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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About wonkabar

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  1. Aint that the truth! As a mom of a little one with ADHD, isn't amazing what such seemingly benign things like the sound of a lawn mower could do??!! If you haven't read the book ADHD: Life Without Brakes by Dr. Martin Kutscher, I would defintely buy it. It's an excellent book for parents (and grandparents). I feel so sad for my little guy sometimes. It's not always being him. Fortunately we have far more good days than bad, but it still stinks to watch your child struggle no matter what the reason. PTKDS---Yes indeed, Sensory Processing Disorder is a huge part of ADHD as are many other things. I agree that, in addition to a developmental pediatrician, you absolutely need to have your child evaluated by a PRAXIS Certified OT in Sensory Integration Therapy. These OT's have additional schooling and certification that is exclusive to sensory processing. Children with SPD cannot modulate (regulate) environmental stimulus (visual, auditory, tactile, etc.) or instrinsic stimulus (internal responses such as hunger, emotions, hunger, etc.). Google Dr. Lucy-Jane Miller and SPD. You'll get a ton of hits with very useful information. A couple of years ago, she completed a major study that provided concrete, scientific evidence which substantiates the correlation between ADHD and Sensory Modulation Dysfunction/ SPD. Missy's Mom----I'll check back at my info. from when we were researching our natropathic doc and pass it along either tonight or tomorrow. Oh, I almost forgot. As far as I know, no one but a speech and language pathologist can specifically Dx a Central Auditory Processing Delay. I taught special ed before I had my little one's, and I don't ever remember having a psychologist specifically Dx a CAP Delay. They can certainly indicate that there's a language delay which is usually the result of parent information and observation, but there's a specific battery of tests that need to be administered by a speech and language pathologist. This typically isn't done until the child is about 7 y/o either. I've talked with our speech therapist at school about a CAP eval for my little guy. While it's obvious that he's got an auditory processing delay, she has said that he's still too young for the actual eval. The developmental skills that are part of the assessment are for children who are of school age not preschoolers or even kindergarteners. BTW, a great book about CAP Delays is titled When The Brain Can't Hear. --Kristy
  2. My just 5 year-old son was given a primary Dx of ADHD with a comorbid Dx of Anxiety Disorder and Sensory Processing Disorder in Nov. 2007 (at 4 1/2). He also has a Central Auditory Processing Delay. ALL of these difficulties are very common in children with ADHD; it's soooooooooooooo much more than hyperactivity, impulsivity and inattention. Behavioral difficulties are also part of it! Children with ADHD very often have a Learning Disability and/or other comorbid difficulties such as anxiety, sensory processing difficulties, language processing difficulties, etc. ADHD is a Frontal Lobe Disorder and this directly effects Executive Functioning which is responsible for things like emotional self-regulation, impulse control, ability to deal with frustration, etc. No wonder our poor little ones have so much difficulty sometimes. We did a Rx medication trial for a month with my son. Meds. had some positive effects, but the side effects were awful. We've been seeing a naturopathic doctor since January, and using all natural, homeopathic's more than twigs and berries! Homeopathy treats the "whole child" versus specifically treating specific symptoms. Although it's a process and takes time, we're seeing wonderful results. We did a lot of research about naturopathic doctors (credentials, education, philosophy, etc.) to ensure we weren't going to end up seeing some nutcase who got a docotor's degree on-line! We've been very fortunate in that all of our doctors and specialists have been great! There's two things I'd recommend. First, request a full educational evaluation from your local school district's Child Study Team (CST) A Learning Disabilities Teacher-Consultant, School Psychologist and Social Worker will all have a part in this evaluation process. You'll need to submit your request in writing to the Director of Special Services in your district. This is also free of charge no matter where you's federally mandated! After the eval, you'll meet with the CST to discuss the results. If your child is found to be eligible for special education services as a result of these evaluations, you'll meet with the CST to discuss an IEP (Individualized Education Plan) and what types of services and support your child will receive at school. The other thing I'd recommend is that you see a Neuro-Developmental Pediatrician for an evaluation. A child psychologist would also be great (ours is great and specializes in ADHD) but the district is gonna want a Dx from an MD to back up the psychologist. Children with ADHD, if eligible for services, are usually classified through the district as Other Health Impaired (OHI). You do need a definitive Dx from an MD to support this. I just finished reading an AWESOME book called ADHD: Living Without Brakes by Dr. Martin Kutscher. It was chockful of information and very parent friendly. It was just published. What I love most about this books is that it really focuses on the fact that ADHD is indeed a neurological disorder and sooooooooooo much more than a misbehaving, hyperactive child. It explains ADHD in terms of the Frontal Lobe and difficulty with Executive Function and everything that goes along with know, tantrums, impulsive reactions, transitions, anxiety, etc. You can purchase it on Amazon. I promise you'll love it! There were times I wasn't sure if I were reading about my son, husband or younger brother.....not too much of a genetic component, huh??!! I wish I had this as a resource when I was still teaching special ed. It just explained things in such practical terms that it made me shake my head and say, "yup!". Sorry this was so long winded; I always like to reach out to help another mom or dad save precious time for their little ones when I can. Lots of luck! (Definitely buy the book!!) Oops...forgot to mention. My son is a beast if he's been accidentally glutened. Without question, gluten has a tremendous impact on his behavior. This hasn't happened in a very long time.
  3. Does anyone know if Best's Hot Dogs are gluten-free? Thanks!
  4. Hi! This information is very last minute........... I just found this information about the National Sensory Processing Disorder Conference. It will be held in Orlando, FL on February 23 and 24.[/color] Carol Stock Kranowitz is the Keynote Speaker; she's the author of The Out-of-Sync Child. The "course" descriptions sound great!! My little guy has a primary Dx of Sensory Modulation Dysfunction so I was absolutely thrilled to find a conference exclusively dedicated to SPD. All of the other conferences that I've found discuss SPD in terms of the Spectrum or are intended for OT's/medical background. I know some of you have little ones with sensory difficulties so I just wanted to share this with you all.
  5. The February 2007 issue of Woman's Day had an article titled Diseases Doctors Miss (page 66). Once I saw this title, the first thing I did was flip the pages to see if Celiac Disease was listed...and it was! It was a brief but decent blurb that included someone's story, common symptoms, Dx, treatment a link to and the 800-number for the Celiac Foundation. Other "missed diseases" included MS, Lupas, Fibromyalgia, Polcystic Ovary Disease and Chronic Fatigue and Immune Dysfunction Syndrome. Albeit a little unsettling, it was certainly an interesting article.
  6. Wendy's French Fries?

    My son has eaten Wendy's fries quite a few times without any, I probably jinxed myself! If you call, ask to speak to a manager and be *very* specific about what you mean by a dedicated frier. I have to say that the Wendy's by me has been incredibly helpful and mindful of the need for gluten-free. When I order my son's plain burger and fries, I immediately tell them he has an allergy (it's just easier) and absolutely must have a fresh burger that did not touch the bun. They've actually waited until I've come to the window to pay before they even pack his food to confirm that they've "got it right." I don't do Mc Donald fries....way too much controversy and way too big of a risk. Just MHO. Wendy's is just as convenient for me to buy as a treat.
  7. Do Not Eat Honeybaked Hams

    I just spoke to organic's and the meat manager. The manager confirmed that their spiral ham is infact gluten-free.
  8. What a cutie!! I know the diaper rash all too well!! My little guy had a blistering, bleeding diaper rash for nearly two years; it was awful. I felt so badly for him. Anyway, the *only* thing that helped it to heal was an ointment called Triple Paste. If you do a search here on the forum, you should come up with a link. I posted all of it's info in that link.
  9. Ah! I just *love* homemade chicken soup with or without a cold! I have it in the freezer all of the time. It's easy, cheap and've gotta like that! I've never heard of the hot lemonade thing though. Is it as simple as warming up homemade lemonade?
  10. FYI...Just spoke to someone on the Novartis help-line and Triaminic Cough and Runny Nose is gluten free. Happy Cold and Flu Season to you and yours!
  11. *Hormel Turkey Pepperoni *Sorrento Moons and Stars cheese *Ener-g pretzels *Tostios ("circle chips") with toppings like melted cheddar. salsa and guacamole *Terra brand Exotic Vegetable Chips (my kids love these) *Sweet and Sour Turkey Meatballs (made with gluten-free breadcrumbs...sauce is equal parts of Heinz Chili Sauce and Welch's Grape Jelly.......YUMMY and easy! If you PM me, I'll pass along the recipe! *Popcorn *fruit kabobs with mini marshmallows *antipasto pasta salad (with Tinkadya pasta) This can be made ahead of time! *chicken fingers on a skewer w/different dipping sauces (peanut, bbq, mustard, ketchup, soy/honey,garlic) *lettuce wraps w/tuna or chicken salad
  12. "Traditional" testing for toddlers is very often inaccurate. My son's labs were negative, and we also chose not to put him through the biopsy. We weren't willing to put him under anesthesia if we could simply remove gluten from his diet to see if if helped him. He was 3 at the time and is now 3 1/2. His growth was always above average BUT he was always highly symptomatic of celiac disease. His poops were absolutely disgusting...very pale, always the consistency of applesauce and had a horrible odor. He easily had 4 BM's like this a day which also resulted in a bleeding, blistering diaper rash. He would wake up in the middle of the night 3-4 times a week crying and screaming for no apparent reason. He'd also start to scream/cry during the day for no apparent reason. When he was about 2 1/2, we took him to a pediatric GI who told us his gi issues had nothing to do with food and a change in behavior is "purely coincidental". He felt we were probably giving him too much fiber (whole grains) and that was probably making him gassy/crampy and giving him dirreah. HELLOOOOOOOOOOOOOOOOOO!!! Whole grains???!!! Ugh! Fast forward...we were watching MSNBC one night and heard about celiac disease on Keith Olberman's show. (Zachary was nearly 3 y/o.) Keith Olberman is a Celiac. Having never heard of it, we googled celiac disease. We were at a loss for words when we read about it...IT WAS ZACHARY!! We had his labwork done the first week of March and removed him from gluten the very next day. The results of removing gluten from his diet were truly amazing. Every God-awful symptom (physically and behaviorally) disappeared almost immediately. Within 48 hours his poops were becoming formed and he also stopped screaming/crying. Zachary was a preemie and we've always wondered if that type of stress on his body triggered the auto-immune response. He also has a mild speech delay and sensory modulation dysfunction; both of which are the result of a gestational age of 32 weeks at birth! He's doing great! We had him tested through Enterolab. He tested positive for a gluten sensitivity, auto-immune response to gluten, one main-celiac gene and one non-celiac gluten sensitivity gene. Enterolab does not Dx celiac disease; it tests for your body's reaction to gluten. Does Zachary clinically have celiac disease?? We'll never know b/c we chose not to have a biopsy done. Not to mention we'll never put him back on's nasty stuff. What we are 100% sure about is that when we removed gluten from Zachary's diet, we prevented any serious damage from occuring in his intestines and he was immediately relieved of the msierable symptoms he suffered from since he was a little over a year old. That's proof enough for us!
  13. OMG, yes!! I love the Johnny Mathis Christmas collections. That is my favorite JM christmas tune! I have several of them...this, of course, is the brunt of jokes from my friends!
  14. I was on a low-dose of Effexor-XR. I did not have a difficult time with the withdrawl doctor had me do it very slowly. However, I have heard nightmares of people coming off of Effexor. My bestfriend had been on Zoloft for quite sometime and recently stopped taking it without any issues. I agree with Richard; a lot of these medications depend on how you personally react to them. Lots of luck! and hope you feel better!