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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual...
  2. trents
    So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the...
  3. trents
    From the article I linked above: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide) Blood Tests for Celiac Disease These tests measure the levels of antibodies in the blood, but specifically targets deamidated gliadin peptides, which are a type of gluten protein that can trigger an immune response in people with celiac disease. The test is not always...
  4. trents
    The DGP-IGA is valuable when celiac is suspected but the person being tested is IGA deficient. Were you tested for IGA deficiency. In other words, was there a test known as "Total IGA" ordered? Here is an overview of the various blood tests that can be run when diagnosing celiac disease:
  5. trents
    Welcome to he forum community, @DjinnDjab! You wrote: "i just found out i may have celiac. so needless to say i no longer have friends or relationships." Are you saying that the need to eat gluten free has resulted in losing all your friends and your entire social life?
  6. trents
    That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
  7. trents
    PPI's can be a wonderful healing agent when used as prescribed on the label which I believe recommends use of up to 8 weeks. But they are like antibiotics in that they are overprescribed and undermonitored. Docs generally prescribe them and then keep prescribing them because they take care of immediate symptoms so well. Physicians are more into treating symptoms...
  8. trents
    If you are a coffee drinker, another thing the helped me with conquering the reflux was switching to using low acid coffee. There are many different brands but the one I use is Folgers "Simply Smooth." Do you have a hiatal hernia? I have one and it exacerbates the reflux disease because it prevents the esophageal sphincter from closing completely.
  9. trents
    I had setbacks as well when trying to kick the PPI dependency. Took me about a year and a half to fell like I had largely succeeded. I found that using TUMS when I had spot flareups of reflux helped me get past the bumps in the road. Oddly enough, one thing that seemed to help the most was apple sider vinegar. I put a tablespoon of apple cider vinegar in...
  10. trents
    Also, be aware of the health damage that can accrue from long term PPI therapy. It raises the PH of the gut and inhibits the breakdown and absorption of nutrients. And you are already anemic. Osteoporosis can also be a result. Oddly enough, we know that in some people, long term PPI therapy can blunt the small bowel villi as does celiac disease. I mention...
  11. trents
    Welcome to the forum, MMH13! There are a number of blood antibody tests that can be run to detect celiac disease. Not everyone with celiac disease will be detected by just one, though it is common for physicians to order just one. Do you know what test or tests were run? Acid reflux and anemia are classic symptoms of celiac disease but certainly can be caused...
  12. trents
    I believe leaky gut syndrome is part and parcel withe celiac disease rather than a separate condition. Here is an interesting article on leaky gut: https://my.clevelandclinic.org/health/diseases/22724-leaky-gut-syndrome
  13. trents
    Welcome to the forum, @Rhonda2424! First, let me explain that celiac disease is not an allergy, it is an autoimmune disorder triggered by the consumption of gluten. So, allergy testing cannot be used to diagnose celiac disease. Neither is NCGS (Non Celiac Gluten Sensitivity) an allergy but medical science has yet to pin down the details of the immune system...
  14. trents
    Indeed! It's especially challenging for those whose jobs require them to travel and eat out, often in the context of business meetings. I'm glad I'm retired and don't have to deal with that. And my family is very supportive and flexible.
  15. trents
    How will you gauge this?
  16. trents
    Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
  17. trents
    I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives...
  18. trents
    Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test...
  19. trents
    Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The...
  20. trents
    Welcome to the forum community, @Jesmar! The HLA DQ2 and DQ8 genes were the original halotypes identified with the potential to develop celiac disease. Since then, other genes have been discovered that apparently afford a predisposition to celiac disease. As is always the case, these new discoveries are not yet common knowledge and not yet widely dispersed...
  21. trents
    It's a moving target, isn't it!
  22. trents
    Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest source at any given time. I take it you are a pretty sensitive celiac.
  23. trents
    Here are the ingredients listed for the regular sour cream and cheddar Ruffles: Potatoes, Vegetable Oil (Canola, Corn, Soybean, and/or Sunflower Oil), Maltodextrin (Made from Corn), Salt, Whey, Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Onion Powder, Monosodium Glutamate, Natural and Artificial Flavors, Buttermilk, Sour Cream (Cultured Cream,...
  24. trents
    What is a "boots pharmacist"?
  25. trents
    But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
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