reccently bought Amy's gfdf pizza. (It has soy cheese). Well, I haven't had soy in a long time, but I'm thinking of trying it. I am just getting over a really bad glutening (havne't had one since the early summer before this) so I'm kinda fasting on juice, water, applesauce and rice now. But when I'm back to feeling like myself, I want to try the pizza to treat myself. I was just wondering what you all thought of it. Was it good? How is soy cheese? Have any of you gotten really sick from it? (like cross contamination from gluten kinda sick?). I really want to try it when my appetite is back and my body is healthy again, but after being so sick again, I'm a little apprehensive. Thanks!
  11. Thanks for your replies. Well, whatever it was, it feels just like gluten. But I guess it doesn't matter anymore. I'm still feeling completely crappy today. I don't have anymore days at work to take off and I have a test in child psych. tonight so I can't even sleep it off! But I'm just going back to the way that I eat when I feel my best. The reason I thought it might be that cereal was because when I was eating gluten every once in a while, it would usually occur about 4-5 days after I ate it. And doesn't food poisening usually go away within 72 hours? It's been 6 days now. It's just identical to when I have gluten...........oh well.
  12. Thanks for your replies. Yeah, this is really horrible. Now I am back to being extremely paranoid about what goes into my mouth (which I guess is a good thing). I need to make a goal to stay completely healthy for one whole year.....okay, 6 months, and not slip up once on my diet! That means, no taking risks. But it's totally worth it because here I am, feeling like I'm back to square one!
  13. Hi Spunky, Thanks for replying. It's crazy because I used to live every day like this! Now when it happens, I freak out because I know what it feels like to be normal. It's just so horrible and I want it to end. It's crazy because it really really really messes me up! I mean, it starts out kind of like nothing, and then it gets worse and worse and worse and before I know it, I'm back to feeling like I'm 100 years old all from ONE GLUTENING!!!!
  14. Can I ask what the symptoms that you all get when you eat gluten? I am going through a problem right now. It starts out as just some regular stomach problems, then turns to 'D' (horrible all day long for like 2 days), then 'C' and then I get horrible body aches and I feel like my insides are swelled up (and my stomach is a balloon). This stays for like 5-7 days after the 'D'. That's why I'm altering my diet. Today all I'm going to have is applesauce during the day and rice at night. Can you guys tell me what happens to you? Not to mention irritable, tired and horrible cravings after the initial glutening. The whole process is like 2 weeks. What happens to you? I just want to know if anyone has such long problems like me? And different stages? And body aches? And if when you touch your body, anywhere, it aches. Laying down and sitting down KILL ME!
  15.'s just weird because this is exactly how I feel when I get glutened. It's also weird because I don't have any other symptoms, like fever or anything. I just don't think it's the flu. No one else has ever had a really late reaction to gluten? GF4life, you said that your family ate the 'wheat free' cereal before and didn't get sick from the oats in them? I thought that anything that didn't say 'gluten free' and had oats in it pretty much means that it is completely contaminated with gluten grains. Maybe I'm wrong. I just hate feeling like this, and it's so bad that I get mad at myself for not knowing what I did to myself that made me feel like this. I am just positive it's not the flu. I don't know. I guess I just chalk it up to a BIG BIG BIG HIDDEN mistake and go back to my safe diet and not try anything new for a while..........