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Alvina214

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  • Content count

    6
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About Alvina214

  • Rank
    New Community Member
  • Birthday 02/14/1973

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  • Website URL
    http://www.tzitelman.com

Profile Information

  • Gender
    Female
  • Interests
    Art, music, photography, jewelry making, socializing, conversing, living, loving, laughing...the list goes on.
  • Location
    Rockford, IL area
  1. I thought Celiacs weren't allowed to have gumdrops, m&m's (emulsifier) or redhots (red dye 40)??? Just thought I'd check and see what you guys might know. Thanks
  2. My dietician told me not to eat any frozen meats, they have more preservatives...and more likely to have gluten in them (msg). You can order fresh turkeys that are safer. I hate all the conveniences that are gone from when I used to not have Celiac. I hate that I have numbness in hands and feet that I never had before, no I'm not 100% Gluten Free...I am still struggling...1 yr. anniversary this mo. Lately I have been having more head aches than I ever have...never had them enough to even say I have. My family thinks I have been grumpy alot lately. Maybe it's just stress...I don't know what the gluten won't effect...I think they havent' found out everything. I'm just glad I know what I can do to make myself feel better, too bad it includes not eating things I love...and cooking more. I used to be the queen of tv dinners...at least I am making more of an effort to eat better. Good luck to you!
  3. Hello From Rockford IL, about a hr or so west of Chicago. Just curious about places you might go...out to eat, that are easier to order from. I go to Chicago occationally...maybe a group of us could meet somewhere...central... have lunch/dinner? Lets start talking about a place we can all find, agree on, and a good date? I'm still working on getting my profile completed...busy alot currently. I am looking forward to summer and going boating...but what to pack, easy and good tasting...used to have sandwiches and pickles and chips. I guess a meat/cheese rollup, gluten-free cookies and chips will do...oh and good peanutbutter cereal for b-fast. I'll check in here occationally. Hope to hear more from others too! Tracy
  4. You know, I have been wondering myself what it is NOW that I ate...seems like I have been feeling better, but not totally "well" like some small thing is still bugging me. I have been dealing w/ tingling in my hands/fingers lately and wondering if that is Celiac related... I have been calling/emailing companies little at a time...drug co. to find out if I can take a med. that I need, etc. Calling Bonnie Bell to find out my all time favorite flavor chapstick has gluten, thank goodness they carry another kind that is gluten-free!-Ran out and bought 6 tubes of that. Just dealt with a co. that provides my DDS w/ toothpaste...after talking w/ my DDS he recommended me looking up the website or calling them. I finally got around to it, now that my appt. is NEXT MO. and this co...customer service rep was so rude...they can't talk to consumers directly...they only talk to the DDS personally. I called my DDS (after emailing the President of the co. and telling him how rude/wrong their policy is and what true customer service really is) and he was shocked and said he shared my thoughts on how "helpful" they have NOT been. He called them and found of the 3 flavors they carry cherry, mint and pinacolada, only the pinacolada they KNOW is Gluten free, they are going to get back to him about the other flavors. All that, for a flavor I don't want! hehehehe I guess my frustrations are normal but I haven't given up on the hope that MINT may be a possibility. I just found out a person I've know for a yr or so has Celiac, she's had it since 3yrs old, her mom and granny have it. That sounds easier to deal w/ than having to kind of start from A. I remember in my first mo. going to Steak n' Shake...ordering a double cheese burger, no bun and putting katsup on it...half way throught scraping off the katsup...and thinking...man, no wonder that was so good...I forgot I can't have katsup. After finishing the burger...realized I ate the cheese that is processed too...at that moment I just wanted to cry. Also after reading EVERY label of any cereal that I liked...and finding nothing was ok for me. That was a pretty desilute time too...I think my poor boyfriend...reading labels w/ me must think...poor gal. Things are better, even if I am not feeling GREAT, I at least don't have cramps, D, or Const, bloating, gas, or nausea anywhere as often. I always try to be thankful for what I have, and try to look on the bright side. I was diagnosed as a young child w/ wheat, flour, chocolate and carmel food allergies. Dust, mold and mildew, as well as pet dander were also allergans. I started eating "reg" foods as I got to be a teenager. I am 33 and was just diagnosed this past Dec. and saw a Dietician, and have attended 1 support group meeting. I must say I'm glad I told my Dr. to test me further, cause I "didn't" have the FLU...for 3 weeks. I'm glad he recommended a GI Dr. quickly when they found nothing in my blood, stool or urine tests. I am glad the GI Dr. sat down and explained the answers to every question I have had-like he had all the time in the world for me. My Dietician was very genuine and helpful with a list of possible brand names of items I would most likely find in foods I could eat, examples of boxes of foods to show food items/ ingredients to look out for, and for giving me her phone number to call anytime w/questions. The first 6 mo. they want me on a strict 100% gluten-free diet; not even some very possible/questionable things. (Ex: canola oil, white or distilled vinegar, red dye #40, vitamin E) The support group I went to was a wake up call for the depressing state I was starting to get into. I was complaining about a limited diet and crapy length of time that it took for them to figure out what was wrong w/me. (4-6mo.) I found out later I was sitting next to a lady who it took 5yrs for diagnosis...and she almost died, ended up having seizures and still is epileptic to this day; even w/ gluten-free diet. I felt like someone slapped me in the face...and man have I just been happy to be me. I have far fewer things to complain about, and much more appreciative for my situation. I am still finding my way but still need guidance and support like we all do. Thanks for sharing, hope you find something in my reply helpful. I have found that if I find out someone has Celiac, I have this urge to want to compare notes and start talking about favorite foods and helpful hints. Good Luck to you all!
  5. Also, just in addition www.food4celiacs.com is a place in the midwest, a physical store you can shop, as well as phone/fax or call in orders...and they ship to you. They carry the Annie's dressing packets...and the owners are Celiac positive...as well as some other allergans. I found the lady to be very helpful when asking questions about food, taste, and non food items. they have a catalog you can download and print a copy of... I finally made it there after knowing about the place and wanting to go but no time to... spent 100 bucks easy. Bought lots of snack bars, crackers, cereal, loaf of bread to try, frozen pizza, etc. My granny said...you aren't starving...you got lots to eat...hehehehe. Sometimes I agree. Good Luck Everyone...in your travels and daily life!
  6. I was just diagnosed in Dec.05 I have been learning so much about Celiac... I'm going for vacation to Pensacola in a week...I live in Illinois, near Chicago. Would love to talk w/ fellow Celiac. Have you had any luck w/ a Support Group yet? I have attended 1 meeting, and glad I did...they gave me more to read... Yeah...heheheheh T.