Hello everyone- I am hoping you all can give me some good feedback. I feel very alone in my school with regards to my son's celiac. I have a 81/2 year old in 3rd grade. He was diagnosed in the summer he turned 6 so this is his third year in school with celiac. This week I had an experience that I am still exptremey angry about and not sure what to do about. Our school offers three PTO sponsored lunches. This is a fundraiser so the the lunches are a choice. My son does not participate as the choices are Pizza, Chicekn fingers, and bagles. Fine, i can live with this. My non-gluten-free daughter participates. However, recently they changed Chicken Fingers to a subway sandwich. I know from my own experience with Subway, that they could make a w/o bread and put in a salad container. I asked my son if is was possible, would he be interested. He said yes b/s then I could send a roll and he could eat li everyone else.
I call the coodinator, who pointed had me call the peron overseaing it (who is also a friend). She said let me call Subway and check. She did and they were absolutely willing to do it. I thougt great. My son was thrilled. As I am sure you all know and experince, he cannon participate in almost all school related events. About a week or so later I get a call from the person who is in charge of fundraising who (btw another friend) tells me that this cannot be done (not b/c the place won't do it), but b/c they have been getting numerous request to make accomidations and if it sone for Sam then what about everyone else. I asked if these were people with allergies or health issues and she could not answer. She did not know. After going aroud around and around, the bottom line is that it is not being done b/f of the potential of what could happen ie parents who don't like cheese, or who keep kosher (I am jewish) or xyz call and say well you did it for one then why not my child. This person and I really hit a wall. In part b/c I beleive the issue has been clouded by her experince with other parents complainst. I realized that this was a losing batter, even after she gave in said just do it. I told her no because I was now being set up. In the end I told her I would not go any futher and that I just wanted to move on. Several people I spoken to have voiced how horrible they think it is the PTO would do this to him. I said to my friend that all they had to do was tell me there several health related request and it was too complicated, but they didn't. I pointed out that all of their choiced discriminate against Sam and that did not go over to well. I jut do not know what to do if anything. I feel like people just do not get it. even in his class this year, the sensitivity has been horrible. I could go above her, but I beleive all the people involved already voiced an opiion ad worst of all the two PTO presidents have children in my son's class. I am angry b/s they have taken the risk and given him an opporunity that he would not have otherwise.
Any thoughts or feedback would be amazing.