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spk1954

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About spk1954

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  1. Hi I live in Australia and we can give blood with celiac disease. It is mainly infectious things they worry about, like aids, hepatitis, etc. I am on the Bone Marrow Registry but have since found out they don't take celiacs if they come up as a match. Not sure why.............don't think you could give a person celiac disease by giving them blood...........surely! Anyone know if that is a likely scenario? Shaz
  2. From what I gather Gluten Ataxia is one manifestation of celiac disease. Evidently a lot of people present to doctors with no intestinal problems at all. They invariably have remittance of symptoms with a gluten free diet. I guess it is like Dermetitis Herpetiformus. With one the antibodies appear in the skin lesions (on testing the blisters are positive for antibodies), with this they go to the brain and cause the ataxia. I have done a fair bit of research on celiac disease, its manifestations and complications, but what suprises me is the number of other disorders that seem to have very similar symptoms and that aren't responding to any other types of treatment. A lot of celiac sites mention the neurological manifestations of celiac disease, including epilepsy from bi-lateral occipital calcifications in the brain. Facinating stuff! I am positive a lot more things will eventually turn out to be gluten antibody related when they do more research. As they can't get wheat out of the picture (heavens, the country runs on wheat!) they will just have to come up with a vaccine/cure whatever. The more people that are diagnosed the better, not for them, but for everyone else eventually, as they will be forced to do something drastic to come up with a solution. Otherwise, half the population of Australia, and the world probably, will be on diets that don't contain wheat, rye or barley. So it isn't a new type of celiac, just a manifestation. By the way, did they test for MS, vertigo etc before they said you had gluten ataxia? Did they put you on a gluten free diet? Have you been tested for celiac disease?