This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
it's funny but it's not. my dreams were always about chocolate cake. it was so good but i knew i was going to be sick so i couldn't really enjoy it. it tured into kind of nightmare and theni would wake up with relief that it was just a dream.
yea. i am so happy to hear stories like this. i have lost alot,but now that i am back onmy feet, itwould take a 20 story building to knock me down. i used to be lost on math, now i do large sums in my head,i am the director of a high end spa in denver co. andi am fast, making up for lost time. by the way the best iron i have found is carried at the cvs drug stores. it is called vit-ron-c. excellent. good luck everyone. more good stories please.
I have had to learn that even though I am about as nerotic as your reading about,
I am still going to get sick from time to time. Being the control freak that I am, I tried for years to refrain from getting sick. Unless we live in a gluten free bubble, we will probably have set backs. This forum helped me to see that. I am a little more relaxed about it and have given up on being the perfect celiac victim.
You will get it. Do what ever you can do for now; after awhile you won't even think about. It's kind of like
washing your hands before dinner. You just do it.
good luck! plenty of great people here any time of the day or night!
Jerseyangel, I feel exactly the way you do. I am angry for all of the time I have lost being sick. I get angry when I get sick accidently. I am so careful! That junk food is not any better for anyone than it is us. It is just more serious for us. This gives me a great excuse to stay away from it.
I live in Denver; I will check it out and let you know. Are you in N.Y.?
I live in Denver. Highlands ranch. I'm the director at the Zuri Salon and Spa in Cherry Creek. come in and say hi. (off tomorrow)
you would be the first fellow celiac besides my sister that have ever met!
My name is kim. I had never heard of Deby's until now. Maybe we could have lunch!
Jen, nothing sounds dumb.We are basically our own research group trying to figure it out on our own! Thank
god for this forum. At least I am past the point of considering myself insane. I talked to a woman at the research clinic in Maryland. She said that you can have celiac disease and it will have no effect on you at all: and then someone eles can be as sensitive to it that even touching can make them sick. We are chemicaly and genetically unique. There is no way establish any consistancy that we can rely on. We just have to do the best we can continue being so supportive of one another.
This may seem a little off the subject but not completly; My sister and I have decided that drinking potatoe
vodka relieves our stomach symptoms when we are sick. Her dr. told her that it was like antiseptic that killed the infection. It takes about one modest of shot (1/4 of a cup) it saves us from being in the bathroom all day. Anyone eles notice this kind of effect. If you are sick its a good excuse to drink. LOL!! I certainly cannot drink anything distilled from grain.
I agree withyou Berneses. I have found staying away from almost all starchy
foods is a must. The other method I use help with the fatique and leg pains
is an herbal supplement called Ginseng Energy Now. I get them at most
conveniant stores. I used to take a iron and vitamin c supplement called
Vitaron. I got those at the CVS drug stores in Jersey. Now that I am in Denver
I haven't been able to find them. They were better than the prescription iron the
Dr. had me on. The best thing for energy that saved me before my DX was metabolife
which you can't get anymore (not the original stuff). If anyone knows how you can
I would be indebted to you for life!
Jen we all know the feeling. I remember my best friend getting so mad at me because I
wouldn't go out with her as we had planned. Were you aware that all of these foods have
vinager which is usually a derivative of wheat?Heinz Ketchup, Kraft Mayo, LaChoy Soy Sauce,
Celiac is the direct effect of a hormone, we know the drastic mood swings that we experience, it only makes since that it would have an effect on something even more obviously physical.quote name='once and again' date='Dec 27 2005, 04:02 PM' post='86858']
I read another thread that questioned the connection between mono and celiac disease. I'm also wondering about celiac and menstrual/gynecological connections. Although I am well past menstruating, I remember the horrible cramps. I also had endometriosis (twice) and fibroid tumors.
Sammie, I have been on the diet for about 3 years consistently. I have noticed a huge change in my menstrual. As long as I continue to stay extremely well it is very light and only last for about 3 days.
Last winter while visiting my sister, I kept getting glutened. I had the worst menstual I have ever had and it lasted for about 8 days with extreme cramps. Now that I am fairly well again it is barely noticable.
The diet should help you tremendously!
ironically my intentions were good. One of the ones I bought was called "smooth move" which
actually worked but then I would swell up again even after being relieved. You are right. Stick
to the basics. Its pretty fresh for me right now. I stopped using the smooth move and bought more
with ginger in it that I loved. Not such a good idea. I geuss I will sell all of this tea on e-bay or something!
I DRINK TEA EVERY DAY AND HAVE QUITE A COLLECTION GOING. I ALSO GET NAUSEOUS ON AN EMPTY STOMACH AND ALWAYS WITH BLACK TEA. I RECENTLY BOUGHT ABOUT 5 DIFFERNT FLAVORS OF A TEA CALLED TRADITIONAL MEDICINALS. I WAS GETTING SICK BUT THE PACKAGE WASN'T CLEAR ABOUT THE INGREDIENTS SO I WENT ON THEIR WEBSITE AND TWO OF THERE PRODUCTS HAD GLUTEN IN THEM. IF THEY ARE MADE IN THE SAME FACILITY THEN "HOUSTON WE HAVE A PROBLEM". i HAVE NEVER HAD A PROBLEM WITH BIGLOW OR LIPTON. I HAVE HAD SOME ISSUES WITH CELESTIAL SEASONS. TZOA SEEMS TO BE O.K.
THERE IS NOTHING LIKE BEING WELL ONCE YOU GET THERE AND YOU WILL!! WHAT DOESN'T KILL US JUST MAKES US STRONGER. YES, THIS IS A DAILY BATTLE. YOU CAN'T GET AWAY FROM, FOR MORE THAN 4 HOURS BECAUSE THEN IT'S TIME TO EAT AGAIN! I AM STRUGGLING TODAY AND I HATE IT! WHAT A WASTED DAY. BUT I JUST KEEEP THINKING ABOUT BEING WELL AGAIN. IT ACTUALLY TOOK ME 4 YEARS TO MASTER THE GLUTEN THING! YOU CAN DO THIS. YOU HAVE SO MANY PEOPLE TO TURN TO THAT WANT TO HELP AND PREVENT ONE LESS PERSON FROM BEING SICK AND STRUGGLING WITH THIS DISEASE. UNTIL I FOUND THIS FORUM I FELT LIKE A FREAK. I THOUGHT I WAS CRAZY. JUST READING OTHER PEOPLE SAY THAT ALSO CAN'T HAVE SOY AND ETC. ETC. OH MY GOD I AM NOT CRAZY. SOMETIMES FASTING HELPS SPEED UP RECOVERY. IT'S HARD BECAUSE YOUR HUNGRY AND YOU JUST ATE A DOZEN EGGS. I HAVE SERIOUSLY CONSIDERED HAVING PART OF MY INTESTINES REMOVED JUST SO THERE ISN'T SO MUCH TO GET SICK. MY BOYFREIND INFORMED THAT THERE IS AN ENTIRE GLUTEN FREE AISLE IN THE GROCERY STORE. I SAID "YEA WERE TAKING OVER!" YOU CAN DO IT. WE ALL KNOW BEAUSE WE HAVE FELT YOUR PAIN AND HOPELESSNESS! JUST KEEP COMING BACK HERE FOR YOU DAILY STRENGTH. YOU MAY BE AS SENSITIVE AS I AM. I CANNOT EVEN TOUCH GLUTEN, SOMETIMES I THINK THE SMELL OF TOAST MAKES ME SICK.