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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About heathen

    • Rank
      Advanced Community Member
    • Birthday 06/21/1981

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    • Gender Female
    • Interests hanging with the hubby, yardwork, gluten-free pancakes
    • Location Arkansas

    heathen's Activity

    1. heathen added a post in a topic Can Celiac Be Diagnosed Via Colonoscopy Biopsy?   

      Celiac disease is a disease primarily of the small intestine, although you can see some changes in the colon that are non-specific. In other words, if you're going for biopsy, you have to get an EGD, although based on your history, your GI may opt to do a colonoscopy as well just to check things out.
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    2. heathen added a post in a topic Need To Test 6 Yr We Go To Regular Ped?   

      There is a brand new review of Celiac Disease in the Annals of Internal Medicine that recommends testing in 1st degree relatives of people with a new diagnosis of Celiac Disease. Your doctor should have access to this medical journal, or at least know someone who does. You might want to pass this info along. Biopsy is still the gold standard for diagnosis, but the antibody test (if they draw the right ones) is gaining more ground.
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    3. heathen added a post in a topic H Pylori Test..stool Or Blood   

      I don't think I've ever heard of a stool test for H.pylori... especially since it lives in the stomach. Hmm. Well, with the help of google, there is a stool antigen test--basically seeing if your body is fighting the infection. The blood test works on the same principal, whether or not you have Ab to the bacteria. I would think that the blood test is easier, but it might be more expensive than the stool study. I would ask your GP why he or she favors one over the other.
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    4. heathen added a post in a topic "mild Gluten Allergy" - What Does This Mean?   

      First, "allergy" is a bit of a misnomer, but alot of people use it because the preferred term, "intolerance," doesn't always communicate the seriousness of the condition. If you have a positive antibody blood test, you have Celiac Disease--there is no "mild" about it. If this is the case, all gluten needs to be eliminated from your diet. It's very overwhelming at first but very much worth it in the end. Most of us that are a few years out from diagnosis would never cheat--it's just not worth it no matter how good that Oreo looks!

      Second, you need to call your health care provider who made the diagnosis and ask these same questions. If you don't get helpful answers (or if you aren't directed to someone who can give you helpful answers), I would seriously consider switching providers.

      I have a non-gluten-free hubby, and we have a mixed kitchen. Thankfully, I was diagnosed before we got married, so he knows all about cross contamination. This is going to be your biggest issue unless the whole family goes gluten-free. As for the vegan diet, get plugged in to your local gluten-free community--usually just a google search away. Typically, you will find one or more Celiacs who are also vegetarian. They will be your greatest resource for what is available in your area.

      Good luck.
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    5. heathen added a post in a topic Fibromyalgia Or Celiac?   

      The important thing to remember is that fibromyalgia should be diagnosed using very strict criteria AND after everything else has been ruled out, including Celiac if GI symptoms are present. Unfortunately, it can be a default diagnosis when MD's are frustrated and would like to treat something. For those with fibromyalgia AND Celiac disease, it's important to practice good sleep hygeine and take part in mild to moderate exercise most days of the week as well as adhering to a gluten free diet. These will probably do more to help both conditions than anything else.
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    6. heathen added a post in a topic Betty Crocker Cookie Mix   

      I was having the same issues with the cookies being too crumbly. Now I blend the mix VERY WELL with a hand-held pastry blender (like you would use for from-scratch pie crusts). Once the dough is very formed, which takes about 5 minutes of blending, I form the small dough balls by hand. Have had GREAT success. Most of my non-gluten-free friends assume that they are "regular" cookies.
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    7. heathen added a post in a topic Low Dose Naltrexone   

      This drug is used to treat narcotics overdose. I'm not sure why it would be used for Celiac symptoms.
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    8. heathen added a post in a topic Sedimentation Rate-Westergren   

      This test is incredibly non-specific and does not diagnose anything. It's helpfulness is giving your physician an idea the level of inflammation, especially if you do have conditions like lupus. The destructive nature of Celiac Disease no doubt causes inflammation which may result in an elevated Sed rate, but so can a really bad stubbed toe.
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    9. heathen added a post in a topic In Order To Diagnose Celiac Disease, Is Biopsy Avoidable? - Medical News Today (press release)   

      Just one study... hard to change a gold standard test (the biopsy) based on just one study, although it would be nice to have a less invasive test to diagnose Celiac disease.
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    10. heathen added a post in a topic New To Doctors Really Understand This Disease?   

      First, everyone MUST understand that it is only in the last 15 years that the medical community figured out that celiac disease is not just a rare disease of childhood. This is what most MDs were trained to believe, and it takes a while to re-learn, but the awareness is growing.
      Second, most docs are not aware of the growth of the gluten free movement over the past few years. Again, they were taught that adhering to a gluten free diet was more difficult than most other diets, and they don't want to put their patients on something so restrictive if they don't absolutely have to. So, respectfully educate your docs on the gluten-free foods, restaurants, services available in your area.
      Third, I understand that many people who use this forum have had very bad experiences with some of their doctors. Yes, some doctors choose not to keep current and continually educate themselves. However, I feel some on this forum use a pretty broad brush in their characterization of the medical field. Very few doctors are just "in it for the money" or "do not want to diagnose Celiac because they are afraid you won't need them for future health problems." That's just ridiculous. While doctors, blood tests, and biopsies can be 100% wrong, most doctors are acting in what they believe to be your best interests.

      Celiac Disease is difficult. None of us have the exact same symptoms, and even "classic" presentations can look like so many other more common things. If your doctors don't "get it," try to help them understand rather than deciding that they don't care about your health.
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    11. heathen added a post in a topic How Cigarette Smoke Helps Celiacs   

      Regardless of anything nicotine might do to help our tummies, cigarettes are ALWAYS a bad idea. Multiple forms of cancer, heart disease, vascular disease, strokes, COPD... NOT WORTH IT!!! The only PROVEN treatment for Celiac disease is adherence to a gluten free diet.
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    12. heathen added a post in a topic Gluten Free Pie Crust Mix Tips   

      I use Roben Ryberg's traditional crust recipe from "the Gluten Free Kitchen." I just add cinnamon to the mix to help give it some taste. I've had great success with it. I use a Kitchenaide mixer and roll it out in between wax paper.
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    13. heathen added a post in a topic Central Arkansas -- gluten-free Pizza   

      also, don't forget Boston's near the airport.
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    14. heathen added a post in a topic Hello   

      pain meds, especially ones with morphine or codeine in them, are notorious for constipation. make sure they aren't making the problem worse. Keep on with the prune juice and gluten free fiber sources like rice or flax--they're often better than medical laxatives.
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    15. heathen added a post in a topic How Might I Deal With College Dining Hall Food?   

      Stick to the salad bar This is what i have to do at the hospital. i also use the prepackaged dressings.
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