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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    teebs in WV

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    About teebs in WV

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    • Birthday 05/13/2006

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    • Gender Female
    • Location West Virginia

    teebs in WV's Activity

    1. teebs in WV added a post in a topic Are There Always Blisters?   

      If I were you I would ask for another biopsy. Even though you are gluten-free, it can take a long time for it to get completely out of your skin (as you mentioned). I was diagnosed via skin biopsy in Oct. 2005, immediately began gluten-free diet and started dapsone at the same time. I have tried many times to go off of dapsone but I still break out after a few days.
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    2. teebs in WV added a post in a topic Anyone Diagnosed With Primiary Biliary Cirrhosis (pbc)?   

      Thanks Dee. I found the PBCers website and actually found a doctor that is in the same GI group that I go to. I am going to ask to be referred to him. I have never been tested for any vitamin deficiences or osteoporisis. I asked once and was told I was too young to worry about it (AAAAAAAAAAAHHH). I have done so much research on my own on PBC and based on what I have read I definitely need to find a specialist that has seen this disease before.

      I am curious - have you had the itching that is common with PBC? I have been going crazy itching again and have blamed it on Celiac Disease - until I found out a few months ago that it is very common with PBC. My hands and feet have been itching like crazy, and for the past few days I have itched everywhere - to the point I am ready to lose my mind. I know there is medication they can give to relieve the PBC associated itching, but of course my GI didn't give me that. He did give me Ursodiol and I started taking it on the 2nd.

      I am so glad that I have someone else that I can talk to about this!
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    3. teebs in WV added a post in a topic Chex Mix   

      I made a huge batch for Christmas. My great-aunt always made Chex Mix for Christmas (her own special concoction) so it has been a family tradition for years. I took over the duty when she passed away in 1993. Last Christmas - my first being gluten-free - I didn't make it. This year, I decided I would try and bought the corn and rice crunch 'ems that everyone else has mentioned. I added peanuts, glutino pretzels, barbecue seasoning (dried powder), and a little sugar (my aunt always used Life cereal and that was my favorite part - I always used to pick out the Life and just eat that!). EVERYONE that ate the mix that I made this year loved it and had no idea that it was gluten-free. It was my greatest accomplishment this Christmas season and it felt so good to be able to revive an old tradition.
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    4. teebs in WV added a post in a topic Dermatologist   

      Based on my personal experience, a knowledgeable dermatologist is a must. I was very lucky that my derm took one look at me and was very certain that I had DH before he even did the biopsy. I had no GI symptoms at all - just the itchy blisters.

      I suggest searching the internet for dermatitis herpetiformis + dermatologist + your state and see if you can find one that way. Or if you provide the city or state someone may be able to offer more suggestions. Hope this helps.
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    5. teebs in WV added a post in a topic Grand Cayman   

      Would you mind sharing the name of the resort/hotel where you stayed?


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    6. teebs in WV added a post in a topic Symmetry? And Biopsy Location   

      I honestly do not know why - that is what I have read in my personal research. Someone else on here may know.

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    7. teebs in WV added a post in a topic Symmetry? And Biopsy Location   

      Everyone is different - I am sure someone out there has DH that is not symmetrical - but it typically is (mine is). The biopsy needs to be beside a lesion - not an actual lesion. My biopsy was taken right beside one on my elbow and came back positive.

      Good luck - I hope you figure out what your issue is. Although if the gluten-free diet has helped you I would definitely stick with it! It really isn't that bad after you get used to it - I try to look at it like "it could be worse".
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    8. teebs in WV added a post in a topic Happy Birthday Judy!   

      Happy Birthday Judy - best wishes for a great day (what's left of it anyway!)

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    9. teebs in WV added a post in a topic Celiac Segment On Discovery Health   

      Thanks for posting. I always like to watch anything on TV that mentions Celiac Disease - let alone a whole 20 minutes!


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    10. teebs in WV added a post in a topic Anyone Diagnosed With Primiary Biliary Cirrhosis (pbc)?   


      Thanks for your input. I had the biopsy and the diagnosis came back as Primary Biliary Cirrhosis. I have been gluten-free for over a year and my enzymes kept rising, so it doesn't sound like what worked for you is going to work for me. I was given Ursodiol 300 mgs 3 times a day but haven't started yet because I got the flu. I didn't want to take it until I got rid of this bug.

      Do you belong to an organization for PBC? I don't know where to go from here. I am not sure that my GI has dealt with this before and I am thinking of asking for a referral. Any advice would be appreciated!

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    11. teebs in WV added a post in a topic Christmas   

      Silver Bells is my all-time favorite - although there many very close runners-up. I listen to Christmas music beginning on Thanksgiving and don't stop until New Year's Day. We have a local radio station that starts playing Christmas music the Friday after Thanksgiving 24/7 through Christmas. We have another station that plays it all day every weekend between Thanksgiving and Christmas.

      I love Brad Paisley and bought his new Christmas album. There is a song on there that he wrote when he was a little boy. At the age of 13 he performed this song at Jamboree USA at the Capitol Music Hall in Wheeling, WV. The Jamboree used to be broadcast live every Saturday night on WWVA, but I don't know if they still do this. Anyway, on the album the song begins with the recording of his performance at age 13, and then switches to Brad singing it today. It gives me goosebumps every time - it is a traditional Christmas song about the the birth of Jesus and it so sweet.

      Sorry for such a long answer to a simple question!

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    12. teebs in WV added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Raisin Rack In Westerville, Ohio (columbus Area)
      For those of you in the Columbus area (and Mamaw over in PA), I was at the new Raisin Rack store yesterday. The shelves are not completely stocked yet - there were boxes in the aisles with employees working feverishly to complete the task. I wiped out some of the Tinkyada they had on the shelf (they had more in boxes though) . It feels much more spacious than the old location across the road.

      The best part was the deli - I didn't check it out the last time we were at the old store. My fiancee was hungry from not eating anything all day (he was at the hospital with me) and while I was loading my cart with Kinni-toos, Tinkyada and Ener-G Papa's Loaf, he went to the deli to get a sandwich for himself. He tracked me down - so excited - that they would make a sandwich for me on gluten-free bread! This was the first time that I have ever eaten a gluten-free sandwich away from home! Wow - what a feeling! It was pretty good too!

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    13. teebs in WV added a post in a topic gluten-free Corn Flakes   

      Nature's Path are really good, but all of the places that I used to buy them have stopped carrying them. I am glad you guys posted online places to buy them. Thanks!

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    14. teebs in WV added a post in a topic gluten-free Pink Girly-girl Bday Cake... Yum!   

      ooooooooh - this sounds good! I always loved pink cakes! Thanks for sharing.

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    15. teebs in WV added a post in a topic For Mac And Cheese Lovers...(rice&cheese)   

      I made a really easy mac n cheese last week. I just cooked Tinkyada spirals as directed. While it was draining i cubed some velveeta, added a tablespoon (or so) of margarine, and when it was just about melted added a little milk. Then I dumped the pasta back in - it was AWESOME! It was so creamy - better than any gluten-filled mac n cheese that I ever had!
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