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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About pturse

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    • Birthday 12/11/1976

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    • Interests Running, cycling, mountain biking, hiking, reading, knitting, snowboarding, swimming etc.
    • Location Northern California

    pturse's Activity

    1. pturse added a post in a topic Best Foods For Long Rides/runs?   

      I did a half ironman last year. On the bike I brought along boiled potatoes w/a little salt on them. I cut them up into smaller pieces and put the in a zip lock and they worked out fine.

      Pre runs and stuff I do the pancake w/peanut butter OR gluten-free frozen waffles with peanut butter.

      I also tend to do Snickers minis if it's not too hot outside.
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    2. pturse added a post in a topic Feeling Worse On The Elimination Diet   

      Thank you both (emcmaster and Nancym). I think I am going to really give a full effort. My DH might think I am nuts since I *want* to restrict even more from my diet but I think it might help.

      I will try cooking the veggies really really well. That does seem to make some what a difference because I notice when I eat cooked broccoli vs raw broccoli . . . I get less gassy. Still gassy, but a lot less. I like the idea of adding eggs in first for protein. I am a runner and I know I will need some carbs/protein at some point but figuring out what really bothers me first is important.

      So I will try fruits for breakfast (I read apples and citrus are out right?). Veggies for lunch and veggies and perhaps yams/sweet potato for dinner? I read that sweet potatos were allowed . . . just not white potatos.

      Still will be hard to go w/o my morning tea though. :-)

      I take it that BEANO is also out huh? I tend to use that when I eat veggies.

      One thing I have noticed, and maybe this is just me, but have you seen those HANNS bags called Broccoli Salad where it's basically shredded broccoli, carrots and red cabbage? I love those but for some reason, my digestive system really doesn't handle it well and I think it is because it is shredded. Does that sound weird? I mean it goes "in" and "out" exactly the same . . . sorry for TMI.

      I don't post on here much, more of a lurker, but I am really trying to stick to this diet because my DH and I are considering kids in the near future and I want to be healthy for the process.

      Thanks again for the tips.
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    3. pturse added a post in a topic Feeling Worse On The Elimination Diet   

      I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

      So I have some questions re: the elmination diet.
      1. What on earth would I eat (remember I am a vegetarian)?
      2. How do you stick to it!?

      Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.
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    4. pturse added a post in a topic Questions To Ask   

      Thanks. I appreciate your concern and advice. I have started the iron pill again. I do train w/a heart rate monitor so I can keep track of my heart rate while training and I never push it too hard.
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    5. pturse added a post in a topic Questions To Ask   

      Thank you so much for the reponses! I really appreciate it and Bully4You, you didn't ramble. That is the kind of thing I am looking to ask and inquire about. Never thought about Yeast . . . will have to google that I guess and find out what it is in etc. I do eat primarily veggies and such but they tend to be the worst on my stomach. It's hard since I don't eat me. I do eat a lot of rice (white basmati or jasmine - brown is too harsh). I am trying to cut out sugar but I am addicted to candy sometimes . . . lots of small things I know I could do in my diet it is just really hard sticking with stuff since I feel so limited already.

      I don't feel weak from the lack of iron at all and I get my period so it is just odd that my #s are so low w/o any side affects. No bruising either.

      Might try the yeast removal after my 1/2 ironman if you think I'll feel weak . . .

      Thanks everyone!
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    6. pturse added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Questions To Ask
      First a little background:
      I have been diagnosed with Celiac since 2004 (I think). Have been on and off the diet for various reasons and I have been trying to stick with it since February w/a few minor slip ups. I don't get immediate symptoms just malabsorption, bloating and other stomach discomforts.

      Even on the diet I have terrible bloating and stomach issues. I am 29 and have never in my life time had a solid BM (sorry if TMI). I am also very active, always have been. I am currently training for a 1/2 Ironman so fatigue was never an issue. I used to be very low in weight but not horrible (5'7" and 120) and since starting the diet (numerous times) I am now 140 (a lot of it being muscle from training).

      I had a terrible doctor to begin with and later changed insurances & doctors. First doc diagnosed me which was great but wasn't into maintenance and I am stubborn and didn't stick with the diet etc. My new doc is constantly on my case, emailing and calling etc. Which I guess is good.

      On to my question . . .
      Recently, I went for blood work. I have severe iron deficiency. I have had a colonoscopy which was how I was diagnosed (very flat villi) and my new doc wants me to do an Endoscopy soon like next week. I am okay with that (though very nervous).

      My concerns are that even while on the diet, I still suffer even though I know I am being 100% gluten free. I am a vegetarian and vegetables kill me. All foods cause terrible bloating etc. I have lurked and see you guys mentioning Enterolab and other tests.

      Is there anything I should ask my doctor to do when I see him tomorrow in addition to him ordering my endoscopy? He is also forcing me to take iron pills. He wants it 3 times a day. I am doing 1 a day right now.

      Thanks for any input.
      • 7 replies
    7. pturse added a post in a topic Introduction   

      Wow, Robb, thank you very much for that ".02 reply." I really appreciate it.

      To answer some of your questions, I am not vegan for political or religious reasons. Mainly because 1. I am allergic to dairy (that was discovered when I was about 5 years old) and 2. I just never really "liked" the taste of meat and so at 16, decided to stop eating it. However, when I first went gluten free a few years back (I have been on and off this diet so many times, trying now for good). I happened to be in Maui at one crucial point in the diet when there was nothing for me to eat, but they had fresh Ahi Tuna Steaks. My hubby and I never liked sea food but both agreed to give it a try. Not bad. So I guess my "vegan" label should no longer apply, just so used to saying it so that restaurants don't mess up & give me cheese or beef. I can safely say, that now I indulge in a little fish (maybe once every other month) and usually Ahi. It makes eating out easier but I cannot do it in large amounts, I think my system isn't quite used to having that type of protein.

      I agree with your comments about the sugar. I have just started reading a Sugar Addict's Road to Recovery and she recommends a little protein at every meal, especially breakfast. Also, no snacks and lots of water. So, I am giving that a shot. I am trying eat Ahi more frequently and I have started eating eggs (or rather egg whites and egg beaters) more as well. Laying off the carby foods unless I have a big training session or a race. My one road block is I am around the sugar a lot (i.e. at work) so I am doing my best to not be around it as much (such as taking a route not past the "candy desk"). It isn't donuts or anything it's pure candy and not even chocolate.

      I also think my brain to stomach indicator is um, broken. I need to learn to eat slowly. I am guilty of eating too quickly and often standing up.

      I really appreciate all your advice and tips. My training has been going okay but for the amount that I do, I would think that I'd be losing a pound if not two. I am not worrying too much about it. Training time is not the time to try and lose weight. But I have been slightly dehydrated lately no matter how much water I consume.

      I will try the higher protein/fat diet a little more. Too much fat doesn't sit well with my already sensitive stomach nor does too much protein. Baby steps.

      Have a great weekend! It's been beautiful in Northern CA the past few days!
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    8. pturse added a post in a topic Question For Those Age 15-25... Ish   

      Thanks! I'd appreciate it. I am always willing to try new recipes and I love falafels.

      I am sensitive to fat. It never really settles well with me.
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    9. pturse added a post in a topic Question For Those Age 15-25... Ish   

      No, I have never heard of them. Really? Are they available in any store or just on line? I might have to go google them right now! Thanks!

      I just checked on line. They are more than 15 grams of fat for 1 burger. I am a little sensitive to fats and I been trying to lose the weight I have gained since going gluten free. Not exactly a good choice. Thanks though, perhaps some day I will get them.
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    10. pturse added a post in a topic Introduction   

      Welcome Robb! I am also in Northern California. Since going gluten free I have gained quite a bit of weight. Weight that wasnot totally necessary. A few lbs were fine but now I am pushing more than 15. I am a runner who has transitioned in triathlons the past year or so. I am doing my first 1/2 Ironman in Aug.

      I want to do better in all portions of the tri but I find these extra 15 lbs or so are weighing me down. I know I have developed some muscle but I know I have some "non-muscle" to lose and the more I train, the hungrier I get. Any suggestions? I have stopped eating the gluten free foods (except for a slice of bread occasionally). I normally do corn tortillas. My one addiction is sugar though. I can't stay away. I know I must be missing something in my diet to cause these unbelievable cravings. I have recently tried adding more protein (I am a vegan too) to each meal.

      Is there anything that will help my metabolism. I really feel like it is gone. I am 29 and a female by the way. Thanks!
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    11. pturse added a post in a topic Question For Those Age 15-25... Ish   

      I have tried. Countless times to make veggie burgers and they just crumble and fall apart. Even tried it with Gluten free TVP etc. I found one more recipe today using kidney beans but I am afraid to try it. My hubby got so mad when my last veggie burger attempt crumble all over the grill and made a terrible mess.

      I can't do dairy either so I lack the binding agent I think.
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    12. pturse added a post in a topic Question For Those Age 15-25... Ish   

      BBQ!!!!! That was my hardest adjustment (okay, not the HARDEST, but one of the most frusterating issues) I had to deal with (I am 29 now, but was diagnosed mid 20s). I am also a vegetarian, but what on earth could I bring to a social BBQ (or tail gate) when my beloved veggie burgers are now gone??

      Also, as a runner, perhaps something along those lines of what do athletes that age eat in preparation for races etc. I know my old habits, as a younger runner, I was not the best at maintaining a correct diet and then saddled with being Gluten Free . . . that was bad.
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    13. pturse added a post in a topic Beer   

      I drink Amstel Light. I got an email from them (I have since deleted it) stating that their beers are gluten free and they use a different way of processing I guess because it comes from Europe (their gluten standards are different anyway). I know I should be skeptical but I drink it only on occasion and feel fine. I know I know, feeling fine and having "damage" are two different things but my blood test levels remain on the healthy side while partaking in Amstel Light.
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    14. pturse added a post in a topic I Want To Stop Gaining Weight   

      Yeah, he's my little "baby." His name is Jack. He's a Hemmingway cat . . . 6 toes on every single paw . . . but still he has absolutely no balance!
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    15. pturse added a post in a topic I Want To Stop Gaining Weight   

      I can totally sympathize. I've gained 15 lbs in 2 months and none of my clothes fit! I am usually one to not go by the scale and to judge by how my clothes fit . . . well now they don't.

      I admit, I panicked and went off the diet for about 4-5 days. Don't know what I was expecting . . . maybe for the weight to magically "disappear."

      It hasn't. I "feel" fine but my stomach did start the usual 5 month pregnancy bloat look.

      I don't eat much "gluten free" foods and I am cutting down on sugar . . . but I sure hope everyone is right about the body eventually "settling" because I seriously can't afford (and don't want to buy) a whole new wardrobe!
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