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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About taylor!!

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  • Birthday January 19

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  • Gender Female
  • Location tallahassee
  1. Hair Loss!

    Hey there! So I was diagnosed when I was really young, then in high school I kind of started sneaking wheat sometimes. (in my defense, I didn't remember the really bad side effects of gluten because I was so young when I was one judge me (: ). Once I got to college, i stopped sneaking gluten but I also started getting really fatigued and my hair started thinning a lot and I lost a lot of weight. The doctors checked my thyroid and ran lots of tests and eventually decided to do another endoscopy, which I hadnt had since I was 18 months old. They told me I had a little damage to my small intestine, and wanted to make sure I wasnt cheating. I was a little offended by this, since I don't really know any life other than a gluten free one, but decided I had kind of slacked off from how I lived when I was younger. After that I went through all my personal care items, shampoos, conditioners, makeup...and kind of tested myself by not going out to eat at all and avoiding places that had a lot of gluten in the air (bakeries, the kitchen when my roommates were baking, etc.). Almost all of my symptoms went away after changing that stuff within about a month. The conclusion was that the way I reacted to being glutened had sort of..hmm..morphed? Whether it was the stress of college or the new environment, something triggered a change in me that made me start reacting differently to gluten. When I was younger I would throw up or get diarrhea, and now, I get massive migraines and extremely exhausted. My hairloss got much better about a month after going through all of my products and watching my food extra carefully, and now I find that I'm much more sensitive to bakeries and just being around places with flour in the air. I really don't think working in a gluten-filled bakery is a good idea,but then I know that some people are ok being in that kind of environment. The suggestion to explore gluten free baking is a great idea...I would definitely enjoy some new baked goods on the market . Good luck!,
  2. Hey there! I have lived with roommates for the past 5 years and have never had any problems with cross contamination or anything like that. I explained the situation to them and just always had a mutual understanding with all of them that we would clearly label what food is ours and clean dishes thoroughly. I had a seperate toaster that i used and we were all good about keeping the stove and oven clean. The only issues I ever had was if they decided to bake. The flour in the air bothered me, so if they were ever baking cookies or anything and I wasn't home they would just shoot me a text and let me know so I didn't walk into a kitchen covered in flour. Basically it depends on how comfortable you feel living in an environment like that and how willing you both are to make sure your foods are separate and the kitchen is clean. I think if she understands the diet and is willing to work with you, and you think you can live with her, go for it. There are a lot of great benefits to having a roommate, especially in the first few years of college. I still talk to some of my past roommates and don't know how I would have survived college without them. Hope that helps a little
  3. Anyone In Florida?

    Hey Christy! I live in Tallahassee too! Welcome
  4. College Search...

    Hey there When I came to FSU the school gave me the option of living in an apartment style dorm with upperclassmen so that I had a kitchen, or living in a regular dorm and working with the kitchen staff to figure out meals for each week. I opted to live off campus in an apartment with someone I already knew up at college though. One thing I would definitely suggest is to check with the student disability resource center on campus. They can help you with any questions and put you in contact with the right people. On top of that, they are the ones (at FSU anyway) who provide documentation to your teachers of your Celiac Disease so that if you miss a class because of something related to celiac disease, you are excused. Another thing I would definitely consider when looking into specific colleges is to make sure there are places to shop for gluten free food near by. You don't want to get there and then realize that you are going to have to have your parents ship you food every month. Hope your search goes well!! Taylor
  5. College Life

    Hey there. I've had Celiac basically my whole life..and am currently in my 3rd year of college. I agree with everything everyone has said above me. I actually found it easier to manage my food when I moved away from home, because I started preparing everything myself (not that my family wasn't a great support and watched out for me) I've lived in an apartment off campus since freshmen year, because the options I was given to help accommodate me by the university were not very appealing at all. 1. I would definitely talk to your disabilities center, they can provide you with documentation for absences and tell you what your dining options are. 2. Make sure your roommates are aware of the situation. You don't want them accidentally eating your crazy expensive food. If you are using tupperware or whatever in a combined fridge, make sure it is labeled with your name so they know which container of leftovers is theirs 3. Shopping for your own food is not nearly as complicated as it used to be, and even in the past year it has improved dramatically. A lot of products can be found in typical grocery stores and even some Walmarts now have an decent selection of gluten free products. 4. Many restaurants have gluten free menu's now..look online, call ahead, or just ask when you get there and they should be able to help you out. 5. Find a local GI if you are moving far from home. I don't go to the doctors often for Celiac, in fact, until last year it had been a good 9-10 years since I had gone, so when I did have an issue, it took a while trying to locate old GI records and getting them transferred to the proper people. Those are the biggest ones I can think of off the top of my head. Hope everyone's having a great semester!
  6. Anyone In Florida?

    Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years don't worry it gets better. If you have any questions feel free to ask.
  7. Hey there, I had an endoscopy at 1.5 and I turned out OK Granted, 18 years ago they didn't have all the fancy blood test, stool test etc. So I'm not really sure what my parents would have done if I was 1.5 and being diagnosed right now. Like everyone else said, its really up to you and your husband as the parents, everyone's family has different needs. I know from a child's prospective, I am glad my parents got a definite diagnosis while I was young. I hear all the time about how horrible it must be to have never tried pizza or cake or bread, but I feel like those who have experienced all those foods for a long time have a much harder time dealing with getting rid of them. If the endoscopy did give you a definite result of celiac, she would be learning from a young age what foods she can and cannot eat, and like you said, would know that those food would make her sick, not just that you did not want her to eat them. I knew by the time kindergarden rolled around that I needed to double check all foods with an adult that knew about my food problems and could rattle off "I have celiac disease, I can eat wheat, oats, barely or rye" to anyone that would listen to me. I also know that if I didn't have that definite diagnosis, when middle school and high school rolled around, I probably would have started eating gluten on my own, knowing that I didn't "officially" have celiac. Since that's when kids start eating out with friends and being in more social settings, I struggled just because I don't remember being sick or all of the tests and hospital visits. The disease didn't seem like it was a real problem that I had, because I had never really experienced the effects of it. If that makes sense... It was the reminder from my parents that this was a real, diagnosed condition as well as the consequences I felt the few times I did cheat that helped me stick to the diet. If I am honest with myself I know I would have rebelled and cheated way more often if I did not know for certain that I had it.
  8. Celiacs In College

    hey! I haven't been on here in a couple months, but I thought I'd put my two cents in.. I go to Florida State, and when I first went to move up here the school gave me two options.. 1. they would work with me in the dining halls to cook my food and try and give me options, but if I wanted anything "special" I would need to meet with someone once a week and let them know what I wanted to eat on what days of the week and in what dining hall. 2. I could put in a special request to get put in one of the apartment style dorms that are usually reserved for upperclassmen. I didn't want to have to plan my meals out so far in advance or live with juniors and seniors as a freshman, so I ended up just getting an apartment off campus. I should probably mention that I've had Celiac for 18 years I know how to shop/cook/deal with it, its always been life.. So..I guess my way of dealing with the dining halls is just to avoid them all together. On another note...I have friends at UF who called me all excited last week saying that they had gluten free bread in one of the dining halls? I guess that's a good sign for the future....although they said it was one of the worst things they had ever tasted in their entire life, haha. Happy eating!
  9. Tallahassee/north Florida

    Actually...YES!! its called Tallahassee was just started..everyone go join
  10. We are having a support group meeting for Tallahassee and the surrounding area on Tuesday June 24th at 6:30pm. It will be at the office of Dr John Ness. 616 Universal Dr. Directions: Heading North on Monroe St. Take a Left at Chick-fl-a near the DQ. His office is the second building on the right. It is a short street. You can't miss it. If you have any questions feel free to ask! (sorry this is really short notice, hopefully we will get more established and have a set day!)
  11. Tallahassee/north Florida

    We are having a support group meeting for Tallahassee and the surrounding area on Tuesday June 24th at 6:30pm. It will be at the office of Dr John Ness. 616 Universal Dr. Directions: Heading North on Monroe St. Take a Left at Chick-fl-a near the DQ. His office is the second building on the right. It is a short street. You can't miss it. If you have any questions feel free to ask! (sorry this is really short notice, hopefully we will get more established and have a set day!)
  12. Tallahassee/north Florida

    im here!! and i haven't really heard anything, but i would love to start doing something..
  13. most definitely!! I've used celiac and/or gluten-free diets for projects since elementary school, its fabulous! science projects, speeches, autobiographies, research papers, you can really use it for almost anything...i encourage everyone on this board thats in school to totally use it to their advantage. Not only is there a slim chance that anyone will have the same topic as you, but most of the time you can get A's for thinking "outside the box" and it gets the word out there that celiac disease even exist.
  14. Hey there! im not a dietician, and im actually changing my major...i decided after a year that i was not cut out for whole classes on metabolism and organic chemistry. haha.. buut, i am a dietetics major as of right now, and have taken all of my intro courses that talk about the educational requirements and opportunities and what not. They vary slightly from state to state though, and Florida is one of the stricter states as far as requirements go, so depending on what state you are from it all depends. To be a Registered Dietician (RD) you have to have at least a bachelors in Nutrition/Dietetics, complete an internship, and pass the national board exam. A nutritionist differs from a dietician because there is no national standard for a "nutritionist" i dont really know much about nutritionist, other than in my dietetics program at FSU they are sort of frowned upon and there are actually laws being put into action in florida to make sure people who claim to be nutritionist are actually qualified to call themselves that (no offense to those who might see this if you are a nutritionist.) RD's have to update their registration every few years, and also have to be licensed for the state they are practicing in. you can also be specialized in something such as diabetes, obesity, children, even celiac disease There are a ton of career opportunities depending on your qualifications, you can work anywhere from schools, to hospitals, to different businesses to owning a private practice. here is the link to FSU college of health science booklet on the dietetics program that gives a pretty good look at all of it.,%202006.pdf hope that helps some!
  15. hey! there are a ton of people on here that are in college. i just finished my first year and it was sort of a struggle. ive been diagnosed since i was a year old so all of my friends back home pretty much knew how to deal with it. I have an apartment and my roommates are both fairly supportive and what not, i just sort of keep my own little area of food and they know to wipe the counters after they cook and not to use my butter and peanut butter and stuff like that. I have found that it helps me to be able to bake something i can eat too, so we can all bake and what not together and im not avoiding the kitchen all the time. As far as your friends making fun of you, that can definitely be hard, especially if you are newly diagnosed, i'll be honest and say that it doesn't get much better, but you just sort of have to learn to laugh with them, which takes time, and a lot of patience, but usually works. i have gone off on a couple friends though that felt the need to point and laugh every time they ate something with gluten in it. I just explain to them semi-nicely that it can make me very sick, even if they have never seen it and that i don't think it is really all that much of a laughing matter. But 99% of the time, i just try and laugh it off. and the beer think is completely annoying, i'm not a big drinker, but it is still so annoying, especially when they are already drunk to begin with, haha. Definitely check out the disabilities act thing, it can come in handy i have found. and i would look into the local support group, even if it is not something that really interest you, it would be good to look into to find local stores and stuff to buy different products..which leads me to my last thing.. there are pleeeeenty of options for food other than rice, you do have to change your shopping some, and shopping might take longer, but with some trial and error, you can find awesome products that will expand your eating world again, haha. if you have any questions or anything feel free to ask!