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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About whitball

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  1. Top Five Reasons To Get A New Doctor

    I took my 17 year old daughter to see the doc to find out why she is tired all of the time. We ended up seeing a resident, rather than our usual doc. I explained her symptoms and asked to have her tested for celiac disease. The resident looked at her chart and noticed that she was on the pill last year. She was placed on the pill for menstral pain along with heavy bleeding. He told us that since she was on the pill, he wanted to do a pelvic exam and to do a pregnancy test. My daughter was having her period and I told him so. He again insisted on doing both tests. My daughter is not sexually active at this time, so I refused both and demanded a regular blood work up, including the tests for celiac disease. I threatened to put the man in a headlock until he tapped out and agreed to do the tests. He had to go talk to his supervisor and came back again with permission to do the tests. Amazing what we need to do to get people to listen.
  2. Welcome to the site! I am from Midland. This is a great place to learn about the disease, ask questions, learn about food, etc.
  3. I am having problems with corn and also with rice. It amazes me that so much of our food uses has corn in it. I also amazes me how many foods do not really specify what is in their product. The citric acid thing ruined my day. The limitations are bad enough just being a celiac, but to have additional limitations with rice and corn makes it tougher. Now to find out that corn is in citric acid and salts?..................bummer.
  4. I had to do both, the iodine and the crappy tasting stuff that was supposed to taste like mixed berry. NoGlugal, I have not been diagnosed with DH, but I do have scabs on my scalp because my head itches alot, my hands itch with some soaps, is this how your skin reactions started?
  5. Is It Really A Disease?

    I also refer to Celiac as a disease, especially when I am trying to explain this "disease" to others. It is an aweful problem to have and it is often a progressive disease. Most are not diagnosed until significant damage has occured. My mother was not diagnosed until she was 60. The disease has damaged her thyroid, caused osteopenia, DH,. She can no longer wear makeup, her hair has mostly fallen out to the point where she must wear a wig. So, if you think about it this is a disease.
  6. I had a CT scan on Friday to look at my abdomen and pelvis. I have had significant pain after bowel movements during the last several months. I believe the pain is from adhesions as a result of having several abdominal surgeries. I was asked to drink some sort of fluid a few hours before the scan. It was only after drinking the first portion of the liquid that I started to feel sick that I remembered that I needed to make sure it was gluten free. I read the ingredientes and learned that it was produced in an area where wheat, soy and dairy was produced. Yes, the prep for a Ct can cause diarhea, but please make sure that you ask about the ingredients of the prep. I did not until it was too late. I began to get sick immediately and had diarhea throughout the entire procedure and for the next two days.
  7. I would advise you to make sure that you need to have the surgery. Any abdominal surgery increases the chances of having problems with scar tissue. I have had six abdominal surgeries. 3 c-sections, 2 laparoscopies and 1 hysterectomy. All were necessary, but I now live with horrible pelvic pain and I know that this is cause by scar tissue. I have tried to avoid any further surgery to remove the scar tissue and probably the end result will be an obstruction of the bowel or intestine. Make sure that you are educated on any procedure. My first surgery to remove an ovarian cyst resulted in my needing an emergency surgery to stop a bleeder, and the top hole was so large that when I vomited after the surgery, the top lining of my abdominal cavity came out of the hole. I lost 3 pints of blood and required emergency surgery to repair the damage. You must investigate your doctor and ask their amount of experience, the number of times they have been sued for malpractice. Is your surgery necessary?
  8. So Scared

    I'm sorry that you are so miserable. Vent all you want. My support is there. Good luck
  9. Bruises

    I have been gluten-free since 2/2006 and continue to bruise very easily. The weirdest thing is my fingers. I can simply bend them sometimes and I'll feel a sting, and when I look to find out what happened, I find that I have broken a blood vessel. Happens all of the time. Anyone else?
  10. Please Tell Me This Gets Better...

    I can assure you, this will get easier. I had a similar post a year ago. I was angry, depressed, sad. I even cheated just to see what would happen. Well.......I got sick, very sick. It's not worth it, so you have to make this work for you. I have problems with rice and corn also, so I really struggled for awhile. I have learned a a few things though: 1. There's beer! 2. Lettuce wraps are awesome. Fajitas are very good in lettuce wraps. 3. Pancakes are great to take on the road. I cover two counties and put 1200 miles a month on my car. They're easy to pack and I can put whatever I want on them. 4. Fresh fruit and veggies work fine for me 5. Individually packaged cheese convenient 6. Make your own trail mix with nuts, raisins, chocolate chips, mmmmmmmmm! 7. Oh, did I mention that there is beer? I could go on and on, but I think that you get the idea. There are many things that you can make and buy. This website is full of good advice and is a great place to vent. Good luck to you.
  11. Wrist/hand Pain

    surgery is not an option for me either. I'll try the wrist brace to see if this helps. Good idea! I may try them when I drive also. I cover two counties and put around 1200 miles on my car every month. My thumbs go numb everyday. thanks for the info.
  12. Wrist/hand Pain

    I have had lots of pain in my wrists and elbows. My biggest problems is that I have numbness in my thumbs, index and middle fingers on both hands. This happens every night. Anyone else?
  13. Sorry, I have no advice on where you should go. I'm just simply jealous that you are moving there. I am originally from Wyoming and have family and friends in the Fort Collins area. You'll love the area and the beauty is unbelievable. Good luck and enjoy your new home.
  14. Outback Alice Springs Chicken

    I have told my story about Alice Springs Chicken on a few other threads. I ordered this meal at the Outback in Saginaw, Michigan off of their gluten free menu. I went through the entire routine of making sure the staff understood the importance of this meal being prepared carefully. I ate the meal and about two hours later, I was extremely ill. I vomited and had the D for nine hours. I was so ill, I could not get up off of the bathroom floor. I probably should have sought medical treatment. I went there a few weeks ago with friends and one of my friends ordered this meal. I became ill just smelling it and needed to change seats with someone else to move away from the odor. I'll never eat there again.
  15. Dr Appt In Wyoming

    I would make sure that you have information about your blood levels from your last blood test, where can you purchase gluten free products, is there someone who can be a mentor for a few months until your get used to your new way of life, when is your next endoscopy? Blood work up? do your children (if you have children). What part of Wyoming are you from? I grew up in Buffalo, went to college in Casper and Laramie. I now live in Michigan. It's neat to see someone from Wyoming on this site.