LadyLuckNoDoubt replied to LadyLuckNoDoubt's topic in Celiac Disease - DoctorsHi! Thanks for res Thanks for responding! I know that my testing options may be limited given that I will not, under any circumstances reintegrate gluten into my life. The consequences are far too painful. But my need for a doctor - and I am sorry that this was not clear - has more to do with the fact that I am still experiencing some symptoms. My gut it as my joints still get majorly inflamed. I don't know if maybe I am eating something contaminated or if I've developed a new allergy. There are so many unanswered questions that start with, but by no means end with the celiacs. What I am really looking for is a doctor who understands celiacs and who is able to help diagnose and treat the remaining symptoms.
LadyLuckNoDoubt posted a topic in Celiac Disease - DoctorsHi Friends! I have been gluten free for 2+ years but don't have a formal diagnosis because every time I go to the doctor, they want to test for everything else, or imply that maybe this is all in my head and I am so frustrated I could burst. When I eat gluten, I get all the symptoms up to and especially nausea, joint pain, anxiety, muscle weakness, headaches, and brain fog. I've been to a gastroenterologist, and allergist, and my GP, and they all sort of throw up their hands and say they don't know what is causing it. Yes, I have had skin tests for all sorts of allergies, nothing came up. No, I have not had blood tests or biopsies. Symptoms were pretty well controlled on gluten-free diet, but now I seem to be reacting to corn as well and since it is getting worse, I need to see someone. I live in San Francisco. Any suggestions? Thanks!