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brighteyes

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About brighteyes

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  1. Just a little curious, since we are on the topic, has anyone ever heard of someone being told they were a celiac but it turned out to be another condition? I was reading here and seems there are some other things that may pop up the same if I understand correctly: http://www.cureceliacdisease.org/archives/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease
  2. I hope I am doing this reply thing right. When you say follow up care, are you referring specifically to the thyroid? I did go in and ask for a thyroid test to see if it's okay. (I have been having really cold feet, dry skin, moods, etc.) He gave me a RX to take to a lab to get tested. I have been out with a cold and trying to catch up so I haven't been. I will try to go Monday. I wanted to research to make sure he wrote it properly because I hear you have to have certain tests done or you really don't know the status of your thyroid. But I don't know what those tests should be at this point. He tested my vitamins right after diagnosis but no follow up to that. I got diagnosed 37 too but I just had a baby in 2011. So I was hoping for one more. I am not sure how to begin on that path or if I would be best not to do that. Which would be sad for me. But I have a sense that I probably developed the disease in my late teens/early 20's with possible sensitivity as far back to elementary days. Hard to say how long one goes undiagnosed right if you don't have the typical signs?
  3. I had an endoscopy 12/2013 and was diagnosed as a Celiac. I guess I was a "classic case". I actually felt better on month 4 of gluten-free but have been having some issues again. So I am due for my follow up endoscopy. I feel like it's a test I am not ready for and could fail. What are they really looking for at this point? If I don't have a perfectly healed gut, what does that mean? No more babies? Also, I am trying to read through the site, but anyone up for telling me how long it took for the dry skin and leg bruising to stop? Maybe if you had hair loss, when did you get it back? (Biopsy diagnosed with T.E. 2010.) How about itchy skin? Did you heal your acid reflux? (Doc says I have two diseases, Acid Reflux and Celiac but how can Acid Reflux be a disease??? I thought it was a symptom.) Did you get pregnant? Healthy Babies? Thanks for your stories and any advice you have. (gluten-free, DF, SF, no oats since Jan 2014. No Gluten in body care except the occasional makeup. Not sure on cross contamination. Mixed household. Still learning.)