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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About ajay

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    ajay's Activity

    1. ajay added a post in a topic Cruise - Want To Bring My Own Food   

      Sweetfudge, do you have a follow-up report?

      Because in about two weeks, *I'm* headed out on a Carnival Cruise...
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    2. ajay added a post in a topic Stowe Vermont And Boston   


      I ate at a NECI restaurant in Burlington several years ago, and they did just fine. I'd hope for the same at Chef's Table.

      There are also many upscale restaurants in the Stowe area that would probably be accommodating. Have you seen the Stowe tourist website?
      Before you go, you could email restaurants of interest and ask if they can help you. I don't have any firsthand experiences to share, but googling turns up some promising options. There are also some places between Boston and Stowe if you're driving up. (And if you are, you can stop at a Whole Foods Market on the way for tasty if expensive gluten-free bread & goodies).

      I live in the Greater Boston Area, and I think I'm spoiled. Several chains here have Gluten Free menus: Legal's, Capital Grille, P.F.Chang's... You'll still want to ask questions, of course. Generally, I feel pretty safe anywhere where the kitchen prepares food to order and the waitstaff seems to be paying attention. FYI, There's a Legal's in Logan Airport.

      Your daughter may still feel like she's under a spotlight a little, but I think many restaurants here are familiar with celiac disease. So you're less likely to get a waiter looking at you as if he were a deer in headlights and/or you're speaking in martian.

      Have a great time, and best of luck.
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    3. ajay added a post in a topic Relationships And!   

      Oooh! I have one. I met my sweetie at a party thrown by mutual friends. I gathered the courage to ask him out for coffee after work the following week... When we met up, he asked if I was hungry:
      "We could get dinner on Charles Street."
      "Oooh, that could be tricky," I said, "I'm allergic to wheat and corn and it's in everything." "How about shish kebabs? There's a Lebanese place up the street-- we could check out the menu and see what you think."

      We went there, the waitress was great and helpful, the food was tasty, and I didn't get sick. That I guess about 6 years ago.

      I should probably do a whole separate post about it, but I'm really lucky. My sweetie likes to cook and sees my restrictions as an interesting challenge.

      One time after I had my worst reaction to date, I was cleaning up the kitchen. I had just brought some candy back from a trip abroad (for friends and family) and was going to put it in the pantry.
      "Can you eat those?"
      "I don't plan to. I can't read the ingredients. They're for other people."
      "Well, then find another place for them. Only food goes in the pantry."

      In other words, just like everyone else says: In a way, it's a pretty good screen. If he can't deal with it, that's a big red flag anyway. And there are lots of really cool people out there.

      Best of luck to you.
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    4. ajay added a post in a topic I'm Suuuuuuuch An Idiot!   

      I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

      At least we all know what to do for New Year's Resolutions!

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    5. ajay added a post in a topic Big Mistake   

      Not to cause alarm, Sylvia, but swollen feet, fever/chills, etc. could be an anaphylactic reaction. There's a range in severity-- it is possible to have an anaphylactic reaction without going into shock. But I strongly suggest you be *very* careful in the future. Definitely mention it to your doctor (assuming you have a Doctor With Clue).
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    6. ajay added a post in a topic Has Anyone Been Refered To A Phsyciatrist As A Result Of The Emotional Ups/downs With Celiac?   


      ..and I second everything eleep just posted [excellent post!]. I try to be open to anything that can help, even if it's a little out of my usual comfort zone. Sometimes you have to look past the edges to find what works for you.
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    7. ajay added a post in a topic Has Anyone Been Refered To A Phsyciatrist As A Result Of The Emotional Ups/downs With Celiac?   

      Hi Canadian!

      I've been surprised at how much gluten can affect my emotions... I've had pretty good luck seeing a Licenced Social Worker (a counselor, does not prescribe meds) for several years. It won't "cure" the gluten-triggered lows, obviously, but it could help *if* you find the right person to talk to. She may be able to help give you some survival techniques to manage some of those lows. And of course, it's no picnic going gluten-free either, or dealing with people who think it's in your head (or in "demons"-- poor Ursa!)... As I just posted in another thread, be willing to meet a few shrinks/counselors/etc. before you decide. You may have to visit a few before you find one you like. I met with five before I found the person I see now. And trust your gut (er, so to speak). A good counselor can be a great help, but unfortunately there are a lot of really bad ones out there, too. Remember, you're paying someone to help you. Don't be afraid to screen them like you would any other job applicant.
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    8. ajay added a post in a topic The Emotional Side Of This   

      It's not unusual to talk with a few psychiatrists before you find one that you like & can work with. It's harder when you're limited by the insurance company. I would encourage you to try meeting with a few different ones and see if you can find someone to talk to. At this point, you deserve to have every possible thing that can help you, and a good shrink can be part of your healing process.

      Good luck. I'm sure you'll find plenty of support in Rachelville!
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    9. ajay added a post in a topic Starbucks Frappuccino   

      I've tried the bottled Mocha Frappuccino (the only kind that's also corn free) and haven't had a problem.

      At an actual Starbucks, it's Lattes only.
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    10. ajay added a post in a topic Question About Alcohol   

      If you are avaioding corn, note that most "cranberry juice cocktails" have corn syrup in them. You won't be able to get a cape codder/cosmopolitan/vodka & cranberry at a bar, but you can mix your own at home with a corn-free cranberry juice (an all-juice blend or something. not your typical Ocean Spray)

      I haven't had any problems with Chopin. I make my own simple syrup & sour mix when I'm inspired.
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    11. ajay added a post in a topic Best Gluten Free Food   

      A very belated answer, but I believe there's a reasonably well-stocked health food store in Lincoln that has gluten-free stuff. It's not cheap, but I found a lot more goodies there than I expected to.

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    12. ajay added a post in a topic Could I Have Glutened My Eyes?   

      I'm glad your eyes are getting better.

      I've had problems with re-wetting drops too... I was very careful checking out the ingredients when I bought them, but they definitely stung and made me light sensitive (so they probably caused dilation). I don't know why. Guess maybe we're stuck with dry eyes.
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    13. ajay added a post in a topic I'm Having A Really Rough Time   

      oooh, I used to looove goldfish crackers...

      Just wanted to pipe up with a "hang in there." December can really suck, and I think it's worse when you have anniversaries of sad events while everyone around is all merry & bright.

      As for the family member in question: do what you need to do for your own mental health. She may or may not be ready to hear what you have to say. You may lay it all out on the table and she might have a huge tantrum and flip the table over. I think it's wise to prepare for that possibility. Speak your mind (gently, as you say) and let it go. She may come around...she may not... again, do what you need to do to be at peace with yourself, because you can't chnage her or solve her issues.
      As for the other family members, well.. can you just talk to them directly, so they aren't getting misinformation?

      I wish you sunshine and a Happy New Year.
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    14. ajay added a post in a topic How Do You Resist The Temptation?   

      Oh, isn't that the worst?

      My first thought: How long have you been gluten-free? I ask because I used to cheat now & then before I was gluten-free long enough to feel better and really have a sense of how awful gluten made me feel. So for a good 2 years or so, I was *really* whiny about what I couldn't have. Now I'm only moderately whiny.

      I'm all in favor of the "Oh, it was so sweet of you to think of me!" & then find the forbidden item a new home ASAP technique.

      As for the encouragement: Go jamrock! Hang in there! Everyone here wants you to be happy and healthy. This is undoubtedly the toughest time of year to be wheatless. Be strong! You can do it! Think of how much work you've done to get better! [Plus, you know the stories about fruitcake-- for all we know, it could have been "re-gifted" several times already!]

      Also, I highly recommend splurging on a gluten-free decadent goodie. Make some gluten-free coffee cake. Look for a recipe for gluten-free fruitcake. Buy those expensive gluten-free cookies/brownies/whatever. Give yourself a nice treat that you can enjoy guilt-free.

      When I went to my Mom's for the holidays, I brought my favorite gluten-free chocolate chip cookies and allowed myself one per day. It really helped to keep me from feeling too sorry for myself amid the usual temptations.

      And of course: post early, post often! That's why we're all here.
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    15. ajay added a post in a topic "the Trigger"   

      Sometime in my 30's, I got one of those really nasty, in-bed-for-a-week flus. I was living alone, and when I finally broke out of the feverish delirium, I realized I was really, really hungry. I had no energy whatsoever, so I made the easiest thing I happened to have on hand: speghetti with sauce from a jar. I polished off a bowl and went back to bed. When I woke up again, I had big red splotches all over my neck, and one eyelid was swollen shut.. After a week, I went to a doctor who gave me hydrocortisone to put on the red spots, which helped for a few days. Then they got gruesomely worse. A friend said "Those look like hives. Do you have a food allergy?" Hm. Bought a book on food allergies, did the elimination diet, kept a food journal, discovered that any corn or wheat product brought the hives back.

      When I look back, I remember multiple doctor visits in my childhood due to severe constipation. And pretty much every winter since I could remember, I lost about a week or two out of the year to the flu.

      I figured it was just food allergies. My sweetie was the one who pointed out that I get pretty nasty digestive symptoms, too, and he thinks I'm celiac. He's probably right. I haven't been tested, but since the wheat allergy is a definite (anaphylactic reaction to my last accident) I don't feel the need to have any tests done. The end result is the same: gluten-free for life. After reading many posts here, I am really worried about Mom: she has many of the common symptoms. I'm also now worried about my MIL, because I realized that she has a lot of symptoms, too! Or maybe I'm just seeing Celiac everywhere. Anyway, I suggested she check out this board, so now I should be careful of what I post!
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