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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About schuyler

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  • Birthday 05/29/1985

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  • Location Cali
  1. Happy birthday and may God bless you today!

  2. Sushi

    Thanks for all the info! I called the restaruant, and they went over all the things I could eat there. I already have my own tamari sauce, so I'll just bring that. Hopefully I won't gag on the sushi =)
  3. I just found out that I'm going to be meeting a friend for dinner @ a sushi restaurant next week. She knows about my celiac and picked this restaurant because she thought that I could get something there. So, sushi's just fish, rice, and seaweed, so it should be okay right? I've never had sushi before, so I really don't know much about it (I actually haven't eaten fich since I was 5, but I'm willing to try sushi). Are there any sauces for sushi; if so, are they okay? Any info would be awesome! TIA Danielle
  4. My cousin's 3 boys lived with me and my parents for a few months while she was in Iraq. While they were with us, I had the boys tested through enterolab, and all 3 of them tested positive for the celiac gene and two of them tested positive for gluten intollerance, soy allergy, dairy intollerance, and corn allergy. They all did so well on this diet that the dr gave them a diagnosis of celiac. The boys have been back with their mom for about 3 weeks now. I saw them yesterday, and she had all 3 of them eating grilled cheese sandwiches on whole wheat bread! Afterwards, the 3 year old threw up and her 4 year old went into a rage. She sees no reason to keep them on "such a restrictive diet", since they don't always complain of stomach problems (the 3 year old, who tested negative, only occasionally complains of stomach aches). Her 4 year old was just kicked out of preschool for behavior/anger issues, which my cousin attributes to their dad being a horrible man. I think she is partially right, but Nicolas's behavior issues went away while with me, I'm positive that his allergies play a huge role too. The 3 year old now only weighs 17 pounds! He is really tiny, and looks like a classic celiac kid. He has horrible night terrors lasting 30 min + a few times a night, and he eats constantly. But she says that if he had celiac he would have diarrhea (he's always constipated). Her 2 year old started saying a few words while gluten-free,df,sf,cf. Now, he won't say anything. My cousin says that his lack of verbal skills is bcause he was a 1 lb preemie. But why would a kid lose verbal skills that he once had? He also has constipation issues. All 3 of her kids have hyperactivity and behavior issues (more thatn just typical boy behavior). She says that their diet was too expensive to stick to, and she doesn't think they need it. I am just so frusterated! I know my cousin would never deliberately harm her kids, but she is in major denial about this! What really gets me, is that before she went to Iraq, she was pushing to have all the kids tested. I had the boys on a diet of organic chicken/ turkey, organic vegetables and fruit, and rice. They only had an occasional treat. The diet was actually cheaper than a regular diet because I wasn't buying many premade things ( except for the few treats that they had for celebrations). I don't know what to do??!!! I plan on showing my cousin all the responces that I get on this thread. Any advice for either of us would be greatly appreciated.
  5. I hope Emmie's feeling better today! Gatorade helps me the best when I'm dehydrated.
  6. Me too! It's actually starting to worry me
  7. I wish I knew how to help with your dad. My dad's the same way. He has the same symptoms as I do, and he knows that since I have 2 copies of the celiac gene that one must have come from him (my mom was recently tested, and was negative). I think he knows deep down that he has it, but he doesn't want to admit it to himself. He is addicted to gluten. I have been doing more gluten free baking (since his favorite foods are things like cookies), and he's loved some of the things that I made recently. I'm hoping that once he sees that gluten free foods can be good, that he will go on a gluten-free diet. Hopefully... Danielle
  8. Brain Fog

    Courtney, I've been gluten-free for about 10 months, and I still have brain fog. I am so spacy sometimes that it drives me crazy! I have only been this way for the past few years. But, I have an excuse for being an airhead... I'm blonde. Danielle
  9. I'm glad that Megan's doing well! I love the picture of them all dressed up; they are so cute!
  10. Red Robin Questions

    Red Robin is awesome! I work at one, and so I get to see exactly what goes on in the kitchen. They are very knowledgable about cc issues and will prepare everything using clean grills and deticated fryers (I made sure to educate them!). They will prepare your burger away from the buns, etc. I eat there all the time, and I always get the Vegetarian Red's Rice Bowl without the fried noodles and with the sauce on the side (sauce is not gluten-free). I have never had any issues. The boys always get a patty with lettuce and mustard, a salad (they bring their own Annie's dressing), and a bowl of rice. They love it! I'm so glad to hear all these good things about Red Robin!
  11. Why Now?

    So I'm normal after all!! I guess I am greiving the loss of foods that I had eaten for 20+ years. You kind of grow attached to things after that long! I made a nice gluten-free cake this morning, and the boys and I have been pigging out on it all day! It was so good (yes, was; it's gone now!)! I agree that I should focus on what I can have as opposed to what I can't. I can have a great gluten-free cake! There are plenty of things that I've eaten all my life that I can still have (fruit, veggies, etc). Thanks for reassuring me that this is all normal .
  12. Glutened....with Flour.

    The classic white flour thing I hope you don't get sick.
  13. School Questionnaire

    1. How long have you known you’ve had Coeliac Disease and what is your age (age-optional)? I was diagnosed 9.5 months ago, but I've been sick since I was a young child. I'm 21 now 2. Is it hard to cope with this condition? At times. At first I had no problems, but I've recently hit a rough patch. 3. Do you understand what is wrong and what it’s doing to your body? Yes If yes could you briefly tell me what happens to your body if you eat something containing gluten? When I ingest gluten, an autoimmune reaction occurs in which the villi in my intestines are damaged causing multiple problems. I get really bad abdominal pains, diarrhea/constipation (it alternates between the 2), brain fog, fatigue, body aches, arthritis, vomiting and many other unpleasant ploblems. 4. Do you find it hard to find foods that you like? At first it was a lot of trial and error because most gluten free speciality foods taste like cardboard. Plus I have other food intollerances, so that makes it more difficult. Now I have quite a few brands that I trust and like, so it's not hard now. 5. Does anyone else in your family have this condition? Yes: my cousin's 3 boys were recently diagnosed (2 by enterolab testing and 1 by positive dietary response). I'm sure that my dad also has it, but he won't go for testing. Also, I just found out that my mom's brother had a wheat allergy as a child that he supposedly outgrew; which I think is celiac. I also think that my mom's grandma had celiac as well. They all have so many of the symptoms. 6. How did you find out that you had it? Family Dr diagnosed through blood test then a GI confirmed diagnosis through biopsy. 7. When you go out to dinner do you find it hard to find food that you can eat? Yes, I'm tired of plain salads. My other food intollerances and my semi-vegetarianism make eating out hard. 8. Do you find there isn’t enough of a variety of foods that you can eat? Not really. 9. How do you find the price of foods? The speciality foods are a little expensive, but I usually try to eat foods that are naturally free of all of my food intollerances. 10. Which Super markets do you find are best for gluten free foods? Other Please State: Raley's (California). The Raley's stores near me all have a natural foods section that has a gluten free sub-section that has a lot of gluten free foods. 11. Knowing that you have Coeliac disease does it make you feel any different to anyone else? Sometimes. I know it shouldn't, but sometimes it does. Good luck with your project!
  14. Wow, that's a lot of juice!! The boys are only allowed juice (watered down) on special occasions. Other than that, they only drink water and/or rice milk. I don't see the need to add juice to their diets, plus they eat plenty of fresh fruit, which I think is healthier. I know what you mean about seeing young kids drinking juice and soda from bottles. I about died the other day at work, when I saw one of our clients at work giving her 9 month old a bottle filled with soda. When she saw my horrified expression, she quickly reassured me that it was diet soda; like that really changes things! She's pumping junk into her daughter's body during an important time of development. IKWYM= I know what you mean