Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Lillyth

  • Rank
    Advanced Community Member
  • Birthday 03/22/1977

Contact Methods

  • Website URL http://

Profile Information

  • Location San Francisco, CA
  1. Thank you!  I just made sure I can get email notifications, so if anyone has an questions about disc replacement, feel free too pm me!
  2. Thank you.  And now, because of this thread, I am having the celiac conversation with folks over at my spinal forum!  I am going to see if I can figure out how to get the site to email me if someone needs me.  I'm not on here but want to be avaible in case someone needs me.
  3. I haven't been on here in years, and I know this topic is very old, but I just wanted to bump it and mention the possibility of going overseas to get the discs fixed.  I am doing that this weekend.  I will be the first American to have six levels replaced in my spine all at once.   Don't suffer needlessly.   My theory is that the disc problems happened before our Dx of celiac.  I don't know that we can really reverse it, but we can get them replaced and get on with our lives.
  4. Corinto, Nicaragua

    Yet another port I can find NOTHING about. Anyone ever been here? Or know anything even in general about Nicaragua? Thanks!
  5. Thanks to Larry, I now have ports 2 and three taken care of! Now we come to more difficult territory. Guatemala. I recall once having Guatemalan food, but that was before, when I didn't know there were things I couldn't eat. I would love any and all info on this particular city that anyone has, or even on Guatemalan food in general, since I don't know anything about it. I imagine the bulk of it is safe, but I'd love some more specific info than that... Thanks guys! Lilly
  6. Acapulco, Mexico

    That is so great to know, Larry, thank you! I will take your advice, and happily. I am very glad to know I will get a more authentic experience - I was worried I would be stuck with only high end resort type places - which, while I love such food, is hardly the *real* Mexico. You just took care of two ports for me! Now for the other eight.
  7. Acapulco, Mexico

    Hi everyone! I am looking into going on an 18 day cruise from San Francisco through the Panama Canal to Ft. Lauderdale. I will be asking intermitently about ports of call. I am trying to ascertain ahead of time if it will be worth it for me to go. Luckily I found a place in Cabo San Lucas (Sunset da Mona Lisa) that everyone seems to recommend, and has listed right on the menu what is edible by us! Not it seems that is not the norm down there. I can't find anything in Acapulco. Is there any place you guys can recommend in that city? Fancy or not, I don't care. Just as long as I can eat there. I will be posting any other cities I am inquiring about separately. Thank you in advance! Lilly P.S. Any experiences with Holland America?
  8. McCann's is NOT gluten free! The following from their website: Are McCann's Oat products gluten free? All McCann
  9. Just in case anyone searches this in the future, it is a generic drug, so you need to contact the specific mfr. for exact info. As of 9/24/07, Watson Pharma, who makes Kaiser's Nort., says they are not a gluten-free Pharma Co, which mean they do not certify the gluten-free status of their drugs. The most likely source for gluten is, however, starch. The starch in this drug comes from Maize (corn). They cannot, however, speak for any other ingredients in their drugs. They do not know the sources of all ingredients in their drugs. You can take your chances if you wish, but I chose not to. Though I know the chances are low of getting glutened, I would have been taking this for a pain drug for abdominal pain, and the last thing I need right now is MORE abdominal pain
  10. The pharmacist I spoke to says it's not. My doc says she spoke to a pharmacist who says it is, and an old post from 2005 says it's not. Anyone know for sure?
  11. Hi There Rachel! I have to say this is really funny that the first post I read & respond to is yours, since you just told me to come here. Anyway... I don't know about the corn, but are you hypo or hyper thyroid? My doc to me I was hypo a few years back, and, being that we are both anti medication unless all else fails, he suggested I start eating red meat, because there is some thing in it (lysine? tyrosine? I forget) that helps with the regulation of your thyroid. Do you eat meat? Red meat? That could maybe help. I had been a vegitarian for four years before that, and damed if eating red meat didn't work for me. Course, this was pre-celiac dx, so it might have just been the elimination of so many fake meats containing vital wheat gluten... I didn't read through the rest of the thread yet, so I don't know if anyone else mentioned this, but I thought I'd toss it out there because it is the only solution I could think of...
  12. At the Stanford Celaic Conference yesterday I spoke with Dr. Peter (I think) Green. He is one of the MAJOR experts on Celiac. He told me that a Celiac who has been on a Gluten Free diet for a while may very well test negative for Celiac. Also, when I went through the gammut of allergy tests a few months ago, I was very perplexed to find out I tested "negative" for wheat. When I aksed what that was about, my allergist told me that when they test for wheat allegergies, it does not test for celiac - they are two separate things!!!! A proper wheat allergy WILL KILL YOU - or at least send you into anaphalactic(sp) shock. So unless your throat closes up on you when you eat wheat, and you require an epi-pen for it, then it is NOT a proper wheat allergy. According to my biopsy, I do not have celiac, bu then, I have been on a gluten-free diet for over six months. As Dr. Green said, a celiac who was on a gluten-free diet might very well have normal biopsy results. One thing I learned from yesterday's conference is to seek out a Dr. who specializes in celiac disease.
  13. Oats?

    As a matter of fact - thanks to the Celiac Conferece yesterday, I do! Oats do not, of themselves, contain gluten. But because of the ways in which they are grown, they are often contaminated with wheat. There are two different mfrs. in the US that carry gluten-free oats. I don't know their names off the top of my head, but if you do a search for gluten-free oats on the web, I'm sure you can find them. However - the docs from yesterday said that a small percentage of celiacs (I don't recall the exact percentage number) have a celiac-like reaction even to gluten free oats, and they don't know what causes it, or if it is related to the celiac disease. Also, I don't know about the rinsing off of oats - at the conference yesterday, the preseters said more than once that getting the gluten wet is what activates it, so I would think that rinsing the oats would make it worse. But I don't know for sure.
  14. My two cents: No, the mother was NOT being responsible. I have been in a facility, personally, that says they use dedicated equipment for wheat & corn. All the equipment is wood, which, as we know, retains gluten. When I was witnessing the milling process, wheat flour was EVERYWHERE!!!!! The mills were one foot apart. I had a hard time even being in the room. They actually advised me to keep a wet papertowel over my face to keep the wheat flour out of my mucous membranes (which I appreciated). It made me thing though, that the wood equipment, which was one foot away from the mill, MUST be getting wheat flour on it - I was in the back of the room, and had problems. That being said, I know of at least one facility that uses only stainless steel for all production. It IS a shared facility, but they DO clean everything in between processing, and NEVER process more than one product at a time. So - in short, some facilities may be safe, while others are not. I think it is either trial & error, or "russian roulette" every so often. I don't have a hard & fast rule, sometimes I go one way, sometimes the other. But I DO keep note of which mfrs are on my "safe" list, and which are on my "no-way-in-hell-not-ever-not-even-if-i-were-starving" list...