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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Nickie

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    • Birthday 09/11/1970

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    • Gender Female
    • Interests Reading, surfing, chatting, music and movies.
    • Location Washington

    Nickie's Activity

    1. Nickie added a post in a topic Udi's Bread   

      Udi's white sandwhich bread and the whole grain are awesome. I can eat the whole grain right out of the bag with nothing on it. It is so far the best Gluten Free Bread I have ever tasted, I only purchased it because the loaf was the lightest. Also there frozen pizza crust is great too.
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    2. Nickie added a post in a topic Dapsone   

      You should go gluten free now instead of causing you more pain and suffering later. I started getting DH at age 12, 40 now, No one coule ever diagnose it they had no clue. I asked to be tested for in in 2006, finally figured it out then did the blood test and was positivly diagnosed with celiac disease, I started dapsone at 100 mg a day and spent about 3 months gluten free then reverted back to the old ways of eating while contiuing with the dapsone, May 2009 10 days in the hospital in ICU with an allergic reaction to dapsone, basically my blood was not allowing oxygen to bind, I was dying. No more dapsone for me then to tetracycaline and niacin, could not tolerate the niacin, still eating gluten, then to sulfasalazine, now my blood test come back thinking I am an ederly person whose kidney's are failing so they may be who knows. Now gluten free again for a week, small break up started yesterday made toast (udi's bread) in the house toaster. I just went out and bought a new one. So now there is absolutely no other medication I can take other than not letting 1 little mg of gluten enter my body unless I want to break out.

      So start Gluten Free now and from experience save the pain and hardship. It is hard to eat glutenfree but the products that are now available so much outweigh what was available even 3 years ago. Your choice just offering my experience.

      GOOD LUCK!!!
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    3. Nickie added a post in a topic Dapsone - Miscellaneous Questions   

      I have been diagnosed with DH since March of 2006 and have been on Dapsone 100mg since then, recently I spent 10 days in the hospital 7 of the days in ICU, I thought it was just an asthma attack however 4 days after I was admitted I found out that it was something that is called metahemoglobinanemia, which means my blood was not allowing oxygen to bind to it. So now I can no longer take the dapsone for the fear of this occuring again and I really do not want another experience like that. My question is this my dermatology DR is wanting me to go on tetracycaline and NICOTINAMIDE, which is basically niacin, B3. My insurance company covers it but the copay is $75, too expensive. Do any of you know something that is the same thing over the counter or any other treatments other than the tetracycalin, dapsone or Sulfapyridine. Thanks!!
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    4. Nickie added a post in a topic Chocolate Mayo Cake   

      I know what you mean, this is my favorite Chocolate cake!!! You could always try, I think that is part of cooking gluten free, experimentation. Like I said I had to add a little more sugar than normal, but in the end it turned out great. Never know till you try.
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    5. Nickie added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Gluten Free Bread
      I found a bread that is the closest texture to real bread yet. It is kind of spendy but it is good. I got it online at It is $9.00 per package and that makes 2 loaves, I got about 34 slices out of it and froze it in packages of 4 slices a piece it is great.
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    6. Nickie added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Chocolate Mayo Cake
      Just thought I would share this with everyone. My husband made a chocolate cake the other day, non gluten free from a mix. So what happens I want some. I have always made a cake called Chocolate Mayo cake so I said what the heck I will try making it gluten free and see how it does. Worked great here is the recipie for gluten free.

      2 cups flour (I used Bob's Red Mill Gluten Free Flour mix, from Target)
      1 cup Sugar (added a little more about 1/4 cup to taste)
      1 1/2 tsp baking soda
      4 tbsp cocoa (hershey's baking cocoa)
      1 cup water
      1 cup mayo (replaces the normal eggs and oil)
      2 tsp vanilla

      Mix first four ingredients well, then add remainder and mix well.
      Preheat oven to 350 degrees, grease and flour cake pan (just use some of the Bob's Red Mill above and gluten free cooking spray.
      This will give you the smaller square baking pan if you want to make it a larger one for the normal 13x9 cake pan, you just 1 and 1/2 the ingredients.
      Bake for 25 minutes, may take a little longer it did for me I am thinking it is the difference in flour.

      Turned out very good I am glad I tried it. Enjoy!!!!
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    7. Nickie added a post in a topic Dapsone Experiences? (from A Newbie)   


      I think I truly do know more than my doctor about celiac disease/dh, because of reading others ecperience and researching on my own. My doctor does listen to me, in fact I said I want the test she had no problems running the blood tests, they came back weakly positive, so I am a little confused on what that means. I put a call into her to have her explain the results to me, no call back yet. I definitely knew more than the nutritionist that I was referred too. I think I taught her a few things. As far as getting a different doctor it is hard for me. My husband is Air Force therefore we have to go to the base clinic in order to get any care. If we lived away from a base I would then get to choose my own doctor. Plus I have to go through getting a referral to any other doctor I want to go to. One question about the cholesterol though, I just had mine done and came back high actually so a little confused on that one. Of course prior to being diagnosed I ate out about 3 to 4 days a week, so got a lot of junk and fattening food. Not sure if that will change since I have gone gluten free and am not eating out at all. My HDL is higher though so that is good. My plan is to definitely stay gluten free as I do not want to stay on dapsone, I take enough other medication for my asthma, that is quite enough. I have been gluten free since March 10th so I am on my way. Thank you all for your information and time.
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    8. Nickie added a post in a topic New Cocoa Puffs   

      Well that would be good. I hate fruity pebbles and cocoa pebbles, trix are not even my favorite but they are better then those two.
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    9. Nickie added a post in a topic New Cocoa Puffs   

      Trix have Wheat Starch in them. Just went out to the Generral Mills website to look at ingredients has wheat starch at the end of the ingredients.
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    10. Nickie added a post in a topic Easy Breads   


      What is the texture of this bread. I am new and tried a bread that I bought from the health food store and gagged, could not get past the texture. Is it somewhat close to wheat flour bread? And maybe you can answer this I made banana bread using the Arrowhead Mills Baking mix and there is a sour aftertaste, what ingredient or lack of ingredient causes this?
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    11. Nickie added a post in a topic Rice Krispy Treats   

      I love my rice Krispie treats

      6 cups rice krispies gluten-free or Cocoa Pebbles might work haven't tried it yet
      1 cup light karo syrup
      1 cup sugar
      1 cup creamy peanut butter

      Cook sugar and karo syrup till warm and smooth then add peanut butter and stir in well. Turn off heat and add Rice Krispies I add 2 cups at a time, fills a 13 x 9 inch baking pan.

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    12. Nickie added a post in a topic Mosquito Bites?   

      Not so sure about that one. I hardly ever get a mosquito bite even when camping. My family gets upset with me. For some reason they hate me.
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    13. Nickie added a post in a topic Asthma   

      I have asthma have had it since I was 17, 2 years after I started getting my rash which 20 years later, finally last month was diagnosed as DH. I just did a PFT, and I have to go to a specialist in pulmology now too, cause I have severely bad lungs. So who knows if it was related. Makes me wonder though.
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    14. Nickie added a post in a topic Crackers And Acne   

      I started getting acne after I was 30 and can relate to the large ones you are talking about, Dermatologist about 4 months called it cystic acne, I take 100mg of Dorxy a day and I can't remember the name but it is a medicine with derma....and mised with a lotion it has benzoyl peroxide and is less drying for me then Retna A. I also take 100mg of Dapsone for my dermatitis herpetiformis. I started a total gluten free diet on March 10th and my face is so clear it makes me want to cry. Talk to your derm about it. Might help you. Not sure if it is the lack of gluten or the meds that cleared it up, but it is good.
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    15. Nickie added a post in a topic Dapsone Experiences? (from A Newbie)   

      The dapsone has worked great for me. Cleared up and healed except for legs which were really bad. RICHARD....after research I have found that if you have DH you will have celiac disease, hence the positive blood results. Still working on gluten free, living on a lot of veggies and fruit and boiled eggs, cheese haven't had bad reaction to those yet, I hope I don't.. But so far so good. For the initiator of this thread I have been on 100mg of Dapsone since Feb 27th. Works well.
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