Subscribe to FREE Celiac.com email alerts
Sagesmama added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseThe Test Numbers- Do They Go Up With Increased Gluten Exposure?My daughter (10 ms) was tested because of unexplained diarreah and weight loss. My son and I have both been diagnosed so we got her tested as well but her test results show that the full panel were all negative- totally normal range. BUT my daughter has had very limited exposure to glutens so my question is- do the numbers go up the more exposure there is or are the numbers what they are- gluten or no gluten.... does that make sense?
We've already decided that she's going gluten-free, despite the negative test results but I was just curious. If we had decided not to limit her gluten intake- would those numbers increase if she had Celiac?
- 3 replies
- 847 views
Sagesmama added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseUt-oh- The Easter Bunny Is Coming... Does He Know What's gluten-free?
This is our first "food holiday" since being diagnosed. I keep seeing all kinds of tempting Easter candy everywhere- especially on sale and want to stock up for Sage's Easter basket. He was also invited to an egg hunt where all the kids are to bring 12 filled eggs- I was thinking that I would put a special sticker on the outside of his 12 eggs and those are the ones that he specifically has to find (usually they get all mixed up) but what's gluten-free and what isn't? I'm looking for great basket and egg ideas for Easter candy since this is one of those holidays that companies make "special candy" for- the ingredients might differ right?
Post your ideas please! (and no getting away with "try treats that aren't candy- like stickers and small toys). This IS the "candy holiday" in our house
- 13 replies
- 2,015 views
Sagesmama added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseMy Son Is On An Emotional RollercoasterSage has been gluten-free for only about 3 weeks and is having a really tough time with it. He's an wreck of emotions, crying, screaming, being aggressive with his baby sister- it's almost like the emotional upset that we experienced with him 2 years ago that got him a 2 day psych eval. and a misdiagnosis of "anxiety" which I now understand in my heart was the beginning stages of Celiac.
I get the sense that he's feeling this huge loss of control... and rightly so! What 5 year old can really comprehend the term "lifetime maintainence" when it comes to eating gluten-free? I also maybe feel like the better he feels physically, than obviously the more energy he has that just wasn't there before because he was so fatigued. He doesn't know how to unleash it... and we're trying to do our best by giving him choices of physical activity (we just signed him up for T-ball!) but since these things have never been a big part of his life, I can't expect that he wants to put down the gentler activities (arts and crafts, boardgames and computer games) and suddenly be an "All Star".
I just feel so horrible for what he must be feeling inside... I know it's hard and confusing and frustrating but what I don't know is how to make it easier on him, how to make him understand, how to get his behavior under control.
I need to figure it out soon though because his daily crying fits are pulling so hard at my heartstrings
- 7 replies
- 1,017 views
Sagesmama added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Working Around Gluten...I work part time at a large retail bookstore in the cafe. We have baked goods, we bake cookies, we have MALT powder to make mixed coffee drinks, we have a zillion gluten containing things but this is my job... this helps to provide my family with that "little bit of extra" for the more expensive gluten-free foods that we need to buy.
So- since I'm new to this can someone please give me the scoop on working around gluten? Is it taken in through skin contact? Is it possible to get sick just from touching it or does it have to be accidentally ingested? Can I wear rubber gloves and be alright? Have any of you continued to work around gluten and what do you do to make sure you're safe?
Any insight would be so helpful
- 3 replies
- 592 views
Sagesmama added a topic in Gluten-Free TravelPreparing For Our Summer Vacation (any Info Would Be Wonderful!)Hey there!
I'm so excited... we're going on our first ever family vacation in June to PA! My son who is 5 1/2 is asking every day "how much longer" and I've started the preparations to get our little family there safely and to make a trip full of lasting memories... I'm jsut worried about the food since our whole family is gluten-free (my son and I are the Celiacs but my husband and baby girl are gluten-free as well).
We'll be staying in Quakertown PA, which is about 45 minutes from Sesame Place Park. Then there's Sesame itself... do I ask them to fax a copy of their menu? Do I call and get permission to bring in outside food (it specifically states no outside food allowed) how do I do this?
Also- we'll be going to the Philly Zoo, and other areas of Philidelphia as well. I heard that there was a gluten-free bakery (Mr Ritts Bakery?) in Philly... anyone ever been?
Any information that you have would be helpful... area restaurants, how to go gluten-free at Sesame or the Zoo... what gluten-free foods to pack for a week's car travel, etc.
- 2 replies
- 644 views
Sagesmama added a topic in Gluten-Free Diet & Weight IssuesHas Anyone Tried The Nutrihand WebsiteI was on Weight Watchers before I was diagnosed. WW encourages lots of healthy fiber and whole grains, which unfortunatly for Celiac people.. that's not an option.
My friend sent me this link this morning and after reading more about it I registered (free!) and chose the "Gluten Free" diet option and now I have a menu all planned out for me that's entirely gluten-free!!!! And within my daily calorie goal range.
I was so excited to share it with those of you who are trying to maintain a healthy weight here... let me know what you think of it... maybe we could start a support thread if there are those of us who are trying to lose weight with this great website!
- 1 reply
- 1,127 views