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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

celiac mom

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  1. My son is also a freshman in college, but has been diagnosed with celiac for 4 years. He loves the tacquitos by Delimex- chicken- they are gluten free. We bought him a refrigerator with a bigger freezer knowing that he would need meals in case the dining hall was a bust. He also eats alot of nachos with corn tortilla chips and cheese. Amy's makes a very good rice pasta mac and cheese and also rice crust pizza, but she will need a bigger freezer for that. Good luck- it is tough in the beginning but does get easier.
  2. Boy does your situation sound just like mine four years ago. As a freshman in high school, my son was diagnosed a week after school started- same as your son, skinny, small (under 5 feet) and not yet in puberty. Just know that he will grow when he is not eating the gluten- mine gained 13 pounds a year after being gluten-free. Now he is 5 feet 10 inches, still skinny, but well into puberty. He will come around after feeling good without gluten. My son had no symptoms either except no growth and an occasional stomach ache but some wierd symptoms like eczema, and lots of mouth sores. He felt so much better when he started to gain weight. That is a real motivator, but it's hard to be a teen not eating pizza. He eats before he goes out and then can eat alot of snacks, chips and candy with his friends. He orders burgers when they eat pizza. It's hard I know as a mom, but hang in there!
  3. My son was diagnosed at 14, and it took a long time for him to get on the charts for his height. At 14, he was barely 5 feet 2 inches. After 3 years on the diet, at 17 he is 5 feet 10 inches (two inches taller than his dad!). He is still very thin, but has consistently gained weight since being on the diet. After the first 2 months on the diet, he only gained 2 pounds, but after 12 months, he gained 11 pounds. I think for everyone its different. His body first needs to heal, then the growth will happen. My son had no other symptons either, just falling off the growth chart. He had maybe an occasional stomach ache, and migrane headaches. But now if he is glutened, he reacts very strongly! It's hard to be patient, but growth will happen!
  4. Going To The Uk?

    Karin, Thank so much for the information. We are traveling to London in spring, 2008 with my celiac son. My daughter will be studying over there, so a spring break trip is being planned. I was going to ship some food ahead of time for her to store, but I wrote down the names of the grocery stores and places to eat that you suggested as well. Are things well marked in London for wheat and gluten? I assume they are more aware of the disease, so it may not be as tough as in the US. Any helpful suggestions would be appreciated! Thanks again. Mary Ellen
  5. "younger" People And Celiac

    Having a son with celiac whose diagnosis was just before entering high school at the age of 14, it was tough. He didn't have any stomach pains, bowel problems, just being very skinny and just not growing. When he heard that by not eating gluten, he would grow, that was all he needed. He will never be a line backer, but at least now that he is 17, he is the right height, albeit still pretty skinny. It has been tough, but when he has eaten gluten, he now has very strong reactions. It sure is a test for everyone when they are faced with such a change in eating habits!
  6. Mitch, My son was also pretty asymptomatic as far as physical reactions (no pain, diarhea etc) but he was very small for his age and the doctor thankfully did a series of tests and the rest is history. He is now 16, gaining weight and is the right height for his age (at 14 he was not even on the growth chart). He suffered from self-esteem stuff because of his size, so thankfully your son won't suffer that! AFter two years, he says he feels so much better, and I didn't know he ever felt bad. Neither did he, but when gluten is gone, he just has more energy. He does react now to gluten, so he stays far away from the stuff! Good luck-
  7. Dr. Fasano at the University of Maryland in Baltimore is a leading researcher and pediatric celiac specialist. We have not seen him as we have a few closer to where I live, but he runs a research center in Baltimore strictly for celiac patients. Let me know if you need more info. Good Luck, it can be a tough search.
  8. I am sure you already went to the beach, sorry for not getting back to you. Dumser's in on or around 45th street, Bay side. I usually buy the gluten free bread at Whole foods. It's their brand. I assume you live in or near Maryland and we have Whole foods (Montgomery County). They usually keep it in the freezer, so you may have to ask for it at the bakery. There are other kinds of bread that we have tried, but my son seems to like the bread at whole foods. Frankly, none of them are great, but in a pinch, it makes an okay sandwich, but works great for french toast. If it weren't so expensive, we all would eat it for french toast! Again, sorry for the late post. If you live in Montgomery County, I also have a few more stores I shop at for food. Let me know, I am glad to help.
  9. I do live in Maryland and vacationed at Bethany Beach with my celiac son. We do find that most resturants will have burgers and steak that he will eat, but we stay away from french fries as most places don't have dedicated fryers for just the fries. He has eaten at McDonalds and has never reacted to their fries. Wendy's is good for the baked potatoes in lieu of fries. We also ate at Dumser's in O.C. and he got the steak and baked potato and of course the ice cream! No reaction. There is also a gluten free bakery in the Fenwick Island shopping Center right over the Delaware/Maryland Border. It's called To Life and here is the website. Giant does sell some of the tinkyada pasta and if you shop at the Super Giant on route 54 they have a variety of gluten free foods. We just packed some of the bread he liked and safe snacks/popcorn etc. and he did fine. We did go to a few nicer resturants and he did get glutened with some potato dish we thought was okay- live and learn. Good luck and hope the weather is good for you and your family!
  10. No one in my family or my husband's family had ever heard of celiac before my son was diagnosed 2 years ago. Whenever we are having a family dinner, I usually bring something that I know my son can eat. I question my siblings about how the turkey (Thanksgiving and Christmas) is prepared and I make myself kind of a pain to them. After a few times, they understood. My in-laws are kind of clueless, so my son usually eats something at home before we go there. It makes my husband upset, but that's the way it is! People just don't get it, and they think because there is not an immediate life-threatening reaction that a celiac has, it's okay to "slip" every once in a while. It takes people time to adjust. I know when I first was faced with cooking with no gluten, I was so lost. I cried in the grocery store, until I found websites to help me. Whole foods is wonderful, but this site is the best for advice. All of our meals are gluten free if my son is home, and frankly it's actually lowered my cholestrol! I was tested negative for celiac, but it's a cool perk anyway. Just give it time, believe me it will get easier. Sometimes it's just best to eat at home or bring stuff you know your son can eat if you have a party to go to. That way you know you are protecting him, and that's really your ultimate goal is anyway. Good Luck, we have all been there!
  11. Wow, reading your post made me feel like I finally found someone that sounds just like me! My son was diagnosed at 14 (right before he started high school) and virtually had no symptons. He just slowed down in his growth. He started dropping off the charts slowly, and the doctor suggested that he run a battery of tests, one of the for celiac disease. I said sure, thinking that I was skinny and my husband was skinny and short for a while before we both hit a growth spurt. Well, after positve test results and a biopsy, sure enough, he has celiac disease. My son just turned 16 and has been growing like a weed. He finally hit 105 pounds (2 years ago at 14 he was 71 pounds) and he is about 5 feet 7 inches. A giant compared to where he was 2 years ago (under 5 feet). He is still small and skinny for his age, but at least he isn't the shortest anymore. He had no symptoms other than an occasional stomache and migrane (about 2-3 a year) and lots of mouth sores. Since he has been gluten free, he feels better and when he now eats gluten, it's an immediate reaction (usually vomiting). I think that just the fact that he will grow if he doesn't eat gluten was incentive enough for him. But now that he never eats it, if he does, he immediately reacts. If you have any questions or just want to vent, please do. Believe me, we have all been there. It's tough to raise a gluten free teen!
  12. I also have a picky eater, a 15 year old son! He usually does pack a corn tortilla with chicken and cheese. Whole Foods (if you are near the Washington DC area, I don't know if they are a national chain) has a great selection of gluten free breads that are really quite good. Foods by George has great blueberry muffins that my son just loves. In the beginning, he was real resistant. We found out he had celiac right when he started high school so I know how you feel! But it does get easier for them, as soon as they start feeling better, things seem to settle down. He also takes a gluten free multi-vitamin that makes me feel better about him getting the nutrients.
  13. This is my first post and I guess I am a little late in this discussion, but my catholic church has started to dedicate a cup of wine for celiacs to be drank before anyone else does. It has made my son (15 yr old celiac) feel much more a part of the mass as he wasn't taking communion. I am not sure why the change has come about, but I for one am grateful to our parish. Maybe the church is starting to move in the right direction? There's always hope.