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insomyr added a topic in Celiac Disease - Coping WithTired Of WaitingThis is my first post here so forgive me if this topic is a repeat, as I'm nearly certain that it will be.
I was diagnosed with Celiac disease about 3 months ago after initially being told that I had intestinal lymphoma. Fortunately it's not lymphoma but I'm not thrilled about having Celiac either.
At any rate, I have made my best effort to adhere to the diet 100 percent since day one and have made only a few mistakes (Thanksgiving, etc).
Following my initial diagnosis back in October, I had a follow-up endoscopy 7 weeks later to check the progress and the biopsy results were identical - showing absolutely no improvement from the initial biopsy (and the blood panel, whereas 7.0 or lower is normal and above 7 is positive for Celiac, I was at 29.2).
Furthermore, my bathroom trips are no less frequent and no less unpleasant than they were a few months ago and, to some degree, on some days, it seems to be worse.
I don't get as noticeably sick as I used to after a meal but it seems like the other physiological results remain the same. I've now cut out dairy to determine whether or not it's a lactose intolerance as well but that doesn't seem to be making much of a difference.
Another thing that hasn't improved which I've been told should have improved 2-3 weeks after starting the diet is my energy. I still have none.
I suppose that I'm just curious as to whether or not anyone else has had a similar experience. My doctor thinks that either (A) my body is not responding to the diet or ( B ) I also have Crohn's disease (colonoscopy upcoming on 01-21 ... HOORAY!).
I'm 28 and I'm already tired of this.
Any information would be helpful (as long as you don't say, "Check what you're eating to make sure that it's gluten free," because I've done that already... EXTENSIVELY.)
Thanks in advance.
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