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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About mandyann

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    1. mandyann added a post in a topic Reoccurring Rash On Bottom   

      I also have two patches on my rear,(one on each side) that were red and inflammed and itchy when I was eating gluten. I went off of it for about 6 weeks last spring and the redness got better. I went back on gluten for testing for about 3 months and the rash worsened. My tests came back positive for Celiac's and I've been off gluten for 3 months now. The redness is gone but the skin is kind of dry and scaley and still a little bit itchy. I showed it to my doctor and she agreed that if it is better when I am not eating gluten then it's most likely related. I also don't get rashes anywhere else on my body. From what I have read, DH usually is a rash with blisters. I may end up seeing a dermatologist just to satisfy my curiousity as to what it really is.
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    2. mandyann added a post in a topic gluten-free Since May, Chronic Fatigue Better, Now Fibromyalgia   

      Hi Mia-
      I don't know if I can offer alot of help but my symptoms are similiar, the joint pain w/o swelling and the stiffness. I did feel much better with my pregnancy but it wasn't until I was in my fourth month or so, and I felt wonderful, much better than I do when I'm not pregnant. My energy came back and the pain was gone. You would think that your pregnancy could bring on a flare up, it is a major stress on the body. I know that everyone is different but hopefully this helps.
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    3. mandyann added a post in a topic After Going gluten-free, What Kinds Of Improvements Did You Notice ?   

      I've been gluten free for about 11 weeks and the only improvement that I have seen so far is with an itchy persistant rash that I have had for several years. I still have periodic migraines (so I guess that's an improvement), and pain and stiffness in my muscles. How long did it take you all to see improvements?
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    4. mandyann added a post in a topic Feeling A Little Down After A Visit To The Allergist   

      Thanks! Yes, I know about McDonald's, it's rare that we go there and I thought I was safe with the fries but obviously not. Same with chocolate, it just can't be a coincidence if it's happened three times after eating various types of chocolate. I've come along way since a year ago, when I wasn't interested in trying an elimination diet during the holidays. I'll stay with it and be extra careful, hopefully the turnout will be coming soon.
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    5. mandyann added a post in a topic Feeling A Little Down After A Visit To The Allergist   

      I did do an IgG test through the Great Smokies Lab which came up with a mild sensitivity to a few things like yogurt, alfalfa, cane sugar and corn but it didn't pick up on dairy or wheat. I have seen a naturopath, osteopath and chiropractor but now I'm back under the care of a MD. The only time that I saw a turnaround of my symptoms was last spring when I went on the Paleo diet for about a month. It took a while but I did feel better. I ended up back on all the foods for the blood tests. I may have to go that route again.

      The allergist plans on seeing me back after I've been on this elimination diet and if I improve then he would reintroduce some of the foods back but he seemed confident that the gluten is an issue for me. Dairy is still up in the air, although it did show positive on Enterolab's casein test.

      Cassidy, over the last couple of weeks, I was glutened twice that I can think of off hand. Once was just last weekend, after having some McDonald's fries. I felt so bad the next day and what I experience is almost like an all over headache, as my Chinese doctor describes it. I also had this happen after eating chocoate from Whole Foods, and it has happened with other chocolates. I am somewhat in denial about those episodes and I don't know if it's a reaction to what I am eating or something else that's causing it. I think the elimination diet will help me understand those episodes, and a food diary is also a good idea. At this point, I can't tell if it's gluten or something else that is causing it, I wish I could. Just after I went off dairy I did experience some stomach issues, which I thought was odd but the same thing happened when I went off gluten, except it was headache and muscle issues.
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    6. mandyann added a topic in Other Food Intolerance and Leaky Gut Issues   

      Feeling A Little Down After A Visit To The Allergist
      Yesterday, I went to the allergist in hopes of getting to the bottom of my symptoms. I've been off gluten since early October after a positive result on the Celiac blood panel. I also just rec'd my results back from Enterolab which confirmed the gluten intolerance as well as casein. So, now I'm off dairy too and went to see the allergist to see if he could confirm the food intolerances. He did some scratch tests, which he warned me in advance aren't real reliable and of course I didn't come up with anything on the scratch test. He started me on an elimination diet and told me that if I don't improve in the next 10 days on the diet that we are "going down the wrong path". Ugh.. not what I wanted to hear. I have passed every blood test imaginable and I feel like I'm at the end of my rope with the pain. Can any of you share how long it took you to feel better after going gluten free? My symptoms are mostly musculoskeletal with migraines, not any with my gut.
      • 6 replies
    7. mandyann added a post in a topic Mcdonalds   

      I had some fries at McDonalds last night, after checking to make sure that the fryer was not used for anything else but fries. The last time I checked their website, which was probably over the summer, I saw that the fries were apparently gluten free. This morning I woke up with what I thought was the flu and I just now made the connection with the fries. I am a little confused (ok, a lot) about what their website now says about the wheat and dairy in the fries but unless this is a strange coincidence, I'd say I was glutened by the fries. It just proves the point that when eating out, you have to be very careful.
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    8. mandyann added a post in a topic Headaches In Celiac Patients   

      I too have had headaches for at least 20 years and have recently gone gluten free. My headaches have persisted but are getting better. The one other big trigger for me I'm finding is chocolate . Now that gluten is not a factor it seems that it's easier to pin point the other triggers or sensitivities.
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    9. mandyann added a post in a topic Has Anyone Ever Experienced The Same Symptoms?   

      I'm finding that I tend to have reactions to chocolate and when this happens I get very bad muscle aches, pain in the bottoms of my feet and swollen lymph glands (according to my doctor). I've been off chocolate now for 2 weeks and haven't had one of those episodes. I've also been off the gluten for 8 weeks now. It's a process of elimination for now and my doctor has run all of the appropriate blood tests to rule out other problems. Good Luck!
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    10. mandyann added a post in a topic How Long Did It Take For Your Blood Test To Come Back?   

      Thanks for sharing that with me. I have been suspicious of sugar for about 6 months now and my mother has a friend that gets migraines when she eats sugar.

      I just checked and the first time they ran my blood test for Celiac's, it took 3 days and the second 7 days. I hope you hear something soon. I need to find another option for my son, I don't think he would tolerate a needle stick well either. When he had his flu shot, he watched the whole time even though they told him not to look and I'm sure he'd do the same with a blood test.
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    11. mandyann added a post in a topic How Long Did It Take For Your Blood Test To Come Back?   

      My blood tests took longer, I can't remember exactly but 5 or 6 working days probably. Is Ryan your son? I am considering having my 5 year old tested by a blood test but I worry about how he will do. Do you mind me asking how you figured out your sugar intolerance? That seems to be a big one for me because when I have it, I get lots of muscle pain and fatigue. Can you test for it? Hang in there, if the tests are positive, you are on the way to getting him the help he needs.
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    12. mandyann added a post in a topic When It Comes To Cheese   

      I can very much relate to what you are going through. I just found out yesterday through my enterolab results that I have to give up dairy. I have given up everything else and now my one favorite treat, coffee with 1/2 and 1/2 is on the list. So, I went out and bought some non dairy alternatives and we'll see how it goes but I've tried them before and they just don't take the place of the real thing. I'm trying to focus on what I can still eat and trying to find some new treats. My doctor told me yesterday, that even though it will be hard to live without gluten, dairy, sugar and so on, I will be healthier for it.

      Those cheese sticks sounds wonderful by the way. Good luck and hang it there!
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    13. mandyann added a post in a topic My Enterolab Tests Are In..   

      Well, I did test positive on the Gliadin IGG/IGA panel that my doctor did, twice. But according to this, I do not have Celiac's only a gluten sensitivity, right? Now, I'm really confused.
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    14. mandyann added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      My Enterolab Tests Are In..
      Well, my Enterolab tests results are finally in. (it only took two weeks but seemed like forever) I understand all but the gene testing. Would those of you who are familiar with Enterolab give me your input on my gene testing results. It sounds my 5 year old son would test positive, since I seem to have both genes. Is it common to have both genes? Is it worth testing him or should I just go ahead and take him off the gluten too. As much as I hate to give up dairy, I've been waiting for confirmation on this one. I don't eat alot of dairy but I do LOVE it in my cappucino!!

      Fecal Antigliadin IgA 26 (Normal Range <10 Units)

      Fecal Antitissue Transglutaminase IgA 12 Units (Normal Range <10 Units)

      Quantitative Microscopic Fecal Fat Score 45 Units (Normal Range <300 Units)

      Fecal anti-casein (cow’s milk) IgA antibody 13 Units (Normal Range <10 Units)

      HLA-DQB1 Molecular analysis, Allele 1 0301

      HLA-DQB1 Molecular analysis, Allele 2 0603

      Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

      Thanks in advance for your input.

      • 5 replies
    15. mandyann added a post in a topic Coffee-your Thoughts   

      I really like my coffee too. Not that I drink alot, just a cup a day. When I gave up coffee (and the dairy that was in it), is when I started feeling better. It's a long story but I am back to my cup a day habit and about ready to do an elimination diet, so I know it will be going away soon, at least temporarily. I gave up gluten, six weeks ago and it is hard when you aren't able to have your regular treats. I've always said "everything in moderation" but with gluten, that's not the case. If coffee doesn't bother you, then a little shouldn't be so bad, right??
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