This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I've just made a discovery... After years of weird cycles of having unbelievable multiple food allergies, going on elimination diets, achieving a state of having good health to a point and overcoming the "food allergies," I believed that I had celiac sprue because I for sure could not tolerate wheat and when I went on a gluten-free diet, all my symptoms vastly improved. I had also fit the profile with all of my other health problems. I was tested for celiac sprue, but since I was on a gluten-free diet for several months prior to these tests, they always came back negative.
Anyways, fast forward to the present. I've been gluten-free for several years now, but my symptoms have turned for the worst and shouldn't they be getting better with a gluten-free diet, eh???? And I am developing all those d*mn food allergies again to the weirdest things, like tomatoes, potatoes, cherries, pears, apples, etc. Then I had an episode of not being able to breathe, had to dial 911, spent a night at the hospital, returned home with an even worse outbreak of hives (I was and still am breaking out in hives everyday), I've discovered that I am severely allergic to latex, and that wheat has a similar protein make-up as latex - therefore, the reason I cannot tolerate wheat. And all these other foods also share the same protein makeup with latex, as well.
So, I just thought I'd send out an FYI. If you are following a gluten-free diet, have never really been confirmed as having celiac sprue, and your symptoms are not getting any better - maybe you have a latex allergy instead.
I would much rather have celiac sprue than a latex allergy. This is plain old crazy - had to throw away all my underwear, socks, anything with spandex, elastic or lycra.... Can it get any worse than this???
I was going to add, too, to make sure you have your own colander... (I did get glutened using a colander I had cleaned after draining wheat pasta - it's just impossible to clean all those little holes.)
And I designate one cutting board as the one that wheat breads are sliced on, just so that I don't get confused, and start slicing things on a cutting board full of bread crumbs...
I, too, share a kitchen with a gluten, my DH. In addition to having my own toaster, I have my own stick of butter, too. I mark it by writing the first letter of my name on it, or I buy a fancy butter all for meself I also insist that all jams, condiments, etc. be extracted out of their jars with a clean little metal spoons, so there are no bread-encrusted knives leaving behind bread crumbs in jars... I once got a terrible allergic reaction when I visited my parents and there was peanut butter residue in the jelly jar (I'm allergic to peanuts...)
I wash by hand and have not had a problem. I just scrub really really well and be sure to rinse really really well, and I wipe down all counters. I always rinse dishes really well, too, before washing so that most of the dirriness on the dishes are just about gone really before I actually wash them, and I soak pots overnight if they're too encrusted.
I do take special precaution with pots that have been used to cook oatmeal. I soak, scour and be sure to rinse all the oaty water down the drain and then wash.
I used to cook separate pastas (wheat and rice) but it was just too mauch work and too much risk for contamination - so we just both eat the rice pasta. He loves it and you really can't tell the difference.
I never never eat popcorn from the theater - just can't be sure what they put on it. It's not like you can read any ingredients anywhere. I always bring my own. I pop it at home, season with real buter and salt, put it into a plastic zip lock bag and stuff it in my purse (I have a big purse....) I betting it was the popcorn.
I pack a sandwich using gluten-free bread, a trail mix with nuts and dried fruits, hard-boiled eggs, cheese, and one time I had baked a loaf of gluten-free lemon tea bread so I'd have a lil' something to munch on for sure without the hassle of scrounging around at my destination and ended up eating some of it for dinner 'cuz my flight got delayed 4 hours.....
This is a relief - thanks so much for advising me. I was thinking maybe there was latex in the tubing or the bag. I was breakng out in front of their eyes - it could almost look like a burn, very red and swollen. I have swollen red patches on my skin just about everywhere. I'm getting hives, too, and I do get little blisters, with most of them pus filled.
I don't. During a Roman Catholic service, I just remain in my seat and take a mental communion, and for a Greek Orthodox service, I join the others in line to get a piece of bread, and then I give it to my husband to eat...
Just had to respond - I have celiac sprue and alopecia. The only thing that has halted the hair loss was a gluten-free and soy-free diet, although it takes a loooooong time before the hair starts growing back again - like 1 1/2 years. Being on a "gluten-free" diet is not enough, however. I had my hair grow back with a full head of hair, happy on top of the world (what a feeling to have the wind actually blow through your hair) and lose it all again because the food that I thought was gluten-free actually wasn't. Be very careful with your diet and make sure you are actually avoiding gluten. And if your hair products have gluten or other allergen, make sure you keep your mouth closed at all times while this product is anywhere near your body and until it's fully rinsed away. It's easier just to not buy these products, in the first place, however.
And I had everyting checked thoroughly, thyroid, etc. etc. etc. etc. The only thing that made a difference was the gluten-free diet.
I'm not sure under which topic to put this - but has anyone reacted to a saline drip?
I had to be admitted to the hospital (in short I had food poisoning, was put in the cardiology section and was diagnosed with a psychological diagnosis (panic disorder - yea, right) makes a lot of sense, eh?)
I am reacting terribly now from my stay and I think it is from the saline drip. (I'm allergic to latex and extremely allergic to soy and thus glycerine, even if it is made from soy oil and soy oil doesn't have the soy protein - I don't care, I still react, so whatever - soy allergy/intolerance - sorry had to vent there...)
Is there a safer alternative to a saline drip? What is a saline drip, anyways? It is absolutely necessary?
(I know these doctor are not going to believe me when I tell them I'm allergic to saline drips... they'll say it is all in my head, even though I am covered with red hives everywhere.)
I don't think an elimination diet makes things worse. I've been on many elimination diets, and when I can't tolerate something, I can't take a molecule of it. I've been on elimination diets for a bit longer than a year (I want to say 1 1/2 years) and then try to re-introduce foods. The only thing I noticed is that I would react a little bit, with blisters/slight rash that would improve as my body got more "used" to the new food. (It's kind of like when a baby is being introduced to new foods and gets a diaper rash... wonder if there's a similarity there.)
I used to react to corn - I don't anymore, not to say that it might come back... - 7, 9, 13, knock on wood. I was also allergic to soy, seemd to have recovered from it and could tolerate it for a while, and now I am sooooooo extremely allergic to soy, it is not a laughing matter.
I've traveled several times now, with all very good intentions of adhering to my gluten-free/soy-free diet, being careful of where and what I eat, communicating with restaurant staff, etc. etc. etc., as well as dealing with family - which is actually tougher to deal with than restaurants..., and still, it is inevitable, I get glutened or soyed. Upon return, back home, my health suffers badly for it.
I'm thinking, that when I go traveling and then return home, I should go on some kind of diet that'll be easier on my digestive system and help me recover easier. Has anyone had thoughts about this, as well? I'm wondering how long the diet should last and what foods are easier on the digestive system. Obviously, nothing with gluten, or soy. (Can I just say, this is like being a baby again and eating baby food before taking on "grown-up" foods....) My digestion is not what it is supposed to be, after travelling and being unintentionally glutened/soyed. Does anybody know what foods are easy to digest?