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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Willow5

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    Willow5's Activity

    1. Willow5 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Celia Genes
      Just was wondering what is the most common gene for celiac.
      • 1 reply
    2. Willow5 added a post in a topic Negative Blood Test...very Confused Now!   

      Please always ask for a copy of your testing results so you know that the Dr/lab actually ran/asked for the correct tests and the nurse read to you the correct tests results - there is so much error within the medical field!!! In the last month I have been read results from the Dr's office which were 2 years old, I have had the wrong tests run when the lab interpreted what the Dr ordered incorrectly and a week ago I was told my celiac results were all normal with a General medabolic test that was run 2 months ago. I am an RN and I insist on seeing what was ordered and a copy of any results. A call saying that all your tests came out normal means nothing.
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    3. Willow5 added a post in a topic Positive Igg/negative Biopsy?   

      I had and initial Igg of 39 and all other tests came in within normal limit. I have been mostly gluten-free for the last 2 years and I notice definate differances in my levels of energy when I stick with gluten-free and have a rash that appears within hours of a cheeting experience.
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    4. Willow5 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Question On Blood Test Results After Being Off Gluten?
      After being gluten-free for a significant time as in a year or so, if I get re-tested do I expect to find any antibodies for gluten in my blood results?

      Do these tests ever get so totally negetive that they do not show up. Do these antibodies ever go away completely?

      Does a low but "normal" level indicate that there is still gluten being injested occationally and that there is still a reaction inside the body?
      • 0 replies
    5. Willow5 added a post in a topic Bosch Or Kitchen Aid Bread Mixer?   

      Thanks Andrea, I have a large family too... so I end up making lots of bread! Three of us seem to do better gluten-free so we just do everyone gluten-free to simplify things. Thanks for the input - I am putting the Bosch Machine on the top of my wish list
      • 0
    6. Willow5 added a post in a topic Bosch Or Kitchen Aid Bread Mixer?   

      I think that the Bosch universal mixer/blender is what I am looking into getting. It has a bread mixer on one side and a blender on the other side. My mother used this for her wheat bread and I wondered how it would do with the gluten-free bread.
      • 0
    7. Willow5 added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Bosch Or Kitchen Aid Bread Mixer?
      Am getting ready to get a bread machine, Am considering eather the Kitchen Aid or the Bosch Bread Mixer. Any input would be appreciated.
      • 12 replies
    8. Willow5 added a post in a topic Can Everyone Post Their Genes   

      HLA-DQB1 Molecular analysis, Allele 1 0201

      HLA-DQB1 Molecular analysis, Allele 2 0301

      Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)

      HLA-DQB1 Molecular analysis, Allele 1 0302

      HLA-DQB1 Molecular analysis, Allele 2 06xx

      Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6)

      LA-DQB1 Molecular analysis, Allele 1 0201

      HLA-DQB1 Molecular analysis, Allele 2 0302

      Serologic equivalent: HLA-DQ 2,3 (Subtype 2,8)
      • 0
    9. Willow5 added a post in a topic Weight Loss Suppourt Thread (shannonl) And Any Others Who Want To Join   

      Never thought that weight gain would be an issue for me but since I have gone gluten-free I have gained about 10 lbs and 2 sizes. I am vegetarian so I think that I end up eating too many grains trying to get my protein and satisfy my appatite. So does gaining weight happen frequently after going gluten-free?
      • 0
    10. Willow5 added a post in a topic Only Agg Positive   

      Like I said.... still learning! Thanks!
      • 0
    11. Willow5 added a post in a topic Only Agg Positive   

      In the process of learning.... IgG is an alergic reaction and IgA is an intolerance. Alergic reactions can be overcome but intolerant reactions only get worse. It is possible if you show only the IgG reaction that you may be deficite of IgA's , I really don't understand that concept! It is possible to have all the Celiac tests done with the IgG's though!

      I did go through enterolab and my IgA's did show up there so I think I am not officially deficient. Because I have a main celiac gene - and a majority of persons do, and also my son has two main genes - not so common, we as a family have decided to go gluten free without further testing. It is also very common to do all the testing commonly done and still come out inconclusive but have a positive health responce to a gluten free diet!

      I would get all the testing you can possibly afford! Don't try Gluten free untill you have finished testing!
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    12. Willow5 added a post in a topic Only Agg Positive   

      Finally got my Enterolab results back for myself as well as my husband and kids, found results very interesting, turns out that my hubby and I both have a celiac gene - mine is no. 2 and hubby's is no. 8. Our son who started us on this tangent (with encopresis) turns out to have both 2 and 8 and the worse symptoms as well, he also tested positive with Gluten sensitivity.

      Now for my "IgG only positive" - of course Enterolab does not measure IgG's but on the test my IgA's did show up which I found interesting but they were just below the positive level. I talked to enterolab staff and they advised me that since I do have one of the main Celiac genes and do have symptoms that I ought to recognise a low level reaction and go gluten-free now instead of waiting till the antibodies get higher.

      Glad to have done the testing!
      • 0
    13. Willow5 added a post in a topic Entrolab ?   

      hey, I see persons skeptical about enterolab diagnosis... My husband and I just got back negitive result! We both have one main celiac gene but our antibodies were in the high normal range! (Before I tried enterolab I had blood tests done and was high in IgG only). Our son who has had the worst GI troubles of us also got tested and he did come back positive on the low end. He also ended up having two main celiac genes 2,8.

      I am glad to have done the complete panel, am still wondering though how my husband and I are officially negetive at AGA IgA being an 8 while my son is now positive with a number only two higher! Still, the testing came out very close to our blood tests.
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    14. Willow5 added a post in a topic The Common Cold Prior To Diagnosis   

      I did a gluten chalenge period this winter of about 5 weeks, I had a "cold" the whole time, when I went gluten-free again my "cold" cleared up within 2 days
      • 0
    15. Willow5 added a post in a topic Can 1 1/2 Weeks Of Gluten-free Affect Biopsy Results?   

      A loaf of bread sounds like a lot! Most places recoment 2-4 slices a day for a pre-test dose!
      • 0

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