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JerryK added a topic in Celiac Disease - Coping WithElevated Liver EnzymesHi, possibly some of you here remember me;0
I was never officially diagnosed as Celiac, but pretty much confirmed Gluten Intolerance, thru
self testing and Enterolab.
I've been "mostly" gluten free for a couple years now (I cheat, yeah I know I shouldn't).
I just had a complete set of bloodwork done. I'm telling ya they took 29 vials of blood.
Everything looked good, except my Cholesterol was borderline and two liver enzymes were elevated.
AST was 48 (5-43)
ALT was 83 (10-58)
While exercise can affect the AST/ALT tests (and I went for an 8 mile run the day before this test), I've also read that Celiac or Gluten Intolerance can affect liver enzymes.
How worried should I be about this? My doc says it's not urgent...I suspect it's either an affect of too much exercise or Gluten Intolerance...Anyone else?
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JerryK added a topic in Celiac Disease - Coping WithVitamin DSee his email below: How can this be so? How can Dr's miss this. How many people out there with Fibro have low vitamin D and no one bothered to check? Anyone out there feel like crap...hurt all over and no one bothered to check your vitamin D levels??
I hurt ALL over and it took until noon or longer to feel a little better. I was taking 6 tylenol a day and advil too. I don
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JerryK added a topic in Celiac Disease - Coping WithHello Again...Hello everyone,
Perhaps some of you remember me. It's been perhaps a year or so since I last posted. Something interesting has happened that I wanted to share and get some opinions on.
Just a recap on me. I was tested by Enterolab a couple years ago....Gluten Intolerance was confirmed...a gene test did not indicate I have the main Celiac genes. Blood testing at my HMO was not conclusive for Celiac. I have been on a gluten-free diet for a couple years now. It comes pretty naturally...I just avoid anything that seems questionable. I can eat things with trace amounts of wheat, with little impact, but any gluten of substantial amount and I get all the symptoms (you know what they are).
Soooo, I have an identical twin brother. He has, for the last couple years, ignored my attempts to get him to go gluten-free. In that time he has been diagnosed with "Fibromyalgia". (ok, no offense to anyone with fibro, but I believe this is a medical code word for --we don't know why you don't feel good, so here's a diagnosis).
About three weeks ago, he calls me...he's in so much pain that he cannot work. He's on his way to the Dr. Of course I ask him what he's eating....(Doy, he had three pieces of toast the night before).... Now here's where it gets interesting: He gets an email from his Dr. a couple days later: "Your vitamin D level is severely low, we've prescribed 50,000 IUs of D to be taken 1/per week for the next 8 weeks". His level
was "less than 4"...when 25 is considered the low end of normal.
A week after he starts taking his vitamin D, he tells me his pain is 95% gone. He feels the best he has in 10 years. His fibro appears to be cured or in remission.
Since vitamin D is the hormone that helps the body to regulate calcium absorbtion...does anyone here doubt that this is related to Gluten Intolerance/Celiac? Did I mention that we both had to have all of our teeth crowned in our early 40s, due to massive wear and decay.
I'm of the opinion that I didn't get the Fibro symptoms because I spend loads of time outside running, especially in the summer and perhaps my levels stayed up due to this. Also, I've been gluten-free for two years and all of my gastro symptoms have resolved.
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JerryK added a topic in Celiac Disease - Coping WithHla-dq 3,1 (subtype 7,5)According to Dr Ken Fine my Gene Test indicates:
"you do not possess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having two copies of a gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity may be more severe."
This is year old news to me now, but I need the "smoking gun". I need to see some links or research papers that link my results with gluten sensitivity, especially of the neurological kind. I know there's a bit out there, but it's difficult to find. Anyone that can help me will be my hero(at least for a few minutes).
HLA-DQB1 Molecular analysis, Allele 1 0301
HLA-DQB1 Molecular analysis, Allele 2 0501
Serologic equivalent: HLA-DQ 3,1 (Subtype 7,5)
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JerryK added a topic in Celiac Disease - Coping WithMy BrotherSo my IDENTICAL twin brother, has for a year and a half now, refused to hear me when I tell him about gluten sensitivity. I've given him the whole speil...told him about the big D, the aches, the pains, the depression, the blurred vision all going away when I went gluten-free.
Recently brother was diagnosed with fibromyalgia! He's on Lyrica for pain and has had a couple cortisone shots in his neck.
Now, I've pretty much made gluten-free my lifestyle, and I do it pretty much without even really thinking much about it. I will admit that I fall off the wagon now and then and have been known to eat half a cookie and get away with it. Recently I had a severe backslide and ate a whole carton of glutenated orange chicken.
Man did it taste good! But the next day I was anxious, depressed and I too suddenly had FIBROMYALGIA!!
The problem. I cannot convince my brother that the link between fibro and gluten is real. I cannot convince him that his psychic symptoms are exacerbated by gluten intake. He thinks it's all a "load" no pun intended.
So...does anyone have any links to any hard research showing the gluten/fibro link in all it's glory. I need some real hard data to push in his face, because I'm tired of hearing him whine.
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