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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About xander42204

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    xander42204's Activity

    1. xander42204 added a post in a topic Update On Our Son   

      Wow- what a truly inspiring story! Best of luck to you and your family!
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    2. xander42204 added a post in a topic My Son May Be Celiac   

      I had a somewhat similar situation to yours and I had to end up switching to another pediatrician. It is hard to switch once you become comfortable with them, but sometimes it is for the best Before my son was diagnosed his eyes looked so sick all of the time. They were always purple underneath because he wasn't getting the nutrition he needed. He did not sleep well either because of the tummy aches. I hope you can convince your doctor to run the tests. This is a great place to get help and support, so stick around and lots of luck.
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    3. xander42204 added a post in a topic Feeling Frustrated   

      Hi- I just wanted to give everyone an update on my little one. I really appreciate all of the help you have given me and I am definitely going to stick around here. I wish I would have used this sooner- it's great. The doctor called and much to his surprise and ours he had wonderful news. The biopsy results came back and showed there is no inflammation in his intestines. He is absorbing and getting what he needs right now. They were really pleased with the internal change that has occurred in the past eight months. We were so upset after what the doctor initially told us, but I'm glad it happened that way. We have learned so much more in the past few days about the disease.
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    4. xander42204 added a topic in Gluten-Free Restaurants   

      Visiting Tennessee
      Hi-we are going on vacation to Pigeon Forge, Tennessee next week. This will be our first vacation since our little one was diagnosed with Celiac disease and we were wondering if anyone knew of any restaurants in that area we could take him to or any bakeries, etc? We are traveling from Ohio to Tennessee, so if anyone knows of any stops we should make let us know. We live in a small town where Celiac is unheard of- no specialty shops or bakeries, etc. Thanks for your help!
      • 1 reply
    5. xander42204 added a post in a topic Feeling Frustrated   

      This is like a breath of fresh air for me- others who actually understand what I am talking about. I am so tired of getting the "crazy looks" when we go to a restaurant or the grocery store. People seem to be either extremely rude or very kind. You have all been so helpful. When our little one was first diagnosed I asked the doctor about baby wipes, shampoos, soap, etc. He told us that we did not need to worry about that type of stuff, but apparently we do. What do you recommend for us to use? I feel like we've been doing everything wrong so far. What about cleaning supplies- such as Clorox antibacterial wipes, etc.? I have been giving him the Poly-Vi-Sol w/Iron liquid vitamins because I had been told they were gluten free. I did discover that one product we had been giving him (Kellogg's Fruit Snacks) does contain trace amounts of gluten. It was listed in the Celiac Product Listing as a gluten free product, but when I called about a new variety that had just come out with they told me that none of their products are gluten free. We started taking away milk today, so we'll see how that goes. Some of the gluten free products he eats do list soy as an ingredient. I'm confused though- he went through allergy testing in February and he was not allergic to soy or milk products. What do you give them in place of milk for their diet? I just don't want to screw anything else up, so I'm sorry if I'm full of questions. Thanks for all of your help- we really appreciate it
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    6. xander42204 added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Feeling Frustrated
      Hi- I'm new to all of this and feeling very frustrated. Our son was diagnosed with Celiac when he was 18 months old through blood tests and a positive biopsy. The doctor took another biopsy this week to confirm that his intestines were healing after eight months of being on the gluten-free diet. Well, so far we did not get the good news we had expected. From what the doctor could see the villi are still flattened and he said he'll know more once the biopsy results come back. We have kept him on a gluten-free diet since he was diagnosed and do not know what we are doing wrong. He still has some bouts of diarrhea occasionally, but he has grown and gained some weight. Outwardly, he looked like he was doing much better. I was just wondering if anyone else has a child that did not respond to the gluten-free diet or if anyone has any thoughts or suggestions. We live in a small little town where the word celiac is foreign and we feel very alone, but we are trying to say positive. Appreciate anything you have to say.
      • 14 replies

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