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kristi

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About kristi

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    the3trees@yahoo.com

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  • Interests
    Climbing out of the celiac pit!
  • Location
    Portland, Oregon
  1. NEW THOUGHT on mold inhibitors: I was so suspicious of every food item while I've been sick lately that I have been looking into every label with all the extra time I've had lately being in pain! It is amazing how feeling crappy inspires one. The name "natamycin" on several shredded cheese ingredient lists as a "natural mold inhibitor" soundly suspiciously like the spelling of some of the antibiotics I have been trying to do research on. I've gotten some very bad reactions from antibiotics lately. With some research I have found my surprise yes, it "is" an additive not allowed in Canada and is an "antibiotic anti fungal" originally used by veterinarians for getting rid of ringworm on cattle and horses and used in pharmaceuticals to get rid of eye infections before used in America to spray on cheese so they can sell this new trend of shredded cheese that won't mold very easy with a long shelf life. Yuck. No studies yet if it can be passed through breast milk, blah, blah, blah. I can't believe they don't have to label that. I know it is in small doses but if your body isn't working right to begin with I'm sure that isn't helping as things get absorbed in the intestines. They claim in rats that only 5-7% is actually absorbed in the small intestine and 90% passes through the bowels.
  2. Josh I want to know too, you are not alone. I'm currently in Portland as well. At this point I'd travel anywhere and relocate for awhile to get this figured out. Here's my story already posted...My original diagnosis showed up with high IgG and low levels of adrenal antibodies in my blood work from a gland specialist in a hospital. I was so sick back then and was seeing a zillion doctors in the Seattle area. I felt like I was dieing and all of them weren't coming up with anything. I kept asking where I could go for more tests and a different kind of specialist with what they found in the bloodwork but they just said no more tests, just don't eat wheat and see your GP. My general practioner said she had never heard of such a thing, she had no idea how to read the test results and ran to her computer in the hall shortly followed by bringing in a nurse for "dietary advice". The nurse said, "Now it's important not to eat flour." That was it! I think you got a longer sentance out of them. That is just scary. Oh my gosh there is so much more to it. I had learned more than that the evening before on the very first hit on the internet. They sent me out the door. I went back to the hospital pleading for direction and they aimed me to an allergy clinic were I spent hundreds and hundreds $$$ (on top of the thousands already spent) just for me to finally learn there is a difference between intolerances and allergies as this was showing nothing. They only tested for allergies not intollerances at that clinic. Nobody seems to be very educated in this. I sure we are not a unique experience. I'm afraid to experient and go backwards without a good doctor in the wings while I do home tests if that involves eating more wheat to get correct results. I'm up for a trip to the east coast, lower west coast, Europe??? Keep in touch if you get any direction, especially local ! Thanks Kristi
  3. THANKS everyone for your help!!! My original diagnosis showed up with high IgG and low levels of adrenal antibodies in my blood work from a gland specialist in a hospital. I was so sick back then and was seeing a zillion doctors. I felt like I was dieing and all of them weren't coming up with anything. I kept asking where I could go for more tests and a different kind of specialist with what they found in the bloodwork but they just said no more tests, just don't eat wheat and see your GP. My general practioner said she had never heard of such a thing, she had no idea how to read the test results and ran to her computer in the hall shortly followed by bringing in a nurse for "dietary advice". The nurse said, "Now it's important not to eat flour." That was it. Oh my gosh there is so much more to it. I had learned more than that the evening before on the very first hit on the internet. They sent me out the door. I went back to the hospital pleading for direction and they aimed me to an allergy clinic were I spent hundreds and hundreds $$$ (on top of the thousands already spent) just for me to finally learn there is a difference between intolerances and allergies as this was showing nothing. They only tested for allergies not intollerances at that clinic. Nobody seems to be very educated in this. I sure this isn't a unique experience. I just want to know if I have it or not. I'm afraid to experient and go backwards without a good doctor in the wings. Is there a special clinic SOMEWHERE...ANYWHERE in the country I can go to that knows what they are doing? I'd travel anywhere and relocate to get this figured out! Thanks for your ideas.
  4. Will the complete panel and the gene test work for me? I have now been gluten free for a year but would still like to know more. Will that mess up the tests completely? Kristi
  5. Many eating establishments use pre-shredded cheese which it comes with a very common additive, Cellulose (usually not gluten) which is used to coat shedded cheese to prevent clumping and is white in color. When in doubt, check it out though. Most are safe.
  6. I made some yummy meatballs for the first time last night using ground turkey meat, 1/2 c fresh onion chopped, 2 eggs, 2 cloves of a garlic, a bunch of Lea and Parrin's worcestershire sauce, a bunch of different Italian seasonings (since turkey tends to be a little on the bland side) I used quite a bit. I had a little trouble getting it to bind together so I added a small handful of 100% buckwheat cereal uncooked. I just learned that buckwheat is a fruit not a grain and has nothing to do with wheat. So far I've had no problems with it and it's so nice to have another option. I get it at the grocery store from Bob's Red Mill. It says tested for no gluten on the package. I made the balls and popped them in the oven to bake. The whole family loved them served up with spagetti squash and tomato sauce. I winged the recipe but I wanted everyone that can handle it to remember buckwheat as another option.
  7. I'm hoping you will be able to meet up with some of the people 3 pages back. http://www.glutenfreeforum.com/index.php?showtopic=2688 Some of them seem to live there. Kristi
  8. I visited China ealier this summer. I think other people on this site were there as well. We talked about China (back on page 7 by now ) if that is helpful: http://www.glutenfreeforum.com/index.php?showtopic=3590 Let me know if you have any questions. Kristi
  9. Much of the soy sauce in Thailand doesn't contain wheat. That place was the first big trip I went on after I got diagnosed and started to feel better. I loved rice noodles and Thai food in general. I had good food experiences travelling there. I spent most of my time in the mountains celebrating the Loi Kathong (Sp?) festival, it's a beautiful time at the end of the rainy season. Exciting Adventure!
  10. Sorry I can't help you on Impromptu or Vietnamese cooking. The latter, of course, always beware of the soy sauce and other Asian sauces. (and "only" if you are travelling outside the US a lot of the MSG does contain wheat in much of Asia). I just wanted to add that for something informal, I went to DaVinci's Bakery and had the best wheat free meatloaf sandwich. They don't label the bakery as "Gluten-Free" because they don't want to scare away the mainstream public but I asked them and they confirmed ALL is gluten-free. It is nice to have choices.
  11. I had some from Widmer, Portland Oregon, that was great and I didn't get sick. If you are in Oregon try New Season's Markets. They have been publishing that they were suppose to getting some gluten-free brew (I think Bard's) in this month.
  12. Hi, I'm a bit a newbie. My husband's working in Portland so I quit my job and moved down here. I love Portland. Worst part has been moving away from all my friends. I'm from the Seattle area. It seems like there are quite a few places to go out and eat. I love the art scene here, it is kind of a trippy city. It's nice to meet you.
  13. Hi, it seems Portland is a bit of a gluten-free mecca. I think we are lucky to be around resources. I just moved down here from the Seattle area and love it here. I am still looking for a doctor in this area so if anyone has had any good experiences PLEASE let me know. My tips to add, I brought up the gluten-free topic with a person at New Season's market and they gave me a gluten-free tour of their store. I found out about products that I hadn't thought of before that would cross over to other shopping places... and....Widmer Brewery (such an unlikely place) currently has on tap, a gluten-free brew, some type of sorgum thing. It is left over from a contest they entered and no they won't be putting it in bottles and they will only be carrying it until it runs out, so call first to make sure they still have it. I'd stay clear of the food on the menu though. I was sooooo scared, like I was sitting in a bees nest while I was in there, surrounded by gluten, but I felt great after I had it.
  14. Hi Sierra and other Portland area people! I'm new to this area and don't know anyone down here yet. Where and when do you find out where meetings are happening? I've never been to any. Do groups have websites where they list them? Just read about the one in Salmon Creek, I'll have to learn where that is, any in Portland? Any good doctors or clinics in this area that anyone has experienced? Thanks, Kristi
  15. I was happy to notice that Kirkland Brand was posting "Gluten Free" on some of their labelling of hot items like their cooked whole chickens. I also asked and they brought out a book at their deli counter and I can now eat the chocolate dipped ice cream bars. They seem to be really good about changing gloves before dipping the individually wrapped bars. I thought this would help the CC because another part of the kitchen serves Pizza. I called to thank the corporate office about the clear labelling and they told me the main allergens in the soft serve yogurt at the deli was dairy and egg so for some that might be an option too.