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nathela added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCeilac Symptoms Without The Ceilac Gene?Hello everybody!
Last July, I had a positive blood test for Ceilac(Igg, Iga).
After 10 years of struggle with my health, I finally got an answer.
I went gluten-free and followed the "Specaific Carbohydrate Diet"( by Elaine Gottschale, everybody should read her, her experience saved me so much life, thanks to her, I've become belly pain free).
I had "celiac attacks" for another 8 months. They are a mix of extreme exhaustion with brain fog, like if I have an unbearable weight on my chest.
The gluten-free diet has changed a lot for me. But, I have not found a normal life yet. Stress is like the main factor of my attacks. Sometimes, I know that I have been contaminated. Though, I am not sure from where.
I still get sick with flu or flu-like virus, very easily.
The revolution, is that I have no more depressive thoughts. Depression is OUT of my life. I am a new spirit. Or, lets say that I found back my spirit. It feels GOOD. Thank you my GI, thank you God. Or vice versa? Who Knows?
Last month, I did a genetic blood test. It came back NEGATIVE!
And, my mother did hers, it came back POSITIVE!
My questions are:
-is there any of you who has been having a similar recovery? The stress factor still bugs me.
-how do you explain the fact that I have the symptoms of ceilac without the gene and my mother has no symptoms with having the gene?
-do you think that there might be another gene unrevealed yet?
Thank you so much for your insight, lots of hugs and smiles for everybody, Nathela.
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nathela added a topic in Gluten-Free Foods, Products, Shopping & MedicationsMake-upHi Girls!
I am paranoid with make-up... Since I have been told that I am ceilac, I've stopped wearing any make-up. Ingredients are not listed on any of my make-up, I bougth them like 2 years ago. Could you advice me and letting me know if there is any particular products that you like? It will save me so much time. I contacted a lot of the companies, but they say that it will take them 2 to 4 weeks to answer me. I want to be pretty again!
Lots of hugs for those who need it, cheers... Nathela.
- 2 replies
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nathela added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsA Lab Called York, I Believe!Hey Guys! I would like to do the food allergy test from York Lab. I got to know about it in this forum. But, I can not fingd the website of YORK Lab. Is there anybody who could help me? Thank you so much, Nathela.
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nathela added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)What Is The Purpose Of A Biopsy?
Last week, I was feelig so bad. MY GI wanted me to re-introduce gluten for an endoscopy. I had been so much in pain while I had gluten. I did not know what to think. Then, Peter. wrote a wonderful response to my post, with a lot of medical details.
We made the decision with my husband that I would not re-introduce gluten if I have a biospy. My blood test is igg 16 and iga 8. I am on a gluten-free diet for the last 3 months.
Now, the question is to know: do I need a biopsy? How important is to know the statut of the small intestine to prevent lymphoma, cancer.....????
I have been more tired since I went gluten-free. I have only 20% of my energy. Some days, I can work for 3, 4 hours. Other days, I can not move, washing my hair feels like running 50 mile marathon.
Of course, I am surprised to feel weaker than before. The improvement is that my pain is almost gone. (colon pain). But, I am still worried. This loss of energy, is so weird. I won't ever eat gluten again. I have the conviction that I am ceilac. Do you think that the Enterolab tests for genes, malabsortion and some York test for food allergies are enough to get better and to have a clear full understanding of the ceilac sprue? Thank you so much for all your support, this forum has changed my life!!!
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nathela added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsDo I Need To Re-introduce Gluten For An Endoscopy When My Iga, Igg Are Still Abnornal?I feel awful! My GI tells me that I HAVE to eat gluten again if I want to have a clear understanding of my biopsy. I started to be on gluten-free diet three months ago. My igg, iga are still abnormal: 16 and 8.
Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!
What do we look for? A confirmation of celiac disease? Or, a history? I am really confused..
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