This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
When you get a rude or nosy question you could ask one of the following:
Why do you ask?
How many books have you read on celiac disease?
Why do you need to know?
She is better educated and informed than my generation (or yours).
Dietary Trial is the ultimate test.
Instead of fast food she is making healthier food choices to enable her to lead
a long disease free life.
I suffered with UTIs for MANY years. Now that I am gluten-free I do not have them anymore, I also still do not eat or drink, Tea, Coffee, Sodas, Grapefruit, Potatoes
I was allergic to coffee, but I never drank it !!! Severely allergic to tea & it would give me an instant bladder infection.
Used to be any and ALL citrus but now I can have oranges & pineapple with no problems but grapefruit used to make me soooo sick with a UTI that I just cannot bring myself to eat one.
I forgot to check to see how long you have been gluten-free, but if you have been gluten-free for awhile and not getting cross contamination etc, then look for a food or drink that is triggering them. My doctor always said that was not possible but he was wrong
okay, slow brain - I read that they started in June when you went gluten-free check the potato flour that is in the gluten-free baked things, or something else that you started eating about that time.
Everyone has to make their own decisions, I personally would skip it. Instead i would just get the Enterolab gene test... & maybe the fat absoption test, if that is clear then it really means that your villi are okay.
IMO biopsy is not necessary, if you want to a doctors permission to eat a healthy diet, then you will almost have to kill yourself first by eating gluten and then if you happen to have DQ1 genes you might not get the villi atrophy anyway - but you might get lots of other damage that they will not look for.
Even if you villi are damaged it can be spotty & if they do not take up to 15 biopsies they will surely miss it. Then there is the matter of the doctor "reading" the biopsy...
seems like a lot of trouble for nothing to me, but if you want an Official diagnosis then that is what you have to do, but you sound like you have your priorities all together already...
Did you change any soaps, fabric softner??
my guess is you probably got some cross contamination in the house, when they eat pizza with their hands what all do they touch in the house? Do they wash their hands right away???
The director of our support group went to the international celiac meeting in NY & she said that it is recognized that ONE EIGHTH of a teaspoon of gluten stuff is enough to damage the villi. So you be the judge... You know if we could feel the damage being done to our organs we could all cure ourselves, but we cannot. Some of us are "lucky" enough to get warning signs in the form of pain and illnesses etc.
It is my personal opinion that if a person eats gluten a couple of times a year that they are 1. not educated 2. at high risk for cancer, & I do mean HIGH 3. at high risk for other problems 4. not that serious about their health 5. must not be strict at other times of the year because if they were why in the world would they waste all that good effort that they spent six months of compliance with the diet to eat gluten & undo all the good that had been taking place for six months.
Sorry, but anyone that does this, just starts all over from square one, it takes three to six months to get it all out of your system.
Peanuts - for some weird reason I cannot eat roasted canned peanuts - they make me sick every time. BUT I have no problems with my Smuckers All Natural Peanut Butter. I have a lot of food allergies, so I usually accept these things & go on. I can eat all other kinds of roasted nuts with no problems, so I do not know what the problem with peanuts are. I think maybe mold, cross contamination or golly who knows what!!
re the 2 year old that loves bread, watch that one as I have a grandson and a son that are like that - they crave wheat, & both of them are gluten intolerant.
Your life with hubby sounds fun. Do you keep a kitchen box packed in the car? I think you might be getting some cross contamination (CC) from an old cutting board, wooden spoons etc. When on the road be sure to cook all the meals gluten free, since there is less chance of CC. A jar of classico spaghetti sauce mix in some meat & eat over rice is good, & cheap or you can spend more & get gluten free pasta. check your seasoning blends, such as lawrey's seasoning salt, I would toss that one out, most are okay, but check the ingredients for the ones that are all blended together, also, get a wheat free soy sauce.
With some preplanning you can pack a lot of things from home & then just shop for fresh meat & veggies & fruit. You can even premix flours etc for fried chicken and things like that. Do you pack an electric skillet? I think that is the most versatile pan around. If you have room I would also pack a rice cooker. The kids can eat rice for breakfast, just add in some sugar, raisins, cinnamon etc. my grandkids love it.
be sure that you have enough little lunch kits and containers to pack healthy veggie and fruit snacks for the day, instead of relying on junk food. They make a little tupperware type container with a well in the center for the dip (& a little lid) & then a place to put veggies or fruits. I have seen these several places but I remember my favorites were at the container store. Walmart also has a line of tupperware containers that are leak proof. I love these because they can float around in a cooler of water & ice & not get water inside of them !!!!
This is why you are ALWAYS supposed to get a hard copy of all tests for your OWN files.
Tiffany the world needs people like you !!!!
I used to be married to a doctor and knew lots of doctors socially - of course these would now be older doctors - if they are still living, the whole lot would not deserve your good thoughts of their profession.
It is worse than you can imagine...
Has she had a complete blood work up to check for vitamin levels etc? I would say to mail her some B12 - she should take a B12 everyday, this is very important, she might even need to get B12 shots...
Most of us are low on B12 - & some dangerously low.
Even if we test at the acceptable level - it is too low, Take a B12 everyday.
you will not overdose taking a multi with b12 & a B12...
We have DQ1 in our family & yes you definitely want to keep him gluten-free. I have two DQ1's one of the same ones as your son 0303, I passed it to my son, who passed it to his son & his daughter, the lst kid has not been tested yet, my sister also has that gene. My sister & I & my granddaughter also cannot do dairy. We have a lot of food allergies, hives, sinus infections, asthma, ear infections, bladder infections, tonsils out, appendics out, rheumatoid arthritis, my mother died of colon cancer-she was also addicted to food & cigarettes, addictions are a symptom of DQ1, constipation, irritability, depression (very common), IBS, gall bladder problems, my son has liver damage at 36 but refuses to go on the diet,... on & on
If your family is like mine we are all sick all the time with a lot of stuff, I am the healthiest person in the family now & I used to be the sickest!!!! If you see a family that everyone is always sick, I would bet they have DQ1.
I am sure the DQ2 & DQ8 people suffer, but do not think that DQ1 is "just" gluten intolerant, IMO it is worse than celiac.
I believe, You are what you eat !!!!
I am the oldest in my family and the healthiest.
I have to go to the doc once a year to get my blood pressure med script. I am always afraid that I will catch a germ from some of the sick people there!!!
I think testing is totally optional. I do like the gene test to see if you have the genes. Some disagree with me but I think if you have the genes and you have ANY symptoms you need to be gluten-free. If it were my loved ones I would want them to be gluten-free if they have the genes even if they had no symptoms. But my mother died of colon cancer and I think the gluten-free diet is the best cancer prevention there is!!!!
Congrats Mia on your pregnancy, I was also going to say cut out nightshades, especially black pepper - It gives me little pains (they hurt) in the finger tips. I also cannot eat potatoes they give me chest pains.
check this out for yourself, but i find that if you cannot eat potatoes a lot of time you can eat corn.
Lundberg rice chips are good & have no cross contamination issues
eat a lot of fruits and veggies with protein foods, good luck
I have a grown son.... IMO chances are nil you are going to get him to the doctor to demand tests that the doc is unfamiliar with. Your best chance I think, is to order the tests from enterolab.com
not that I am too happy with them at the moment as my granddaughter's test came back negative, when I definitely know she has a problem...
YES, YES, & YES... I was telling a doctor friend recently that I do not think that there is a person that is celiac or gluten sensitive that is not depressed on some level, before going on the gluten-free diet which has helped me a lot... depression is one of the main symptoms along with a lot of other stuff, and a lot of people have no symptoms or only one or two.