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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About insomyr

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    • Birthday 11/18/1977

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    1. insomyr added a post in a topic Tired Of Waiting   

      A&W products are gluten free. I've checked several sites and every site that mentions A&W claims that their root beer is gluten-free (some lists of gluten-free products don't include A&W but all of the sites that do mention A&W state that their products are all gluten-free). (about 3/4 down the page)

      I know that no single list is exhaustive or to be considered 100 percent reliable but I have seen the same information on other lists.
      Thanks again everyone for throwing your 2 cents in. I'm confident that I'll get to where I'm supposed to be - it just sounds like my doctor is either too optimistic or perhaps not well versed in the recovery process with Celiac.
      • 0
    2. insomyr added a post in a topic Tired Of Waiting   

      I appreciate the feedback. Maybe I am still coming into contact somehow. I've completely eliminated restaurants so that's not it but I hadn't heard about the toothpaste so I'll take a look. As far as everything else goes, I've dedicated myself entirely to getting better so I've only been eating things that are specifically labeled "Gluten Free" with a couple of exceptions which I have researched on the net to determine that they are as well.

      Diet staples:

      Corn Tortillas (La Banderita) + Hillshire Farms Deli Select Smoked or Oven Roasted Turkey (I eliminated the cream cheese because I kept getting sick)

      Planters Honey Roasted Peanuts

      Garden of Eatin Pico De Gallo chips

      Mi Del gluten-free Choc Chip/Pecan Sandies cookies

      Eggs and bacon for breakfast (Hormel or Jewel brand)

      Diet Coke, water, A&W Diet Cream Soda, Diet Sierra Mist, A&W Diet Root Beer

      Bananas, Apples, Oranges

      Colgate regular toothpaste

      That's the list of stuff that I would say that I ingest almost daily. If anything there stands out to anyone, I'd love to know. Otherwise I'll just try to be a bit more patient and let the healing process continue.
      Thanks again for the input.
      • 0
    3. insomyr added a topic in Celiac Disease - Coping With   

      Tired Of Waiting
      This is my first post here so forgive me if this topic is a repeat, as I'm nearly certain that it will be.
      I was diagnosed with Celiac disease about 3 months ago after initially being told that I had intestinal lymphoma. Fortunately it's not lymphoma but I'm not thrilled about having Celiac either.
      At any rate, I have made my best effort to adhere to the diet 100 percent since day one and have made only a few mistakes (Thanksgiving, etc).
      Following my initial diagnosis back in October, I had a follow-up endoscopy 7 weeks later to check the progress and the biopsy results were identical - showing absolutely no improvement from the initial biopsy (and the blood panel, whereas 7.0 or lower is normal and above 7 is positive for Celiac, I was at 29.2).
      Furthermore, my bathroom trips are no less frequent and no less unpleasant than they were a few months ago and, to some degree, on some days, it seems to be worse.
      I don't get as noticeably sick as I used to after a meal but it seems like the other physiological results remain the same. I've now cut out dairy to determine whether or not it's a lactose intolerance as well but that doesn't seem to be making much of a difference.
      Another thing that hasn't improved which I've been told should have improved 2-3 weeks after starting the diet is my energy. I still have none.
      I suppose that I'm just curious as to whether or not anyone else has had a similar experience. My doctor thinks that either (A) my body is not responding to the diet or ( B ) I also have Crohn's disease (colonoscopy upcoming on 01-21 ... HOORAY!).
      I'm 28 and I'm already tired of this.
      Any information would be helpful (as long as you don't say, "Check what you're eating to make sure that it's gluten free," because I've done that already... EXTENSIVELY.)
      Thanks in advance.
      • 16 replies

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